A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.

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Type: Posts; User: AndreainArkansas

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    Meningioma

    We just found out I have another new lump--this time in the back of my brain. I've looked up info on meningiomas and found out most are benign but some are cancer. I'm looking for experiences both...
  2. I don't think you could have possibly done it any...

    I don't think you could have possibly done it any better than that. Hope is crucial even when doctors use the word terminal. People respond to things so differently.
  3. Does anyone have any advice? Telling children

    I'm trying to figure out how to word this. My kids may or may not have cancer. We usually have active periods of worry because with Cowden Syndrome there will be lumps and bumps. My kids are...
  4. Oh that first year is so hard :( Your mom sounds...

    Oh that first year is so hard :( Your mom sounds a lot like mine--she was a tough cookie. She only admitted things were serious when they found pulmonary embolisms on her lungs. That was at 7 pm...
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    This made me think of my experience with DCIS. ...

    This made me think of my experience with DCIS. While I had fibroadenoma tumors, there was nothing that screamed cancer expect for some white lines that were marked as calcifications in Fall 2007. ...
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    I think sometimes doctors focus on the rare stuff...

    I think sometimes doctors focus on the rare stuff so much because they are trying to write papers. When you do have something rare they like to show other doctors too. I have Cowden Syndrome and it...
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    What an incredible personality to write a poem...

    What an incredible personality to write a poem like that.
  8. Hi! I contacted St. Jude when she was 5 and we...

    Hi! I contacted St. Jude when she was 5 and we first found it. That's actually where I was treated for my dysgerminoma. They said if Arkansas Children's (where she goes) says they believe it is...
  9. Ways to cope with phantom breast pain

    I had DCIS (ductal carcinoma in situ) in Feb 2008 found during a precautionary double mastectomy (I have a rare genetic disorder called Cowden Syndrome that causes breast cancer 25-50% of the time)....
  10. Tumors that have changed after two years of being the same?

    I hesitate to ask this because I know I'm going to worry myself but I'm curious. My 7 1/2 year old daughter has a brain tumor. It is located on her corpus callosum. It was found when she was 5. ...
  11. I did in the past. I had chronic thyroidits with...

    I did in the past. I had chronic thyroidits with follicular adenomas. Lost half my thyroid gland in 1995 then the other half in 2001. In 2002, a piece of thyroid either wasn't fully removed the...
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    Another rare but possible one is Cowden Syndrome....

    Another rare but possible one is Cowden Syndrome. I've had ovarian and breast cancer..also tubular adenomas removed this summer. My genetic history provides no clue though because 1) my dad has had...
  13. About ovarian cancer, childhood cancer, breast cancer, my mom's colon cancer etc

    This is my blog. I didn't set out for it to be but so much of my life has been wrapped up in fighting cancer from age 9-35 1/2 and still going. I wanted to share it as I've had others say it has...
  14. My kids and I are always in active survelliance...

    My kids and I are always in active survelliance it seems. We have Cowden Syndrome. I've had ovarian cancer, breast cancer, and tubular adenomas (what turns to colon cancer). My 8 year old son...
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    I'm so sorry. The holidays are so...

    I'm so sorry. The holidays are so hard--especially the first year. I lost my mom two years ago...Thanksgiving Day 2010 was the last day I saw her as herself not in the hospital.
    I joined a grief...
  16. I know this is kind of an old post but I noticed...

    I know this is kind of an old post but I noticed it because I had BEP for dysgerminoma in 1992-1993. Cisplatin made me vomit ---a lot and I was often on fluids at home to help with constipation and...
  17. I had a part of my omentum removed with my first...

    I had a part of my omentum removed with my first ovarian surgery (1986). In September this year (2012) I had excruciating pain. A CT scan showed an omentum infarction which is a tear in it, I...
  18. Experiences with children--sedation for fine needle biopsy?

    We just found out my kids both have thyroid nodules. We have a rare genetic cancer syndrome called Cowden Disease and increased thyroid cancer is part of it SO I had an ultrasound done and BAM here...
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    This is a rather ancient post but I caught it by...

    This is a rather ancient post but I caught it by searching dysgerminoma. That's what I had also. I didn't have radiation but did have bleomyacin, cisplatin, and etiposide. My diagnosis was in 1986...
  20. I know it's been a while but if you are still...

    I know it's been a while but if you are still hanging around...
    I was diagnosed with dysgerminoma in 1986 at only 9 years old. I did relapse at 15 and had chemo. People assume having had that...
  21. Hi! I'm Andrea...35 and a triple cancer survivor.

    It all started when I was 9. Actually, I guess it started before I was born with Cowden Syndrome (a rare genetic mutation that brings about an increased cancer risk). In 1986 I was diagnosed with...
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