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Thread: AML Survivor 25 years post BMT

  1. #1
    Newbie New User
    Join Date
    Jun 2011

    Thumbs up AML Survivor 25 years post BMT

    I am a Acute Myloid Leukemia survivor since 1986 (25 years). I had a BMT (Bone Marrow Transplant that same year - donated from my sister).
    I will try and answer your questions concerning AML and BMT's.

  2. #2
    Administrator Top User ChemoMan's Avatar
    Join Date
    Jun 2008
    Blog Entries
    Hi AML 1986

    Congrats on your cure, at 25 years it definitely qualifies as a cure. Stick around, I am sure your presence here will give hope to many people.

    Age 62
    Diffuse Large B cell Lymphoma
    Stage 2a Bulky presentation
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof

    Still alive in 2019 !

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  3. #3
    This is great to hear. I had ALL; that was fixed but turned into MDS, a strange pre-cancerous abnormality in the chromosome chain. They say that it will likely turn into AML without a transplant. We do now have a match and I go back into UCSF next month for the transplant. Your post is very encouraging. Thanks for the support....and congratulations.
    Chuck was diagnosed with A.L.L. in Nov, 2009 at age 61,
    Remission, July 2010, Diagnosed with MDS in Jan. 2011
    Stem cell transplant in July, 2011, Just passed day 130 post Tplant.
    Cancer might rob you of that blissful ignorance that once
    led you to believe that tomorrow stretched forever.
    In exchange you are granted the vision to see each today
    as precious, a gift to be used wisely and richly. (UCSF 11 Long)

  4. #4
    Newbie New User
    Join Date
    Feb 2012
    Hello AML1986,

    Congrats on your cure! Could you please give me some details on BMT. My mother is diagnosed with AML and She is above 60. She lives in India. I am trying to gather more details to keep her for some more years. Any details will be very much appreciated.


  5. #5
    Newbie New User
    Join Date
    Feb 2012
    Congrats on your 25 years, i am a newbie here and have a question. I was recently diagnosed with AML and did the first round of treatment of chemo. I am now at home waiting to go for consolidation therapy for 1 week worth of chemo. My question is that they have me going to talk to a trasplant group to consider that an option, did you go the transplant route or just go with chemo?

    Dx 01/18/12


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