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Thread: Tamoxifen alternatives

  1. #1

    Tamoxifen alternatives

    I'm new to this. Have had recent surgery for removal of a Gr 2 hormone dependent (estrogen and progesterone) BC and tamoxifen has been recommended. I'm not all that keen on it given its side effects and potential long term side effects. Does anyone know of natural alternatives or good websites to check out regarding alternatives?

  2. #2
    Hi CC,
    If you are post menopausal, you can ask your onco about Arimidex. Everything we take, including tylenol have side affects listed. I had a 3% cance of getting leukemia from one of the chemo's I took, but that 3% chance vs. basically 100% chance the cancer was come back, wasn't a hard decision to make.
    I'd talk to your onco about your fears and go from there. A lot of the natural remedies also have side affects and what they are made from (the ones I've read about that ladies have talked about) like venom from a poisonous snake, mistletoe extract, which is nothing put poison etc.
    Good luck
    2/14/02 ILC 43 - 5.5 cm 9+/16 nodes
    Stage IIIA er/pr+ Her2-
    2/02 MRM
    FECx6 radsx33
    Tamoxifen - Arimidex (chemo induced menopause)
    4/03 SM w/bilat. recon.
    9/03 expanders removed
    5/04 repair reconst. disaster
    10/04 Actonel for bone/joint pain from Arimidex
    NED - 5 years
    3/07 Diabetes
    In memory of Kim 12/1/04

  3. #3
    Experienced User
    Join Date
    Nov 2004
    I've had no side effects from Tamoxifen, other than mild hot flashes a few times a day which truly are no big deal. And frankly, at 51, I was going to get them sooner or later anyway.

    I am afraid of a recurrence. Tamoxifen seems to be the way to go.

    Please, do not be terrified by all the scare stories of side effects. Many of us do just fine on it.

    As to the menopausal side effects, Dr. Susan Love has an audio webcast "Not your mother's menopause" which is extremely informative. Go to her website and look around for it. She discusses what to do for really bad hot flashes, etc.
    Age 50 at diagnosis, Stage IIIA
    IDC grade 1, DCIS grade 2
    LB Mastectomy, Expander Recon 3/3/2004
    Dose Dense Chemo completed 07/01/04
    Radiation completed 09/02/04
    Silicone Implant 11/22/04, removed 7/05 due to infection (dental cleaning), replaced 12/05. Reduction RB for symmetry 04/06
    Tamoxifen 10/04-10/06, Arimidex 10/06 on


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