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Thread: Unable to follow cancer diet with current doctor

  1. #1
    Newbie New User
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    Unable to follow cancer diet with current doctor

    Hello my mother was diagnosed with cancer 2 months ago. She had 2 chemos 1 month ago. The tumors did not shrink much so she will have 4 more chemos. She is trying to have a diet full of vegetables and fruits. Specifically the Patrick Quillin diet. She got a blood clot when the chemos was applied so she got a presctiption for that. The doctor said to stay away from vitamin C an green vegetables because of the medicine for the clot. What suggestions are there for people that want to have a diet approach but also use chemo? I live in Massachusetts may be someone knows drs here that work also with nutrition.
    Last edited by joeharth; 08-30-2011 at 04:59 PM.

  2. #2
    Administrator Top User Kermica's Avatar
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    Hi joeharth and I am sorry to hear of your mother's illness. Most people hear belive, to one degree or another, that while diet can play an important role in whether you get cancer or not it is less effective in influencing an outcome once one is diagnosed. It still important to eat healthy foods, of course, but no single dietary element will make all the difference.

    That said, I would suggest that you contact the case manager for your mom's case in your doctor's office for input. They may also have a registered dietician whom they work with when treating active disease. It is a reasonable question to ask and all reasonable questions (and many less reasonable ones) should be asked when in the middle of this fight. Good luck to you and your Mom.

    Good health,

    kermica
    When the world says, "Give up," Hope whispers, "Try it one more time."
    ~Author Unknown

    Age 67
    Follicular lymphoma diagnosed August 08, Stage 1
    2 cycles (20 treatments each) localized radiation to tumor sites. Remission confirmed July 09
    Restaged to Stage 3 May 2010
    Recurrence confirmed May 2010 - Watch and Wait commenced - multiple scans with minimal progression.
    Cutaneous Squamous Cell Carcinoma diagnosed September 2012. Mohs surgical excision 09/2012. Successful, clean edges all around.
    Significant progression detected in PET scan - December 2012
    Biopsy to check for transformation 1/18/2013 - negative for that but full of lymphoma, of course.
    July 2013 - Rescan due to progression shows one tumor (among many) very suspect for transformation, another biopsy 8/12/13.
    August 2013 - No evidence of transformation, 6 courses of B+R commence 8/29 due to "extensive, systemic disease".
    February 2014 - Diagnostic PET scan states: Negative PET scan. Previous noted hypermetabolic cervical, axillary, iliac and inguinal lymphadenopathy has resolved. Doctor confirms full remission.
    June 2014 - started 2 year maintenance Rituxan, 1 infusion every 3 months. Doctor confirms lump under right arm are "suspicious" for recurrent disease, deferring scans for now.
    February 2015 - Doc and I agreed to stop R maintenance as it is depressing my immune system too much.
    June 2015 - Confirm that the beast is back by physical exam, will scan in August after esophageal issues settle down so we can get a clear view.
    August 2015 - physical exam in error, PET/CT shows no evidence of disease. Remission continues well into second year!
    December 2015 - Cardiologist tells me I have plaque buildup growing at an alarming rate. Stent or bypass down the road but not yet...
    March 2016 - new tumor below the jaw so remission is over. Back to active surveillance until treatment is needed.
    June 2016 - C/T scan indicates presence of multiple lesions in iliac chain.
    August 2016 - PET/CT shows multiple areas of lymphoma as expected plus new areas of concern in bowel.
    January 2017 - C/T scan shows significant progression in cervical and inguinal lymph chains, largest tumor is impacting hearing, measures 2.1x4.6 cm. 4 to 8 cycles of R-CVP, 1x3weeks to commence 2/6/17.
    April 2017 - Mid treatment scan shows about 1/3 reduction in multiple tumors. Also shows abdominal aortic aneurysm with peripheral thrombus. Cardiologist changed meds, spoke of need for surgical repair down the road.
    September 2017 - finished 10 rounds of R-CP, V was stopped due to neuropathy in feet. No further treatment planned at this time, at least 10 tumors can be felt which seem to be growing again.
    December 2017 - Biopsy of external iliac node with SUV of 13.1 shows no transformation! However, the FL grade is now 3A instead of Gr 1-2. Will start indefinite protocol using Copanlisib, one of the new targeted therapies. I remain hopeful.
    March 2018 - Copanlisib failed, treatment stopped 3/28. New plan is to go to Dana Farber on 4/16 for case review and treatment recommendation.

    May 2018 - did not qualify for clinical trials at Dana Farber. Tumors need to get larger to be considered. On consultation w/Dr. Armand at DF and my onc, have decided to take a break from cancer treatments. Will have a biopsy of the mass in my sinus discovered in scan at DF and to get the aneurysm repaired as it has developed a potentially catastrophic penetrating ulcer. Surgery scheduled for 7/12.

    September 2018 - biopsy of mass in nose shows transformed DLBCL throughout. Assessing options for this negative development.

    October 2018 - started 6 to 8 cycles of R-CHOP. Goal is to get to full remission to open up other options.

    February/March 2019 - PET shows four hot spots following R-CHOP. referred to Dana Farber for stem cell transplant. Pre testing all good, accepted for Auto Transplant. Will begin inpatient process about April 1.

  3. #3
    I think..... if your mother is being given Coumadin for treatment of the blood clots you must go on a low vitamin K diet. That along with a couple other reasons is why we chose to do shots of Arixtra. There is no monitoring or diet restrictions with that drug. It is pricey, but when done thru a mail order prescription company it is the price of any other prescription. It's hard enough to eat when going through chemo without being told you can't eat certain things. Hope she finds something that fits the diet and sounds good, gotta stay strong!
    Spouse/Caregiver of 56 yr old male
    Diagnosed Primary CNS Lymphoma 2/2011
    HDMTX Chemo- 8 cycles
    HDMTX Maintenance Chemo- 11 cycles
    Complications: clots, kidney issues, slow clearance of
    chemo, dermatitis
    11/2013 Recurring clots in lungs/legs
    Scan 12-27-13 all clear
    Scan 3-13 all clear
    Next scan in October, done and all clear!
    Went early for scanxiety in Aug 2014, all clear!
    Scan Feb 2015, all clear!

  4. #4
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    Thanks that is very usefull. Hopefully she will get a prescription for the other drug today.

  5. #5
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    What about Dabigatran ? anyone using this medicine? is this a replacement that can be used with chemo also?

  6. #6
    Top User pbj11's Avatar
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    Hi again Joe,

    Just wanted to say I'm sorry your Mom developed clots. We have a few here who have been down that road. Lung cancer puts her at higher risk for blood clots. I hope they've talked to her about appropriate ways she should sit and taking breaks to walk around on long drives.

    I don't know a thing about the medications, except my son being on heparin for a short run after knee surgery. I'm sure they are monitoring her blood for the appropriate levels of whatever blood thinners they are using.

    As for diet? No diet is going to make or break whatever the outcome is of her cancer. If all these diets really worked, and some have been around for many decades, they would be the talk of the town. I do believe that somewhere down the line they will find some type of connection with diet, but I've seen all people who strictly followed diets and swallowed supplements go down just as fast as those who ate what they felt like and enjoyed their time. Sorry for being blunt, but most here don't hold to anything other than a cancer patient eating a normal, well balanced diet. We just had a poster in here who was giving his father coffee enema's from some plan that is hyped. We about had conniption fits.

    If your mother desires to pursue a specific plan, she should work through a naturopath or nutrionist in conjunction with her oncologist. Anything that is promoting things of high anti-oxidant value are not good to be eating during specific windows of time, dependent on the type of chemo she is taking. Anti-oxidants are known to undercut the effects of chemo. Chemo is her friend.

    I hope you get the balance worked out so she doesn't have problems with the blood thinners. Maintaining weight is paramount in this fight.

    God bless,
    PBJ
    Husband diagnosed with NSCLC Stage IV in 3/2005. Fought & lived over 2 1/2 years with multiple lines of treatment.

    Post describing our journey: http://cancerforums.net/viewtopic.ph...er=asc&start=0

    Left my embrace to live with our Heavenly Father in October of 2007 and now breathes with ease forever. I will miss this gentle, giving soul with the easy smile for the rest of my days, but have faith we will be together again. He's just getting a little break from me!

  7. #7
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    There is a great deal of scientific information available that antioxidants can actually be beneficial when taken in conjunction with radiation and some chemotherapies. Of course it's best to always check with your own doctors but we have to admit not ALL doctors are fully informed and some do have their own personal biases so it's best we all be as personally informed as possible.

    http://www.ncbi.nlm.nih.gov/pubmed/17283738

    http://www.cancercenter.com/cancer-center-news/606.cfm

    ""Antioxidants such as retinoids, vitamin E, vitamin C and carotenoids inhibit the growth of cancer cells. These antioxidants individually, and in combination, enhance the effects of chemotherapeutic agents. Antioxidants individually protect normal cells against some of the toxicities produced by these therapeutic agents. Therefore, the fear of oncologists and radiation therapists that these antioxidants may protect cancer cells against free radicals that are generated by these agents is unfounded. "
    SOURCE: (with links to many more scientific trial results) http://jeffreydach.com/2008/12/09/vi...y-dach-md.aspx

  8. #8
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    I have little experience with working in an oncology ward but I want to put my two cents

    like another poster said there is no proof that elimination diet is good ... in fact it is not recommended
    all cancer patients should stick to a healthy normal diet


    may I ask why your mother's doctor told her to avoid vitamin C for the blood clot medicine ?? what I know with warfarin one should moniter the vitamin K intake but not vitamin C ?


    wishing her good health

  9. #9
    Administrator Top User Didee's Avatar
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    Please be aware that this thread is over a year old so your question may not be answered.
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016

 

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