A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

Search:

Type: Posts; User: johnr

Page 1 of 20 1 2 3 4

Search: Search took 0.01 seconds; generated 14 minute(s) ago.

  1. Replies
    2,499
    Views
    605,690

    Good to see your update and good to read its...

    Good to see your update and good to read its better than it could have been, focusing on that is the best way to progress and if and when it changes as always you will deal with it the, no point in...
  2. Hi and sorry you find the need to reach out for...

    Hi and sorry you find the need to reach out for help, as you will realise this is a quite section of the site and unfortunately the site is closing down at the end of December, can I suggest you...
  3. Replies
    37
    Views
    6,082

    Hi first have a look at this posted earlier in...

    Hi first have a look at this posted earlier in the week
    https://www.cancerforums.net/threads/57800-Bispecific-antibodies-rival-car-T-cells

    Next a haematologist will have a better understanding of...
  4. Replies
    3
    Views
    148

    Whilst all treatments are a gamble, not having to...

    Whilst all treatments are a gamble, not having to deal with the neuro toxicity is a big plus, with similar outcomes to CAR-T or slightly just behind depending on the type of lymphoma and the are...
  5. Replies
    37
    Views
    6,082

    Over the 10+ years I have been on various forums...

    Over the 10+ years I have been on various forums I have seen this happen with a number of people, some do get the all clear and then within weeks it returns and others never quite got to remission as...
  6. Replies
    37
    Views
    6,082

    Hi, whilst it sounds like his dlbc was never...

    Hi, whilst it sounds like his dlbc was never beaten, lets wait to see what the scan shows and that way you and he will know what he is facing.
    If it has returned then yes the are more treatment...
  7. Replies
    3
    Views
    148

    For those that may need it, that looks promising...

    For those that may need it, that looks promising and good to see options are still being developed that should be less toxic than CAR-T
  8. Hi and good to see another positive update, and...

    Hi and good to see another positive update, and more importantly you understand now how to deal with illness and to trust your doctor, hope college goes well and life is good to you.

    enjoy
    John
  9. Replies
    4
    Views
    321

    This is the FDA approval, as I am in the UK I can...

    This is the FDA approval, as I am in the UK I can only refer you to this so cannot answer question 2 and hope this answers Q1
    ...
  10. Replies
    2
    Views
    313

    have replied to you on the macmillan site John

    have replied to you on the macmillan site

    John
  11. Hi we all take allopurinol for the first month or...

    Hi we all take allopurinol for the first month or so to counter the gout issue, a bone marrow biopsy is a sample of the bone marrow so they can see if the is disease in the marrow or not, it means...
  12. Hi and welcome to the site though sorry you have...

    Hi and welcome to the site though sorry you have had to join us. I had dlbc stage 4b and finished treatment 10 years ago last month, so know this is treatable and for many they respond well and rchop...
  13. Replies
    2,499
    Views
    605,690

    Here is a report from ASH on liquid biopsy which...

    Here is a report from ASH on liquid biopsy which may tell if its transformed as it detects dlbc worth a read and a chat with the doctors

    https://ash.confex.com/ash/2019/webprogram/Paper131081.html
  14. Thread: New to this....

    by johnr
    Replies
    6
    Views
    450

    Hi Sam first read this paper it will help...

    Hi Sam first read this paper it will help http://www.livingwell-cancer-support.org.uk/docs/Peter%20Harvey%20-%20After%20the%20Treatment%20Finishes%20then%20What.pdf
    Like you I had stage 4 dlbc 10...
  15. Replies
    2,499
    Views
    605,690

    Hi, sorry to see your concerns have been...

    Hi, sorry to see your concerns have been confirmed, I wonder if genomic profiling would help so that they can be clear on the best next step given your history as you do seem to fall into the...
  16. Replies
    72
    Views
    39,973

    Now that's what I would call a great update, long...

    Now that's what I would call a great update, long may it continue and stay healthy

    John
  17. Replies
    2,499
    Views
    605,690

    Hi just read an article today from Stephen...

    Hi just read an article today from Stephen Shuster via Clinical Care Options - Clinical Thoughts where he discusses CAR-T treatment and shares a case where on of his patients had transformed FNHL and...
  18. Replies
    4
    Views
    289

    your right my error, and 34 is still young so...

    your right my error, and 34 is still young so take things a step at a time as I said earlier,
  19. Replies
    4
    Views
    289

    Hi and sorry you feel the need to post about your...

    Hi and sorry you feel the need to post about your worries, at 22 you would be very young to be getting a cancer diagnosis and the best advice any of us can offer is not to self diagnose and allow the...
  20. Replies
    2,499
    Views
    605,690

    Sorry to read that the SCT has not given you the...

    Sorry to read that the SCT has not given you the break we all hoped you would get, hope you get the answers you need quickly to allow decisions to be made in a considered way. It is still early days...
  21. Replies
    37
    Views
    6,082

    Hi his original treatment will have been RCHOP...

    Hi his original treatment will have been RCHOP and his new treatment could be on elf a number of regimes, all designed to do what they have done and that's get him into remission ready for a...
  22. Replies
    20
    Views
    864

    Yes Graham I am from the UK this site has users...

    Yes Graham I am from the UK this site has users from around the globe, and I read earlier you were trying to reverse your discharge so hence the comment about MIND and self referral, sometimes they...
  23. Replies
    20
    Views
    864

    Graham can I suggest you contact your local MIND...

    Graham can I suggest you contact your local MIND group and seek help for yourself, certainly in my area they take self referrals, do seek help as its the only way forward for you if you seek a...
  24. Thread: Car t

    by johnr
    Replies
    116
    Views
    14,381

    good to see another positive update, long may it...

    good to see another positive update, long may it last and fewer hospital visits must feel good
  25. Replies
    928
    Views
    287,096

    You must wonder sometimes surely not, why does it...

    You must wonder sometimes surely not, why does it aways happen to me,
Results 1 to 25 of 485
Page 1 of 20 1 2 3 4