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    My husband has been treated for ALL at Moffitt...

    My husband has been treated for ALL at Moffitt since 2014. Over five years with Dr Bijal Shah. Yes, ALL and hes in remission.
  2. Thread: Car t

    by abeucher
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    Thank you very much

    Thank you very much
  3. Thread: Car t

    by abeucher
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    Hello Johnr - I tried to find the program you are...

    Hello Johnr - I tried to find the program you are referring to on BBC but what I found is that it isn't available anymore. I could only view the trailers. I really wanted to see it.

    James is...
  4. Thread: Car t

    by abeucher
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    12,225

    I would say that the biggest differences are...

    I would say that the biggest differences are neurotoxicity did not happen when my husband has his transplant in 2014. Also, my husband's WBC was 0 during transplant and with CAR T , his counts didn't...
  5. Thread: Car t

    by abeucher
    Replies
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    12,225

    clonoSEQ results are in, there is no evidence of...

    clonoSEQ results are in, there is no evidence of cancer. : )

    clonoSEQ definition:

    The clonoSEQ Assay measures minimal residual disease (MRD) to monitor changes in burden of
    disease during...
  6. Thread: Car t

    by abeucher
    Replies
    104
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    12,225

    6 months Post CAR T Yesterday we received the...

    6 months Post CAR T

    Yesterday we received the results from James' bone marrow biopsy from July 29th. " No morphologic evidence of B lymphoblastic leukemia." Yay! We have not received the flow or...
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    I hope you both are doing better. Brucecav ,...

    I hope you both are doing better.

    Brucecav , I hope you enjoyed Disney. You were about and hour and a half from us.
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    Hi Brucecav! I am sorry to hear about the nodules...

    Hi Brucecav! I am sorry to hear about the nodules - by now, I'm sure you've seen your dr. I hope all went well and you are getting the care you need.

    My husband is doing really well. He went...
  9. Thread: Car t

    by abeucher
    Replies
    104
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    12,225

    Happy 4th Birthday po18guy!

    Happy 4th Birthday po18guy!
  10. Thread: Car t

    by abeucher
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    12,225

    Hello IndyLou We are a few blocks from the...

    Hello IndyLou

    We are a few blocks from the gulf in Pinellas County so we feel the gulf breeze here too. It is extremely hot right now. Fortunately, we have A/C , the gulf, and a pool and we...
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    Hello fighterm - My husband is 5 months post CAR...

    Hello fighterm - My husband is 5 months post CAR T for ALL PH positive B cell leukemia trial - ZUMA 3.

    I have a post about his CAR T journey on this forum. Listed as "CAR T"
  12. Thread: Car t

    by abeucher
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    5 months post CAR T ZUMA 3 Today was James' 5...

    5 months post CAR T ZUMA 3

    Today was James' 5 month post CAR T check up. His labs were good and it was a quick visit. I'm not sure if its delirium, but he still talks out loud and doesn't realize...
  13. Thread: Car t

    by abeucher
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    IndyLou, No. Not yet. Because his immune system...

    IndyLou, No. Not yet. Because his immune system is so low, we have not been able to travel. Hopefully this fall. I imagine it will depend on the weather.

    James seems fine today. It certainly has...
  14. Thread: Car t

    by abeucher
    Replies
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    12,225

    Day +129 (Monday) James went in for his...

    Day +129 (Monday)

    James went in for his check up Monday morning. He was also scheduled to start monthly Pentmadine treatments. Shortly after treatment started, James began choking and then he...
  15. Thread: Car t

    by abeucher
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    Day 118 Hello. We've had a few weeks off (from...

    Day 118

    Hello. We've had a few weeks off (from apts) and everything has been good. We haven't been able to travel. James' dr wanted us to stay close unless we had a place to go for labs and since...
  16. Thread: Car t

    by abeucher
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    12,225

    Day 101 Last Wednesday, James wasn't feeling...

    Day 101

    Last Wednesday, James wasn't feeling well. He was having a lot of pain in his legs. He was sick early in the morning Thursday but we attributed it to the dose of neupogen. By Friday...
  17. Thread: Car t

    by abeucher
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    12,225

    I have had concerns myself about delirium but his...

    I have had concerns myself about delirium but his doctors never mention it. He is detailed about what he sees and , yes bizarre is a good word to describe it. Mostly, shapes and figures. Very odd. We...
  18. Thread: Car t

    by abeucher
    Replies
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    12,225

    Day 94 Post 90 day biopsy " No evidence of...

    Day 94

    Post 90 day biopsy " No evidence of malignancy in this sample." Yay! How about that? The next biopsy will be at 6 months post CAR T. James asked for the next three months off and the...
  19. Thread: Car t

    by abeucher
    Replies
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    12,225

    Day 80 Nothing but good news to report. James...

    Day 80

    Nothing but good news to report. James is doing really well. He had a check up today and his lab work looked good. We scheduled his 90 day post CAR T biopsy for May 1st. James is feeling...
  20. Thread: Car t

    by abeucher
    Replies
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    12,225

    Day 67 Biopsy results are in (post 60 days) he...

    Day 67

    Biopsy results are in (post 60 days) he remains cancer FREE. Yahoo! He's feeling better too. We're not sure what happened last week but his dr cancelled the LP and MRI. His lab work looks...
  21. Thread: Car t

    by abeucher
    Replies
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    12,225

    I will ask about the medication, thank you for...

    I will ask about the medication, thank you for the suggestion. James could barely stay awake today during his appointment. He was exhausted. He actually had a hallucination during his appointment. He...
  22. Thread: Car t

    by abeucher
    Replies
    104
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    12,225

    Day 58 I saw a few things today I haven't...

    Day 58

    I saw a few things today I haven't seen in a while. In church this morning, James was speaking out loud a few times. He didn't realize what he was saying and I couldn't understand what he...
  23. Thread: Car t

    by abeucher
    Replies
    104
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    12,225

    Day 53 Yesterday's visit went well. Dr Shah...

    Day 53

    Yesterday's visit went well. Dr Shah went over James' molecular report from his 30 day biopsy. There are no signs of molecular leukemia. This specific test also identifies if the...
  24. Thread: Car t

    by abeucher
    Replies
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    12,225

    Day 46 James continues to do well. He's...

    Day 46

    James continues to do well. He's getting stronger every day. His ANC remains low ranging from 400-700 last week. He did not receive any help from nuepogen so this is his own immune system...
  25. Thread: Car t

    by abeucher
    Replies
    104
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    12,225

    Day 35 The report says : No evidence of...

    Day 35

    The report says : No evidence of residual b lymphoblastic leukemia. Patient is in complete remission at this time. Yahoo!

    We will continue with 2x weekly labs and follow up...
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