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Thread: what do you think my next step should be, i have no where el

  1. #1
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    what do you think my next step should be, i have no where el

    hi there, i am 25 years of age and have been gettin all these symptoms lately. I have seen a neurologist and he seems to think there is no need for a ct scan, my symptoms are :-
    *pain behind my eyes
    *my right arm is weak, most of the day, worse at night
    *headaches( i never get them)
    *vision problems
    *feeling sick (especially in the morning and then on and off all day but reaaly strong feeling of going to be sick)
    Apart from these symptoms i am otherwise fine and these have come on over the last few weeks, my dr doesnt seem to think there is need for a ct scan either and has prescribed me anti depressants as he says it is all in my head. I know its not and me and my partner are very worried. Could we demand a ct scan off of the dr or....? Any help would be much appreciated. The dr and family tell me its anxiety but i think different.

  2. #2
    Administrator Top User brainman's Avatar
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    Hi trikky. I am sorry about your health concerns. Two of your symptoms are not that common for brain cancers: pain and headaches. Some have those but a vast majority do not. Feeling sick is a little more common but so many other things could be causing that so that it is a poor indicator of brain cancers. The other 2 (weakness on one side and vision problems) are somewhat more common. Certainly, those could be caused by a tumor of some kind. Brain tumors (benign or malignant) cause symptoms based on their specific location. For example, it the tumor is at the back of the person's head where visions are interpreted, their primary symptoms might be vision.

    This does not mean you don't have cancer just that it is sort of unlikely. It also does not mean that something as serious as a tumor is not causing your symptoms. Keep working with your medical team to try to identify what is wrong. Please, keep us informed.
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

  3. #3
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    thnx for the reply, erm, the weakness in my arm is like a dead arm on top and also my fingers tingle or should i say my hand, are these some of the symptoms you experienced or was it totally different for yourself. I have also noticed i am getting a lil clumsy with my typing and stuff. I have been looking for this place for such a long time, its just nice to talk to some1 who understands what i am going through, although it would be better if none of us had to talk about stuff like this in the first place. People dont realise how scary it is and just think it will never happen to me. I was one of those, even though im only 25 you dont expect it, i'm not saying i have been diagnosed but its pretty scary thinkin, none the less. I can not get into see my dr till monday 10th.

  4. #4
    Administrator Top User brainman's Avatar
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    I know how anxious you are to get an answer to this issue. The good news (if I can use that expression) is that cancer does not grow that fast. Waiting 5 days is hard but not too dangerous.
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

  5. #5
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    hi again, what about the symtoms with my arm, are they the same symptoms you recieved? Have you got any good questions i could be askin my gp, i have already told him my concerns but he doesnt believe me so i am goin monday to lay the law down shall we say. My mind is in 2 places at the minute and need answers but i suppose i'll not get them till monday earliest. Just seems a shame at my age, have diagnosed myself all ready so i am prepared for the worse case scenario. I have shed enough tears, but if the come back negative i suppose thats a bonus. But that might be the cause of my problems hey?

  6. #6
    Administrator Top User brainman's Avatar
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    No, we have totally different symptoms. I have mild seizures. That is the way with brain tumor... the symptoms are based on their size and specific location.

    I use "tumor" intentionally. A benign tumor can cause as many problems as a cancerous one. If it turns out you do have a tumor, you will still not know if it is cancer until they do a biopsy.

    As for questions, those will come naturally to you as you find out more. I encourage you NOT to diagnose yourself. Your symptoms me still not be caused be something more serious than a sinus infection. So, if I give you a list of the questions the I had, you might not have a need for them. I am not going to tell you not to worry; that would probably not work... just to not jump to conclusions but to continue to work on finding answers.

    You are very young to have a glioma (the most common type of primary brain cancers).
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

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    i dont think it is a primary friend, i think it is a secondary to lung cancer. I have been getting a few more symptoms in the last few days and have seen my gp today, he has booked me in for an mri but said it could take up to 6 weeks for the appointment to come through, a long time in my eyes even if i dont have it.

  8. #8
    Administrator Top User brainman's Avatar
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    Do you know that you have Lung Cancer? If so, posting to the Brain Cancer Forum will not get you the best answers. I can move it if you like.

    I can hear how upsetting this issue is causing you. When do you have your next appointment? If it turns out to be cancer, make sure you know exactly what type. You will not be able to know its Grade until a biopsy is done.

    Hang in there. I am still praying for you.
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

  9. #9
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    i dont know 100% its lung cancer but we know there is something there, we have talked bout it for a bit with my gp, he does not believe its cancerous in my lung but.... i'm just confused with everything thats going on around me but trying to keep a brave face for my family, there is only my girlfriend who knows the real truth of my pains and symptoms as well as you, my mum dad and brothers and sister dont believe me, my brothers, wife's mum has just been told there is nothing they can do for her as she has lung cancer and i dont say anything as i dont want to offend. It just hurts thinking that sometime in the near future i wont be around to see my lil girl grow up and her first day at school and stuff like that and im not going to be around for much lomger. Its a fearfull thing to be going through. It started about 8 week ago when i thought i was having a stroke, i had all the symptoms of a stroke and collapsed at home and was rushed to a an e where they said i had GERD, ever since then i have had these symptoms and its just killin me and i feel so awkward because people out there are really going through this and i dont know if i am or not until i have the test but I have strong feelings i have these with the symptoms i have been getting and they are getting worse. Its just not a very nice situation to be in and a situation no1 should have to endure. A cure for cancer is something i thought would have been available by now with todays advances in medical science but cancer wins the battle, people throw the word about so freely but dont really get the meaning. I was once like that but shall never be again, regardless of the outcome of these tests, i shall give cancer the respect it deserves and help people as myself needed help and advice off of people like yourself who took there own free time to try to answer the questions so many dare not ask their gps without finding out the facts first. THANKYOU.

  10. #10
    Administrator Top User brainman's Avatar
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    Trikky, I am not sure what GERD. I also hear you about the "cure" for cancer. Cancer is not like many other diseases that can truly be cured. We can only control it... in some cases quite effectively. Still, we can never let our guard down became of the real possibility that it will return.
    Jim
    Long-term cancer survivor
    1992 Astrocytoma grade 2, left motor strip
    2005 Recurrence this time said to be an Oligodendroglioma grade 3, same location.
    http://cancerforums.net/viewtopic.php?t=2405
    My Story Part 1: http://cancerforums.net/viewtopic.php?t=2528
    My Story Part 2: http://cancerforums.net/viewtopic.php?p=7350
    My Story Part 3: http://cancerforums.net/viewtopic.php?t=8029

 

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