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Thread: ulcerative colitis and colorectal cancer

  1. #1

    ulcerative colitis and colorectal cancer

    Hello everyone. First off, I want to say that your stories are truly inspiring. I have been going through a difficult situation for about 3 months now and my symptoms have completely diminished my life. I have a colonoscopy in a few weeks to confirm what my GI believes is ulcerative colitis. Because I am 25 the possibility of colorectal cancer is low but obviously that does not mean it can't happen. So, my question is has anyone here been diagnosed with ulcerative colitis that later turned into colorectal cancer or if anyone was misdiagnosed with uc and was actually cancer?
    I have been on numerous meds for the pain/bleeding/diarrhea and I have lost 30 lbs in about a month and a half. I also have anemia which I know could be due just to malnutrition. Also, my blood tests were really out of whack, numerous things were low/high. Again, could be due to the anemia. The dr. is treating me with meds as though I have ulcerative colitis but they are not helping. I will be symptom free for a week and the next week it all comes back. My insurance does not kick in until July 1st so that's why the wait on the colonoscopy. Sorry for sounding like a hypochondriac, I guess I'm just scared and can't help but think this is worse than just ulcerative colitis. Thank you to anyone who responds. - JR

  2. #2
    Super Moderator Top User sheila's Avatar
    Join Date
    Jul 2008
    bethel park pa
    first off sorry your so worried -I guess to answer your question can UC turn to cancer? I think anything can turn cancerous if not properly treated and since we are all capable of that cell mutation it can happen to anyone at any given time. U.C can be a hassel to you need to watch what you eat and take the proper meds for healing it. doesnt mean you have cancer, Im sure the test will give you an answer you can act on whether it is cancer-you probably are catching it in early stage if not your U.C is acting up and they may be able to prescribe something stronger or more effective than what you are taking now- if it is U.C ask to talk to a nutritionist to help with your food management If its cancer dont wait and fight it right away. hopefully its just a flareup. But it sounds like your at least on the right path to do whatever it is you need to do.- I pray for a solution to your problems -hang in there and keep us posted.
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    mar-11 return to original site-oxyplatin,5fu
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.

  3. #3
    Newbie New User
    Join Date
    Mar 2017
    I was treated for microscopic colitis for 5 yrs with medicines like entocort and just had colon surgery 5 weeks ago to remove a mass which he thought was diverticulitis came back cancerous. In your case I doubt us turns to cancer, I think after looking at all my reports ( which I just got all the copies of last Friday) that I never had colitis that it was this mass that was making me so sick. I can't stress enough that you get all your reports from when you were dx with UC and get a second opinion if you are worried...chances are you are fine

  4. #4
    Administrator Top User lisa1962's Avatar
    Join Date
    Jan 2013
    new york

    Please note this thread is almost seven years since the OP returned to the forum. In order to avoid confusion, I am closing this thread.



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