A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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Type: Posts; User: Teacher Deb

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  1. Sorry I Can't Help You on Info on CMML, But...

    [QUOTE=Astrid56;382274]Hello, I am new to this forum. Was recently diagnosed with CMML. Will start Chemo next week (decitabine), 5 days, then 4 weeks off, repeat. I am waiting for a consult with a...
  2. Thanks, Chief! Sorry I didn't see your and...

    Thanks, Chief!

    Sorry I didn't see your and Don's reply to me until now. I haven't received any notifications about people replying to my posts? Hmmm? Here it is Jan. 2018 and I am writing back....
  3. Hi Don, I hope your counts are remaining normal....

    Hi Don,
    I hope your counts are remaining normal. And yes, it can be a problem. If they go wayyyyy down, you may need growth factor shots. I had to have them 3 times after my transplant. They...
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    Kermica, I've never pmed someone before, but...

    Kermica,

    I've never pmed someone before, but figured out how to do it! But it was unsuccessful because your box or something is full and can't receive any more mail? So I'm replying here.
    ...
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    Thanks, Po!

    Hi Po,

    Not sure why I can't change the size of the font here? I must be having troubles yet again?!! I figured out how to change how to get notifications from people who have responded to my...
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    How to Change/Edit Signature?

    Hello!

    I hope everyone had a nice Christmas and will have a happy/healthier new year!

    I can't seem to edit my signature and have it saved? I got some kind of message that I exceeded the...
  7. What a Nice Feeling and Way to Start 2019!

    Hi Po!

    Good to hear you are port-less and your skin condition has improved!
    I hoe you had a nice Christmas and you have a happy/healthier new year!

    I went to settings and up-dated my...
  8. Hi PoGuy

    Hi PoGuy,
    I sure hope they come up with a treatment that will work on T-Cell Lymphomas soon! I heard about natural killer cells. I don't quite understand all of this like you seem to, but...

    I...
  9. Hello Again, David, Thank you for teaching me...

    Hello Again, David,

    Thank you for teaching me what ALCL means. There are too many acronyms! You had to get a rare cancer, huh? It looks like that brentuximab and the allo transplant did the...
  10. Hi Again, Po, Well, I have a consult...

    Hi Again, Po,

    Well, I have a consult appointment at the SCCA sixth floor on January 30th at 1:00. Will you be around? It would be nice to meet you! Let me know!

    Again, you amaze me with your...
  11. Thanks, David

    Hi David,

    First time (I think?) that I've done a quote reply thing! Thanks for writing in. You had a 2 1/2 year span from your auto transplant, then relapsed. You said you were a T-Cell guy...
  12. I lot of incident reports at an emergency first...

    I lot of incident reports at an emergency first responder! I bet you have a lot of stories to tell & have seen so much! I am glad you are a fellow believer and know how to encourage others!
    ...
  13. Hi Po18guy, I'm very kind? Just telling the...

    Hi Po18guy,

    I'm very kind? Just telling the truth! :-) Sorry if I've asked this earlier, but what type of writing did you do for 31 years? You also were in the ministry, I think?

    I sure...
  14. Po, I think I asked you why the t-cell...

    Po,

    I think I asked you why the t-cell immunotherapy won't work for your t cell lymphoma? As you said, with time, there are more and more therapies coming.

    You have a great attitude and a way...
  15. Hi John, Thank you so much for writing and...

    Hi John,

    Thank you so much for writing and giving me the website to check out. I will do that after responding to your post.

    You had stage 4 NHL in '09 and are still in remission?!! Yeah! ...
  16. Hi again, Yes, that part is very scary! But...

    Hi again,

    Yes, that part is very scary! But they do say it's temporary and they know how to counter-act it better now?

    Thanks again,

    Debbie
  17. Hi Po18guy (Jim?), Thanks for writing back so...

    Hi Po18guy (Jim?),

    Thanks for writing back so quickly. You've heard the Car-T Cell Immunotherapy is easier than the transplant? From what little I was able to find on it, they are both dangerous...
  18. Anyone Have a Recurrence After Their Stem Cell Transplant? :-(

    Hello Everyone,

    Here is a summary of my story:

    I had Diffuse Large B Cell Lymphoma in Sept. 2015 (Stage 1). It was in my right inguinal lymph node. I had 3 R-Chop treatments 21 days...
  19. Of course, she did a "Phew! Thank God it's not...

    Of course, she did a "Phew! Thank God it's not cancer again!" But sadly, the poor lady had to wait a week for her oncologist to tell her the results at an appointment. I think he could have called...
  20. Po, Just found out a patient got a pet scan...

    Po,

    Just found out a patient got a pet scan because she was experiencing pain in her legs. First, they thought it was a reaction to an osteoporosis medication. Then her oncologist (yes, she has...
  21. Jackie, I know I'm new on here, but I sure had...

    Jackie,

    I know I'm new on here, but I sure had a hard time finding this post AGAIN!

    I was surprised you said the auto transplant was very easy on you. Then the allo was a whole other story. ...
  22. I noticed the difference between a transplant...

    I noticed the difference between a transplant doctor and a regular oncologist while in Seattle. The transplant doctors are specialists and my hometown oncologist is just a regular oncologist. The...
  23. Hi Po, I didn't reply yet as I started reading...

    Hi Po,

    I didn't reply yet as I started reading your story. Looks like that may take me some time.

    I'm sorry that T Cell Lymphomas don't fare as well as B Cell Lymphoma. The more I read about...
  24. Hi Don, Thanks for your reply. So your counts...

    Hi Don,

    Thanks for your reply. So your counts have been going up and down since your allo in August?

    The growth factor shots worked and pushed my counts back up. The following (last Monday)...
  25. Thanks, Don. I guess it's normal for some of...

    Thanks, Don.

    I guess it's normal for some of us to go up and down for a while after a transplant. My counts are back up & I'll get re-checked again on May 1st. Thanks for wishing me the best!
    ...
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