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  1. Thread: Hi everyone!

    by Kermica
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    Hi Marian, I hope you and David are doing as well...

    Hi Marian, I hope you and David are doing as well as can be! I have had lots of changes in your absence, mostly a stem cell transplant a couple of months ago from which I am slowly recovering. ...
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    Jim, so sorry to hear of this development. ...

    Jim, so sorry to hear of this development. Infections are the one thing that scares me on this journey - get em anywhere and don't know they are there til they decide to show you they are there. ...
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    Hi there, JiminPDx and welcome to the place no...

    Hi there, JiminPDx and welcome to the place no one wants to be but any come to value. I am sorry to hear of your diagnosis but be assured that fNHL is one of the blood cancers that can be treated...
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    Hi Marie, and thank you for your kind words,...

    Hi Marie, and thank you for your kind words, prayers and good thoughts. Don't think you can't make a contribution just because you haven't had as many treatments as some of us, just see your post...
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    Thanks, Simon, I'm doing okay, I think. I did...

    Thanks, Simon, I'm doing okay, I think. I did have a spike in my white blood count last week (up to 23,500, I believe) but nobody in my local office got excited about it so neither have I. I would...
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    As always, here's hoping you (or they) can get...

    As always, here's hoping you (or they) can get the dosing so that it yields maximum benefit at minimal physical cost. Is that an MGB you are recabling? That would be a fun job, they are so simple,...
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    Thank you both for your warm wishes. As to how I...

    Thank you both for your warm wishes. As to how I am feeling, the best word I can use to describe it is depleted. Tired, some real back pain and, of course, all of the precautions reduce you...
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    So, the checkup at Dana went really weell. I...

    So, the checkup at Dana went really weell. I have a better understanding of what we are doing and where it will take us in the end. I will have a scan at Day 100 and return to Dana at that point. ...
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    That is thee other shoe that I can't help waiting...

    That is thee other shoe that I can't help waiting for. If there is one cell of the little bugger still hiding out, it is going to get ugly. Back to Dana tomorrow for a check up, most interested in...
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    Well, you have no idea how it makes me feel to...

    Well, you have no idea how it makes me feel to have you back here, C-Man. I remember waving at your retreating back all those years ago and here you are. As you know, I am still trying to figure a...
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    Well, the decision is made. One more dose of...

    Well, the decision is made. One more dose of Lasik to help get the water out of my body. As far as the concern about an infection, they have decided that, since I am on antibiotics and antivirals...
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    Port came out without incident yesterday. The...

    Port came out without incident yesterday. The doc doing the extraction told me that, if it is an infection, it is probably not in the blood since I don't have a fever. It may be localized to the...
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    ddessert, I am very sorry to hear that your Dad...

    ddessert, I am very sorry to hear that your Dad has passed over but trust that he iss now in a place where his pain and all the burdens of his disease are behind him forever. May he rest in peasce...
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    I hit a hiccup today. The insertion point for...

    I hit a hiccup today. The insertion point for the Hickman is inflamed and sore to the touch. Showed it to the doc at rounds this morning. I was scheduled for it to be removed but it is now coming...
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    Hi everyone. I wrote and posted the following on...

    Hi everyone. I wrote and posted the following on my personal FB page last night. For whatever reason, that is where I have documented most of this part of my journey (actually, it was so my family...
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    Thanks, once again, everyone. I really can't...

    Thanks, once again, everyone. I really can't express how much I appreciate your support. The last few days have made everything that came before resemble a picnic. I have been fighting an...
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    Thanks, everyone for your good wishes and...

    Thanks, everyone for your good wishes and concerns. Today is D+4. The chemo is doing its job of driving me into a ditch and life is not as pleasant as it was before this started. That said, I will...
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    Well, today is T-1. I get my last dose of chemo...

    Well, today is T-1. I get my last dose of chemo around noon and then, tomorrow is Day Zero when my cells will be reinfused. SO far, things could not have gone better than they have. Everyone tells...
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    Glad to hear that you are getting some relief,...

    Glad to hear that you are getting some relief, POGuy, I can agree completely about not upping prednisone.

    Things here are progressing pretty well so far. I am at Day-3 and will get reinfused on...
  20. Basic gene mutation for Follicular Lymphom found

    Much work to do but this could be huge for many:
    ...
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    May he rest in peace (may we all). I got his...

    May he rest in peace (may we all). I got his catheter implanted in me this past Monday, so far, so good.


    Good health,

    kermica
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    Thanks, John. No, no discussion yet of what can...

    Thanks, John. No, no discussion yet of what can be held back if needed. I plan to have that conversation with the transplant team after checkin. Apparently the target for reinfusion is the 3M they...
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    Well, so far, so good! The Hickman is in place...

    Well, so far, so good! The Hickman is in place and working. We started the harvest on Tuesday with a target volume of 3 million cells. In five hours, we harvested 10.5 million so we were finished...
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    Thanks again, one and all, for your concern, warm...

    Thanks again, one and all, for your concern, warm wishes, prayers, etc...

    We are in Boston and headed over to Dana in about an hour. Today's schedule includes labs, another granix shot (bone pain...
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    Hi jwessel. I am sorry to hear that you are...

    Hi jwessel. I am sorry to hear that you are having such a hard time with CHOP. Is there another component in the mix (Rituxan) which would change the label to R-CHOP? The reason I ask is the the R...
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