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    My first lump in the lymph node was discovered 40...

    My first lump in the lymph node was discovered 40 years ago, it went in remission spontaneously, then I got dlbcl in the same lymph node 14 years later, treated with chop, then I got Follicular 15...
  2. I am now in cycle 4 of 6. My first cycle was the...

    I am now in cycle 4 of 6. My first cycle was the most difficult so far. My blood pressure dropped to very low level so I could not get up from the bed. I was better prepared for the next cycle I...
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    Yes, I am happy that my cancer responds. I was...

    Yes, I am happy that my cancer responds. I was worried because I had several previous treatments. After each treatment the cancer can become drug resistant, so i was concerned. The problem is that I...
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    I can drink a lot of chicken broth , it's my...

    I can drink a lot of chicken broth , it's my savior during chemo. I drink also a lot of water with berries, candies or cheese. I start miralax a day or two before chemo with Zofran. Works fine.
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    Went to a dermatologist. He said it's not a...

    Went to a dermatologist. He said it's not a lymphoma, nor allergy, nor infection. He cauterised some pimple looking rash and some small patches. Said to come back in one month. He refused to do a...
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    Thanks. On Monday I have a CT scan, then in a...

    Thanks. On Monday I have a CT scan, then in a week I have my next appointment with my onc. Maybe she will send meto see a dermatologist.
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    Thanks. It looks like the rash is less inflamed....

    Thanks. It looks like the rash is less inflamed. I started the third cycle of chemo and I'm getting iv hydrocortisone and oral prednisone and Benadryl. I am wondering why it's getting better so...
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    Thank you for your suggestions. I will definitely...

    Thank you for your suggestions. I will definitely try Benadryl. I started a hydrocortisone cream. Interestingly they give me hydrocortisone infusion every time before my rituximab injection. They...
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    Thanks. Hopefully it's not lymphoma. I was so...

    Thanks. Hopefully it's not lymphoma. I was so disappointed yesterday when I found the rash, as I am in the second cycle of treatment. BTW, how fast the lymphoma rash spreads on skin? I though it was...
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    Red rash on the head

    I am in the second cycle of the rceop regimen for partially transformed follicuar lymphoma. I lost my hair and discovered red patches on the back of my head. Can Follicular lymphoma spread like...
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    Lymphoma clinical trials results

    https://www.fiercebiotech.com/research/novel-two-drug-combo-teaches-immune-system-to-attack-cancer
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    Interestingly, the glioblastoma patients can be...

    Interestingly, the glioblastoma patients can be organ donors. Even though GB normally does not metastasize outside the brain the cancer cells and stem cells are circulating. But due to the shortage...
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    I am in the first week of the first cycle. I was...

    I am in the first week of the first cycle. I was ok for the first 6 days, but today was very hard on me. My blood pressure was so low that I could not get up from the sofa. I had also abdominal pain....
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    It's good to have spare lines of therapy. My doc...

    It's good to have spare lines of therapy. My doc thinks that I already used several of them, so she was very careful not to give me any reassurance.
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    Thanks for the good news about Zevalin. I am...

    Thanks for the good news about Zevalin. I am taking my protocol very well. Maybe it's because I am in my first week of the first cycle. One small palpable node under my jaw is gone.
    My tumor is not...
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    The scary thing is it's the second transformation...

    The scary thing is it's the second transformation so Zevalin might be another line of therapy if this one fails. I don't even know if it's available in my province.
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    It's my second transformation. I had doxorubicin...

    It's my second transformation. I had doxorubicin 27 years ago in chop, they say that's it. No more H in any other protocol. IV Zofran did some magic for me, nausea was stopped right away. I feel not...
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    The preliminary results was FL, but they found...

    The preliminary results was FL, but they found areas with large cells, high grade. The doc said it started transformation although not finished, but we treat it as transformed, we do R,...
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    I had my last scan in June 2018. At that time I...

    I had my last scan in June 2018. At that time I had 2 small low grade tumors that grew very little since then. So the doc said we should wait and watch until symptoms appear. Symptoms appeared so...
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    I finally got a copy of my CT scan and it scared...

    I finally got a copy of my CT scan and it scared me. I have a 15 cm tumor growing from pleura. It's so big that my lung collapsed. Today they drained 1.7L of water from the lung. Tomorrow they will...
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    Thank you for your reply. I had a CT on Friday...

    Thank you for your reply. I had a CT on Friday and it showed enlarged lymph nodes and pleural effusion. But I also had a chest x Ray and it was striking. One lung was white, the other was normal....
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    I suddenly deteriorated pretty fast. Could not...

    I suddenly deteriorated pretty fast. Could not breath, became very weak, not able to walk for 20 minutes, but mainly breathing problems. Got admitted to the hospital. They found pleural effusion. My...
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    Thanks. I dont know yet if I am refractory to...

    Thanks. I dont know yet if I am refractory to ritux. Maybe it's still working. Most of all I am afraid of transformation. I have difficulty breathing which started very recently.
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    Thanks. I will ask.

    Thanks. I will ask.
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    Hi Kermica, thanks for your reply. Unfortunately...

    Hi Kermica, thanks for your reply. Unfortunately I cannot do any heavy chemo that is required for SCT or CAR T cells. So I am stuck with temporary solutions hoping for immunotherapy approval as a...
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