A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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  1. Fabulous news!! So happy to hear!

    Fabulous news!! So happy to hear!
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    Iím so glad to hear your mom is doing well. I...

    Iím so glad to hear your mom is doing well. I have spent a lot of time worrying about the same things you talk about. Where I once minimized any of his minor aches and pains, now I worry everything...
  3. I donít blame you for being worried. And itís so...

    I donít blame you for being worried. And itís so hard to be in the hospital. Hopefully he will dip below 100 tomorrow. We always felt better when we got my husband home. A couple of times when it...
  4. I agree with Mary. My husband wasnít drinking...

    I agree with Mary. My husband wasnít drinking enough water and it caused some problems in the beginning. Actually three days to clear is pretty fast as I remember. But once he stayed over a week we...
  5. Thatís wonderful news. Good luck with the MRI...

    Thatís wonderful news. Good luck with the MRI today.
  6. So many doctors, nurses and other professionals...

    So many doctors, nurses and other professionals at MSKCC are foreigners with fabulous skill sets. Everyone there treated my husband with expert care and compassion, whether foreign or American. As...
  7. Thatís the standard. Iím glad he is there and...

    Thatís the standard. Iím glad he is there and getting treatment. I pray he responds - as many do - to the methatrexate. And that his tumors will shrink and his extreme symptoms will lessen. Good luck...
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    I am very sorry for the loss of your beloved...

    I am very sorry for the loss of your beloved husband. Itís all so hard - the suffering and fear and now the loss. I pray you find peace in knowing you were a true and loving advocate for your husband...
  9. Thread: Saddest news

    by islanders
    Replies
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    10,182

    Many prayers for Al and you. From everything I...

    Many prayers for Al and you. From everything I have read here, you are a loving and loyal wife. I pray for strength and grace and peace for all of you. And all of us too.
  10. You are in good hands with Dr. Grommes. He saved...

    You are in good hands with Dr. Grommes. He saved my husbandís life. Many prayers he can do the same for your dad. Not sure if itís hereditary, but Iím pretty sure surgery is rarely, if ever, an...
  11. My husband, now 62, was diagnosed with PCNSL in...

    My husband, now 62, was diagnosed with PCNSL in 2016. He was successfully treated at MSKCC by the neuro-oncology team and is in remission. His doctor is young, does research, writes articles and is...
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    So sorry about your mom. My husband was also...

    So sorry about your mom. My husband was also diagnosed with PCNSL and he is now one year post stem cell transplant and doing well. I guess he had the Deangelis protocol since he was treated at Sloan....
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    Saying prayers- hoping you have good news.

    Saying prayers- hoping you have good news.
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    I don't know about the lack of a brain biopsy. My...

    I don't know about the lack of a brain biopsy. My husband didn't have that issue. He had a brain biopsy, PET scan, lumbar puncture, slit lamp and well a whole week's worth of testing. As far as I...
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    I can relate 100 percent since my husband was...

    I can relate 100 percent since my husband was diagnosed with the same thing last year after similar symptoms. However his treatment was similar to Mary's. High Dose methotrexate and rituxan. There...
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    Such wonderful news. Prayers for continued...

    Such wonderful news. Prayers for continued recovery.
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    My husband was diagnosed with PCNS lymphoma one...

    My husband was diagnosed with PCNS lymphoma one year ago. He had 8 treatments of HD methotrexate and rituxan and then an auto stem cell transplant. It was rough at first but he's doing very well now....
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    Yes of course it's good news his levels are...

    Yes of course it's good news his levels are coming back. It happened last time as well. I know everyone has their own road. I was just wondering if anyone else experienced this. I had not seen it...
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    Late Onset Neutropenia

    After suffering numerous complications from his auto stem cell transplant my husband has made great progress. It's one year since he was diagnosed with primary central nervous system lymphoma and...
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    My husband is the cancer survivor. We had our...

    My husband is the cancer survivor. We had our doubts in the beginning if the stem cell transplant would be worth it. It was rough. It seems all cancer treatment is rough. But in the end you have to...
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    Such great news! I'm happy for you and selfishly...

    Such great news! I'm happy for you and selfishly for me too. I'm always worried about my husband who was diagnosed with Pcnsl last April. I love reading about your good scans and your full and...
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    My husband is just about 100 days post...

    My husband is just about 100 days post transplant. He was feeling so much better and his mood was great. I could almost imagine a day when our lives weren't consumed and limited by this...
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    So terribly sorry to read this. Saying prayers...

    So terribly sorry to read this. Saying prayers for you and your son.
  24. I am caregiver to my husband who had an auto stem...

    I am caregiver to my husband who had an auto stem cell transplant in August. Not going to lie. He suffered quite a lot. We both wondered at various times if he had made the right choice. He had many...
  25. Thanks Mary. I told my husband about your...

    Thanks Mary. I told my husband about your response and it made him feel a little more at ease. We know he has to be more patient and we are both learning to adapt. Even though we want him better...
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