My father was diagnosed in December with Stage IV pancreatic cancer. He has had one round of the folfirinox treatment. Has anyone used this or know someone who has? Is it better than the gemcitabine? So far he has not had major side effects; some nausea and chills.
I also am curious about the Cancer Centers of America. My brother mentioned this to me and i'm not sure if it's legitimate. Can they REALLY cure pancreatic cancer?
I don't want to miss out on a cure, but it's my understanding there is no cure in the advanced stages.
Any insight would be so appreciated.
Hi mbs. I am so sorry about your father's advanced Pancreatic Cancer. I often tell people that Pancreatic Cancer has to be one of the worse cancers a person can have because of its impact on quality of life and because there are so few truly long term effective ways to treat it. Often, a chemo will work for a while but then stop and they need to change to a different one.... over and over.
The Cancer Centers of America do get a lot of national attention through their TV ads. But from what I have heard they do not offer anything more than a good cancer center does. The say they offer more hope to people. Well, that just depends of the medical team in the hospitals they are comparing themselves to. The most objective system of evaluating cancer center is found at US News and World Report. I hope you do not hear me putting done the CCA. As far as I know, they are good centers. I am just alerting you to the hipe factor
Thank you for that link! I had suspected and read similar things about the CCA. My father has a very kind medical team, and no bad side effects yet. So I think he's going to continue on this path. Thanks again for your response. I read your story; i hope all is going well for you.
Hi -- Can you tell me how your Dad is doing with the Folfirinox? My mother is scheduled to start it next week.
Did your father have any trouble getting insurance coverage for Folfirinox? My brother in law is newly diagnosed with pancreatic cancer and is being told that Medicare may not cover the Folfirinox treatment.
Originally Posted by mbs
From Recent Articles
Liz Szabo Gannett
7:25 PM, May. 13, 2011|
Although there is still no cure, a new drug
combination can help patients live months
longer than on standard therapy. And other
studies already under way may soon offer
patients even more options, researchers
Patients taking Folfirinox, a novel
combination of four drugs already
approved to fight other cancers, lived 11.1
months *— 4.3 months longer than those
given standard chemo, according to a
French study of 342 patients in today's
New England Journal of Medicine.
Although Folfirinox caused more serious
side effects than standard chemo, patients s
till rated their quality of life higher, Conroy
says. That may be because Folfirinox
prevented their tumors from causing
serious side effects, such as pain, loss of
appetite and weight loss.
Doctors are already changing their practice
based on the study, which was presented
at a medical meeting last year, says cancer
specialist Gauri Varadhachary of Houston's
M.D. Anderson Cancer Center, who wasn't
involved in the new study.
"I see it becoming the
standard of care. I see patients requesting
Others caution that the new drug regimen
isn't for everyone with pancreatic cancer.
Patients in the study were under age 76
and especially healthy, says cancer
specialist Nilofer Azad, from Baltimore's
Johns Hopkins Kimmel Cancer Center, who
wasn't involved in the new study.
But Azad notes that doctors are testing
other drug combinations to treat pancreatic
cancer. She's hopeful that these
combinations will work as well or better
than Folfirinox, with fewer serious side
Folfirinox "is going to be one of a host of
options" for patients, Azad says.
DOB Sept. 1947. Prostate cancer Gleason 7 (3+4), PSA 5 in Oct 2010. Cryoablation Jan. 2011. Had some complications.
Experienced nocturia, irritable bladder summer 2011. "Agent Orange"compensation from VA Oct 2011.
PSA: .05 01/26/2012, .06 6/26/2012, .04 12/24/2012, .04 6/26/13, .05 1/27/14, .05 10/21/14, .04 10/15
I am eating vegan mostly plus a little fish. Take some supplements.
(Any advice given is the personal opinion of a layman and is not intended to replace the advice of a health professional.)
Medicare coverage of Folfirinox
I have had 19 treatments of Gemcidibine in the last 12 months for stage 3 PC. The drug is no longer effective. My oncologist is recommending Folfirinox. I am concerned about Medicare/Insurance coveage too. I had one treatment with Folfox but don't yet have any results. If you have any input as to Medicare coverage it would be appreciated.
Originally Posted by Ginnyn
My dad was diagnosed with stage 4 pacreatic cancer a couple weeks ago, and other than the initial clotting issues he is feeling pretty good. My dad is starting on fulfironx on Wednesday, there have been some recent changes to where medicare is more likely to approve it. I am wondering what to expect, he had a couple rounds of gemzar and tolerated that fairly well, but I here the folfirinox is much harsher. We got a second opinion at the Seattle cancer care alliance, a nationaly recognized cancer center, and the doctor there recommended exactly what our local oncologist had arrange for, so that made us feel more confident in moving forward with treatment.
Medicare (our medicare advantage plan) is denying coverage for my husband. Our doctor is very frustrated and we are seeking info on how to fight this. The doctor has had good results in his stage 4 PC patients and thinks my husband is a good candidate. We especially need the increased quality of life as he is suffering greatly right now. He was on a clinical trial but was recently removed due to increase in size of lesions in his liver. He currently is not receiving any treatment except pain meds that are are not working for him. We would appreciate any info as to how to break through the red tape.
I'm sorry to hear that this is an issue with Medicare. I found this article from the NCI -- National Cancer Institute and they say that many oncologists are increasingly adopting this regimen. http://www.cancer.gov/ncicancerbulletin/051711/page2
This has been through Phase III trials, but it was done by France, even though these positive results were published in the May 2011 edition of the New England Journal of Medicine.
It's best to have your oncologist's office find other doctor's who are getting this approved by Medicare to see how it is being written up and coded. We found it's all about how you do this as to whether something is approved or not. It IS being covered by private insurance companies across the board, so I hope they will consent if this has become a fairly common regimen.
I wish you the best of luck!
Husband diagnosed with NSCLC Stage IV in 3/2005. Fought & lived over 2 1/2 years with multiple lines of treatment.
Post describing our journey: http://cancerforums.net/viewtopic.ph...er=asc&start=0
Left my embrace to live with our Heavenly Father in October of 2007 and now breathes with ease forever. I will miss this gentle, giving soul with the easy smile for the rest of my days, but have faith we will be together again. He's just getting a little break from me!