A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

Search:

Type: Posts; User: JiminPdx

Page 1 of 2 1 2

Search: Search took 0.00 seconds.

  1. Replies
    37
    Views
    6,722

    (Mildly) interesting panel discussion about follicular lymphoma

    A panel discussion on future directions. Nothing earth shattering but interesting Enjoy
    ...
  2. Replies
    37
    Views
    6,722

    I work in a group of around 20 people. One ...

    I work in a group of around 20 people. One coworker has CLL, anotherís child had leukemia and a third personís spouse had a bone marrow transplant. Each of us has gotten a lot of support from...
  3. Good luck! Sending good vibes and virtual Zoka...

    Good luck! Sending good vibes and virtual Zoka french roast.
  4. Seconding Poís hard-earned wisdom: If this does...

    Seconding Poís hard-earned wisdom: If this does turn out to be a lymphoproliferative disorder, go to one of the NCI centers. Having been to two of them, they are not all created equal.

    At the...
  5. Hi Zeng I am sorry that you have developed...

    Hi Zeng

    I am sorry that you have developed NHL. Iím new here and I will defer any advice to the more experienced people. I just wanted to let you know that there is support out here for you. And...
  6. Replies
    7
    Views
    876

    Hi Ferry I sorry about your momís illness. I...

    Hi Ferry

    I sorry about your momís illness. I just want to second what the very wise folks above said. First, that you and your mom may be in shock from the news. Second, that your mom should get...
  7. Replies
    37
    Views
    6,722

    In keeping with the wisdom of PBL and Kermica

    Great article from NY Times on resilience in the face of cancer.

    https://www.nytimes.com/2019/08/31/world/asia/india-monsoon-rod-nordland.html
  8. Replies
    37
    Views
    6,722

    Your advice needed

    Hi all,

    Even though my PET scan was completely negative and Iím Stage 1, I have had persistent itching at night and it is getting worse. It might be the recently increased lamictal (for...
  9. Replies
    37
    Views
    6,722

    Today, I turned down radiation therapy to my...

    Today, I turned down radiation therapy to my infuinal area. It would have extended my progression free survival as long as 10 years, and possibly ďcuredď me, But the thought of worsening my...
  10. Replies
    32
    Views
    3,668

    Josh, check your friend requestsó just following...

    Josh, check your friend requestsó just following up on your post to me. I hope your anxiety is getting better. I know that sometimes as people come to the end of a difficult period ó like your...
  11. Replies
    37
    Views
    6,722

    Update: bone marrow is negative for lymphoma, and...

    Update: bone marrow is negative for lymphoma, and today, after several weeks, the Genetrails test ruled out MDS. ( which doctors thought I might have) I need to decide whether to get inguinal...
  12. Congratulations on the milestone! Hope your nose...

    Congratulations on the milestone! Hope your nose recovers soon.
  13. Replies
    37
    Views
    6,722

    Does anyone here know much about concurrent...

    Does anyone here know much about concurrent Myelodysplasia and FHNL? I know that chemotherapy can induce myelodysplasia years later, but Iím talking about concurrent initial diagnosis with both,...
  14. Replies
    11
    Views
    1,763

    Hi Marian. Iím sorry to hear about your...

    Hi Marian. Iím sorry to hear about your situation. Having support and being connected to others is so important. Was this specifically a bereavement group? If they wonít let you continue, are there...
  15. Replies
    146
    Views
    12,216

    Po18 is right. Go to a national center. I...

    Po18 is right. Go to a national center. I listened to him and will get my bone marrow biopsy thus week at OHSU. Their technique is more modern than at my regular hospital and they will do more...
  16. Replies
    37
    Views
    6,722

    Lymphedema advice?

    Hi folks. Iíve developed a lymphedema in the leg that underwent the lymph node biopsy. Did anyone else develop this complication? Curious to know if it went away, and if it has had any significant...
  17. Replies
    13
    Views
    2,407

    Have any bispecifics been tried in follicular...

    Have any bispecifics been tried in follicular lymphoma?
  18. Thread: Checking In

    by JiminPdx
    Replies
    3
    Views
    1,300

    Congratulations! And thank you for sharing your...

    Congratulations! And thank you for sharing your great news, and your great example about how new data and progress make for more optimism! Although I was not on this board when you were ill, Iím...
  19. Replies
    37
    Views
    6,722

    Good phase 1 results for new treatment strategy...

    Good phase 1 results for new treatment strategy from November 2018 New England Journal.

    This is promising news about a possible future state treatment. It concerns the use of a completely...
  20. Replies
    37
    Views
    6,722

    Good article on Rituxan

    Here is a link to a good, recent article about the history, biology, and uses of Rituxan. Thereís a section on FL midway through

    https://www.frontiersin.org/articles/10.3389/fonc.2018.00163/full...
  21. Replies
    37
    Views
    6,722

    GOOD NEWS TODAY: PET/CT I had my pet scan...

    GOOD NEWS TODAY: PET/CT

    I had my pet scan today. It was completely negative! No, they did rush me through a wee bit fast Ė Iím not sure that I actually sat for the full 60 minutes to let the...
  22. My itching is mild to moderate, but after my...

    My itching is mild to moderate, but after my Shingrix (zoster) vaccine in May, it was very bad for about a week. Since the whole point of the vaccine is to stimulate B cells, is there any risk of...
  23. Replies
    37
    Views
    6,722

    FUN AND GAMES IN THE ER! Honestly, I never knew...

    FUN AND GAMES IN THE ER! Honestly, I never knew that lymphoma could be so entertaining. Two days ago I started having trouble taking a deep breath and walking upstairs. Nothing severe but very...
  24. I realize this post is very old, but since people...

    I realize this post is very old, but since people will be drawn to it I wanted to add a little bit of information. Since I havenít started chemo yet, I havenít been reading about that specifically...
  25. Replies
    37
    Views
    6,722

    I spoke with my future oncologist today. She...

    I spoke with my future oncologist today. She ordered a pet scan which hopefully will be done next week so that we can have the results for our first visit.

    Iíve told a few friends and had the...
Results 1 to 25 of 34
Page 1 of 2 1 2