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Thread: New in TN

  1. #651
    Senior User
    Join Date
    Oct 2011
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    Tn
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    460
    I am sick!!! I have been fighting the flu for almost 2 weeks. I missed one day of work and hugged my recliner the rest of the time. Well I finally decided to miss work again and go see my family doctor. I had a few days mixed in where I was feeling better but would only get to feeling bad again. The moral is I think my immune system is really weak right now and I am catching everything I come in contact with. I might take a few weeks off and play hermit and work in my greenhouses. I know it is cold and flu season and hope everyone else here is able to avoid catching something.

    Having a cold is only half of the problem right now, I have had spells of Diarrhea twice lasting 3-4 days each time during the last two weeks. You talk about a good cough suppressant. It sure changes the whole idea of being afraid to cough of sneeze.

  2. #652
    Administrator Top User Kermica's Avatar
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    New York
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    Bank, I'm sorry to hear that you are under the weather and hope you fel better soon.

    You should go see your doctor, my friend. Two weeks sick is about a week longer than we should try to tough things out, in my opinion. The upside is that what you are dealing with does not sound related to lymphoma in any way. Key question - did you get a flu shot this season? It is really important for us since we do have weakened immune systems that we take preventive measures against bugs whenever they are available to us.

    Again, I hope you are on the mend and feeling better soon!

    Good health,

    kermica

  3. #653
    Top User
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    Mar 2010
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    durham UK
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    Bank, sorry to hear you are feeling under the weather, if its the same bug that is effecting many in the UK then it does linger for several weeks and has an evil streak when it cons you to thinking things are improving, only to hit you again. Sadly, one that just has to be worked through.

    Hope you feel better soon

    john
    NHL DLBC aggressive stage 4B advanced
    diagnosed april 09
    after 8 rchop and a couple of delays, in remission
    some long term side effects to manage post treatment
    some blips and investigations on the journey but now
    22nd oct 2014 discharged no more hospital visits


    we are all on a roller coaster ride, riding blind never knowing where the highs and lows are.

  4. #654
    Administrator Top User ChemoMan's Avatar
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    Jun 2008
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    South Australia
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    Bank I agree with Kermica... go and see a doctor.

    Be wary of your Greenhouse...they harbor dangerous mold species quite capable of causing fatal disease in immune compromised individuals. In fact your "flu" may be caused by mold in which case it is doubly important to see a doctor

    Below is a link to a very good resource on mold disease specifically for the US:

    http://www.thoracic.org/patients/pat...ng-disease.pdf

    Good luck
    Age 60
    Diffuse Large B cell Lymphoma
    Stage 2a
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  5. #655
    Senior User
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    Oct 2011
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    Tn
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    Went to see my General Practitioner. Got some meds. Hopefully I will be better in a few days. Hugging the couch most of the day today. I had to go check on some of our goats. We had new babies born yesterday and 3 more are expecting now. I am gonna post some pics in the lounge.
    Age 52
    Follicular Non-hodgkins lymphoma Stage 2 on 10-28-2011
    Upgraded to Low grade follicular non-hodgkins lymphoma Stage IV on 11-11-11.
    Cancer in lymph nodes found in neck, back of abdomen, between both lungs and cancer cells found in bone marrow test.
    Prescribed Treanda and Rituxan, 4 months. To start 11-28-2011.
    Remission 2-17-2012
    Rituxan treatments start 4-25-2012, once every two months for two years
    Learning as I go.

  6. #656
    Senior User
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    Sep 2016
    Location
    Colorado
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    272
    Hi Bank,

    Hope you feel better soon!! Where is the lounge? Wanting to see some baby goat pictures!
    Researcher, advocate, and caregiver to my son, age 24
    July 2016, Diagnosed with Systemic ALCL ALK-neg, DUSP-neg, stage IV, IPI 2, PIT 1, normal LDH, normal B2 microglobulin
    Sept 2016, Third round of E-CHOP complete; PET scan NED
    Nov 2016, Sixth and final round of E-CHOP completed - Continued to live alone and work two jobs through chemo!
    Dec 2016, PET scan NED
    March 2017, Experiencing symptoms: cough and stomach issues. Found two small lumps in neck
    March 2017, CT scan shows relapse. Confirmed by PET
    April 2017, CD-30 confirmed with biopsy; Begin Brentuximab for at least three cycles
    May 2017, Biopsy came back with new diagnosis: Classical Hodgkin's! Likely misdiagnosed initially (by three different pathologists)
    June 2017, Only partial remission with Brentuximab
    July, 2017, ICE x 2 (worst yet). Awaiting PET-CT scan.

  7. #657
    Top User
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    Mar 2010
    Location
    durham UK
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    801
    Quote Originally Posted by VMarie View Post
    Where is the lounge? Wanting to see some baby goat pictures!
    click on forum see top left, and scroll down to the bottom of the page and you will see it
    NHL DLBC aggressive stage 4B advanced
    diagnosed april 09
    after 8 rchop and a couple of delays, in remission
    some long term side effects to manage post treatment
    some blips and investigations on the journey but now
    22nd oct 2014 discharged no more hospital visits


    we are all on a roller coaster ride, riding blind never knowing where the highs and lows are.

  8. #658
    Senior User
    Join Date
    Oct 2011
    Location
    Tn
    Posts
    460
    Posted more baby goat pictures today. We have 7 now, expecting about that many more between now and spring.
    Age 52
    Follicular Non-hodgkins lymphoma Stage 2 on 10-28-2011
    Upgraded to Low grade follicular non-hodgkins lymphoma Stage IV on 11-11-11.
    Cancer in lymph nodes found in neck, back of abdomen, between both lungs and cancer cells found in bone marrow test.
    Prescribed Treanda and Rituxan, 4 months. To start 11-28-2011.
    Remission 2-17-2012
    Rituxan treatments start 4-25-2012, once every two months for two years
    Learning as I go.

  9. #659
    Senior User
    Join Date
    Oct 2011
    Location
    Tn
    Posts
    460
    Big news, grandbaby #8 was born April 7th. It is a girl. Grandbaby #9 should be here within 2-3 weeks. We are blessed. Sorry I have not been around the forum lately. We are busy with family, work and our business. I guess to say I have too many irons in the fire would be an understatement. Hope your all well.
    Age 52
    Follicular Non-hodgkins lymphoma Stage 2 on 10-28-2011
    Upgraded to Low grade follicular non-hodgkins lymphoma Stage IV on 11-11-11.
    Cancer in lymph nodes found in neck, back of abdomen, between both lungs and cancer cells found in bone marrow test.
    Prescribed Treanda and Rituxan, 4 months. To start 11-28-2011.
    Remission 2-17-2012
    Rituxan treatments start 4-25-2012, once every two months for two years
    Learning as I go.

  10. #660
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Location
    Pacific NW, USA
    Posts
    7,660
    What blessings, indeed! Being busy with life is a perfect reason to be away from the forums! It does the heart good to hear your good news. And, I am using a certain, custom-made walking stick as we speak - for which I remain very grateful.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TREC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) Myelodysplastic Syndrome (MDS), a bone marrow cancer.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measureable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin GvHD arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    To date: 18 chemotherapeutic drugs in 9 regimens (4 of them at least twice), 5 salvage regimens, 3 clinical trials, 4 post-transplant immuno-suppressant drugs, the equivalent of 1,000 years of background radiation from scanning from 45+ CT series scans and about 24 PET scans.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow aspiration/biopsy reveals 2% cells with 20q Deletion, a form of Myelodysplastic Syndrome, yet a different form than in 2015. Active surveillance is the course of choice. Two sub-types of lymphoid malignancies and two of myeloid malignancy lend a certain symmetry to the journey.

    Believing in the redemptive value of suffering makes all the difference.

 

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