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Type: Posts; User: Brucecav

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    Thanks going to call my Oncologist of 2.5 years...

    Thanks going to call my Oncologist of 2.5 years tomorrow morning and ask his nurse about the 4 modules they discovered in my lung, naturally is has me concerned hope I do not have more elsewhere will...
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    abeucher, how is your husband doing hope good. I...

    abeucher, how is your husband doing hope good. I am still on Nilotinib almost 2.5 years now. I hope things are going good for you two. I found out yesterday I have 4 nodules in my one lung hope it is...
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    Well been awhile since I last checked in, took my...

    Well been awhile since I last checked in, took my grand kids to Disney World stayed at Shades of Green a Department of Defense resort on Disney property. Hope I gave the grand kids something to...
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    Update still taking the Nilotinib and anti...

    Update still taking the Nilotinib and anti rejection medicine, approaching my second birthday will be Feb 22, 2019. My cancer DR let us come south in our RV for 3 months this winter. So we are on the...
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    Today I was reading about the side effects of...

    Today I was reading about the side effects of Nilotinib think I have about 12 of them been taking it daily for around 18 months now. Noticed under common side effects it says, no blood pressure, no...
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    acute lymphoblastic leukemia Philadelphia...

    acute lymphoblastic leukemia Philadelphia Positive December 2016.
    BCR/ABL by PCR was negative for p210 and p190 assays, but was positive for rare e1-a3 variant My age is 69 years young

    HI all...
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    po18guy,was just telling my wife the retired RNC...

    po18guy,was just telling my wife the retired RNC she said the doctor does check for Leukemia cells every time but that part of the blood tests has to be sent to California so we never know the...
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    Yes been getting blood work done every month...

    Yes been getting blood work done every month however last time in June DR said I can now wait two months for blood work. Last time around June 8th blood work no signs of any Leukemia cells.

    The...
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    Abeucher how is your husband doing?

    Abeucher how is your husband doing?
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    Nilotinib - Tasigna Anyone else taking this

    Was wondering if anyone else has been taking Nilotinib - Tasigna ??

    Been experiencing what feels like bone pain again saw the last 3 weeks. Woke up at 3 am right hip, ribs and neck spine hurting....
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    Pete well said I am a Marine and now at 15 months...

    Pete well said I am a Marine and now at 15 months since my stem cell transplant and still inactive can say to all do not give up keep a positive attitude and keep telling yourself you can win this...
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    Sraab God Bless hang in there. Not sure where in...

    Sraab God Bless hang in there.
    Not sure where in the USA you live but I have a rare type of ALL Phil positive and rare type of chromosome type.

    I live in south central PA and was sent right away...
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    Sorry been awhile since I checked in, had my stem...

    Sorry been awhile since I checked in, had my stem cell transplant Feb 22, 2017 so been about 15 months now. Still taking my Nilotinib - Tasigna 400 MG every day my doctor said he MAY try and start to...
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    Been awhile since I checked in sorry, doctor...

    Been awhile since I checked in sorry, doctor still has me on the Nilotinib - Tasigna 400 MG X1 guess I will be staying on this for at least two years from my stem cell transplant. Well was on the...
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    Well just found my original post, had my one year...

    Well just found my original post, had my one year birthday Feb 22, 2018 and still around. Now April 8, 2018 and I am doing good. See my cancer doctor tomorrow will get more blood work done as usual...
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    Very sorry to here about your condition I hope it...

    Very sorry to here about your condition I hope it turns out for the best seems they are coming out with new treatments all the time. God Bless
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    Well I should have kept a record of all my...

    Well I should have kept a record of all my treatments but did not. My Acute ALL Phil + is on the presumptive list of diseases for exposure to Agent Orange and contaminated Camp Lejeune drinking...
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    Abeucher, have the exact kind of Leukemia as you...

    Abeucher, have the exact kind of Leukemia as you also Phil +, I am now almost at 12 months since my stem cell transplant Feb 22, 2017. I am 68 years young hope things work out ok sure is scary...
  19. Thread: Introduction

    by Brucecav
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    Welcome John glad you are recovering hang in...

    Welcome John glad you are recovering hang in there and I hope things keep going good.
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    I would not worry I have Phil+ ALL and does not...

    I would not worry I have Phil+ ALL and does not sound to me like you have Leukemia do not worry enjoy your family and Christmas. God Bless
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    Kinase Inhibitor Question

    I have Phil+ ALL I was taking Sprycel but had to stop taking it because it shut down my kidneys. So I was switched to Nilotinib. My question is these drugs block or inhibit the Leukemia so does this...
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    ALL Leukemia Hope

    Thought I did post here maybe not, at the beginning off Dec 2016 I was diagnosed with ALL Leukemia Philadelphia Positive. My bone marrow was 90% Leukemia cells and I was told I had 3 months to live...
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    Just checking in my ALL is still inactive going...

    Just checking in my ALL is still inactive going on around day 270 now. See my cancer DR again Dec 13th and Dec 15th get another chemo injection into my spinal fluid as the Nilotinib chemo pills do...
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    Happy Thanksgiving

    Just wanted to wish you all a very Happy Thanksgiving it is a very special day for us all as we are still here to celebrate this day with family. May God Bless you all each and everyone and your love...
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    Funny maybe our Leukemia was caused by our back...

    Funny maybe our Leukemia was caused by our back operations? I also have had two spinal cord surgeries they removed L4, L5 discs and after 10 years they had to go back in remove scare tissue and some...
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