A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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  1. Thread: not great MRI

    by Lboy
    Replies
    15
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    2,397

    Keep my fingers crossed

    Keep my fingers crossed
  2. Thread: Eight years

    by Lboy
    Replies
    4
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    1,933

    Amazing and inspiring.

    Amazing and inspiring.
  3. Thread: time in ICU

    by Lboy
    Replies
    2
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    2,381

    Be patient. It can take time to recover from a...

    Be patient. It can take time to recover from a disturbance to the brain. My wife's GBM tumour manifested itself as a haemorrhage which needed emergency surgery, and she did not speak for a week, then...
  4. Thread: Update

    by Lboy
    Replies
    5
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    2,428

    Visual migraines are very common and in...

    Visual migraines are very common and in themselves harmless. I get them sometimes and I haven't had a brain tumour - episodes of (painless) shimmering across the eyes, and literally seeing stars.
  5. Thread: intro

    by Lboy
    Replies
    9
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    3,353

    If you have not already done so, recommend: -...

    If you have not already done so, recommend:
    - Ben William's website https://virtualtrials.com/williams.cfm
    - the "Introduction to Brain Cancers" sticky thread at the top of this board.
    - this...
  6. Replies
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    3,754

    If Mum has survived this long without treatment,...

    If Mum has survived this long without treatment, then she would have withstood radiotherapy and chemo (temozolomide chemo is fairly mild) so this is scandalous. I suggest the following actions:
    -...
  7. Replies
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    2,997

    Results from the DC Vax vaccine seem very...

    Results from the DC Vax vaccine seem very promising

    http://www.bbc.co.uk/news/health-44288503
  8. Replies
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    3,086

    Here in the UK the publicity has been over the...

    Here in the UK the publicity has been over the death from a GBM of Tessa Jowell, a former government minister. Coincidentally or not the government has announced new funds for brain tumour research....
  9. Thread: Stroke

    by Lboy
    Replies
    6
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    3,493

    The first indication that my late wife had a...

    The first indication that my late wife had a brain tumour was when she had a stroke, a brain haemorrhage. Apparently the tumour had its own blood supply which "bled out".

    Ask the doctors if they...
  10. Replies
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    7,700

    Dex should be tapered off, not stopped abruptly,...

    Dex should be tapered off, not stopped abruptly, otherwise the body's natural steroids may not kick back in. Suggest to her doctors that she goes back on the dex and see if that stops the headaches,...
  11. If possible a GBM should be debulked by surgery,...

    If possible a GBM should be debulked by surgery, followed (whether surgery is possible or not) by radiotherapy and a chemo called temozolomide (Temodar/Temodal). Normally GBMs are not suitable for...
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    A doctor should be able to distinguish whether he...

    A doctor should be able to distinguish whether he has Parkinsons or not. If not, then the important thing is to see what sort of tumour he has, for which a biopsy is needed, and it seems as if...
  13. The bad news is she got an aggressive brain...

    The bad news is she got an aggressive brain tumour at a disgracefully young age. The good news is that the prognosis for young patients is better than for older people.

    For a grade 2 tumour...
  14. Thread: happy...

    by Lboy
    Replies
    17
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    3,571

    allysheedy, does she have the 1p/19q deletions?...

    allysheedy, does she have the 1p/19q deletions? Look on the bright side, she has an oligo, not an astro grade 3. That is a better place to be.
  15. Thread: happy...

    by Lboy
    Replies
    17
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    3,571

    My dancing days are long gone, but I will do a...

    My dancing days are long gone, but I will do a virtual jig for you.

    A former work colleague was diagnosed with an oligo in 2012, he has just died. He was only in his forties. Only a grade 2 to...
  16. Replies
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    2,678

    Not all men, thank you. I and my younger son...

    Not all men, thank you. I and my younger son looked after my wife during her illness - and no, we did not take a break and yes, it was exhausting.
  17. Replies
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    7,625

    He has performed one (possibly last) service for...

    He has performed one (possibly last) service for his country - the casting vote in the Senate rejecting the repeal of Obamacare.
  18. Replies
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    Here in the UK she got a palliative care package...

    Here in the UK she got a palliative care package at home under the NHS (yours truly putting gloves on the administer Temodal...) and when the end stage was clearly looming she stayed at home where...
  19. Not funding anti-nausea drugs while taking...

    Not funding anti-nausea drugs while taking Temodar seems crazy; if he vomits up the chemo, there is no point in taking it. They are a lot cheaper than Temodar.
    Here is a thread on useful...
  20. Replies
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    3,715

    So sorry. Bereavement is hard, especially at...

    So sorry. Bereavement is hard, especially at first, but one does get through it (speaking from experience)
  21. The good news is, that based on the limited info...

    The good news is, that based on the limited info available, including the preceding poster, the prognosis seems pretty good - a lot better than most of the brain tumours that we see here. Also a...
  22. Thread: Glioblastoma

    by Lboy
    Replies
    4
    Views
    2,501

    Sparkle, There is a guide to brain cancers in...

    Sparkle,

    There is a guide to brain cancers in the thread Introduction to Brain Cancers at the top of this board. Your boyfriend is doubtless getting the standard treatment, the "Stupp Protocol"...
  23. Thread: The End

    by Lboy
    Replies
    12
    Views
    4,244

    sorry she died from this cruel disease

    sorry she died from this cruel disease
  24. Thread: Dantrekker

    by Lboy
    Replies
    32
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    7,933

    If the fight continues, then let it flourish; if...

    If the fight continues, then let it flourish; if it ends, then let there be peace, comfort and acceptance
  25. Replies
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    I will repeat what I said to others: when my wife...

    I will repeat what I said to others: when my wife was close to the end, the hospice consultant doctor came round (my wife was at home, but under hospice care) and I asked if she was distressed, as...
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