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Thread: alternative treatments for Cholangiocarcinoma (bile duct cancer)

  1. #1
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    Jan 2012

    alternative treatments for Cholangiocarcinoma (bile duct cancer)

    My mother was diagnosed two months ago with cholangiocarcinoma (bile duct cancer) with several tumors in her left liver lobe. The doctors gave her just days a few days to live because they good not put stents in her liver for the free flow of bile which was trapped in her liver. Then we went to this Greek hospital and the doctors managed to put the stents. Doctors say that any kind of treatment won't save her life. It might make her live longer. Perhaps the doctors are right but I do not want to let her die without doing anything so I have been searching the web for alternative cancer treatment and I have been reading books on cancer. I know that there is a lot fo misinformation and deception. That's why I joined this forum. I was hoping that people could give me some accurate information
    Firs.t I found this Gerson Institure and they have accepted my mother's application but I do not know if it works. Has anybody any experience with it?
    Second, I have read about this IPT therapy which is kind of chemiotherapy but with less side effects. Can anybody recommend me a doctor who practices it in Europe?
    Third, I have read that a possible solution for cholangiocarcinoma is liver transplant from a living donor and I could give up to 70 percent of my liver to my mother to save her. Does anybody know any hospital in Europe which can do this?
    Finally, has anybody tried any alternative treatment that has worked? I want people who have tried it to answer this question, please
    I hope I get answers

  2. #2
    Administrator Top User Didee's Avatar
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    Jun 2010
    NSW Australia
    I am so sorry to read about your mother's diagnosis
    I have no knowledge about IPT therapy so I can not comment.

    Unfortunately alternatives do not work. These people prey on the desperation of people.
    IF you find any scientific studies that prove effectiveness please post them for us all.
    This forum does not support the use of alternatives instead of proven medical treatments, depending on the cancer of surgery, chemotherapy, radiation etc.

    If you wish to play with your mother's life, spend lots of money with these then by all means do them but they will not help.

    I am so very sorry about her prognosis. Don't you think that any of us diagnosed or caring for those with cancer would have done these if they were proved to work?

    My advice is to spend as much time as you can with her, talk about memories, allow her to talk about what is important to her and at the time, give her your OK to go and that you will be all right.

    My mother died 2 years ago. I like you would have wanted to try anything to keep her with me but I had to accept that she had to go.


    Last edited by Didee; 01-08-2012 at 02:09 AM.
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016

  3. #3
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    Nov 2009
    Quote Originally Posted by MAR View Post
    I found this Gerson Institure and they have accepted my mother's application but I do not know if it works.
    Realistically, no. In fact the "Gersen Method" (which includes a lot of coffee enemas) can do more harm than good.

    Second, I have read about this IPT therapy which is kind of chemiotherapy but with less side effects.
    No, it's a complementary treatment used WITH chemo which supposedly helps it work better. Unfortunately, it's unproven to do anything. More info here:


    Third, I have read that a possible solution for cholangiocarcinoma is liver transplant from a living donor and I could give up to 70 percent of my liver to my mother to save her. Does anybody know any hospital in Europe which can do this?
    Sorry, I don't. But that is not what is generally referred to as "alternative" treatment, FYI. It is true that the liver regenerates so it might be possible that this could be an option to try.

    Finally, has anybody tried any alternative treatment that has worked?
    I'm sorry but even if someone comes along here and says "yes this or that worked," you have no way of knowing if they're sincere or are saying that just to try and get you to try something they make money off of.

    I'm so sorry for what you're dealing with. My suggestion would be to not just assume the doctors who said it's hopeless are correct. GET A SECOND OPINION. Maybe even a third. It might be treatable with surgery, chemo and/or radiation.

    Then and only then, if you have definitely exhausted all proven methods to help her, I don't blame you for reaching for something else...I'm just saying be very careful about "alternative" methods. Extremely few have been proven to do much of anything, despite many wild claims.

    PS this appears to be a good general site with general info about this cancer:


    I wish you and her the very best!
    Last edited by Joe7; 01-08-2012 at 01:54 AM.

  4. #4
    Experienced User
    Join Date
    Oct 2009
    Dear Mar
    I can only imagine how frightened and helpless you must be feeling because of the prognosis your mother has been given.
    I understand this forum does not believe in or approve of alternative cancer treatment protocols but I hope in this dire situation they will allow my message. My medical doctor recommends curcumin as part of the alternative protocols he uses when treating his cancer patients. Please do a search..... using the words PubMed and then put the words Cholangiocarcinoma/curcumin in the PubMed search box. Curcumin / Tumeric are spices and are available in capsule form at most pharmacies and health food stores. When this was recommended to me in 2004 as part of my treatment for non Hodgkin's I have done a good deal of research on it's efficacy. If you would like to have links to the research I have done, please send me a private message.
    List of trials http://www.science.gov/scigov/result...7C_%7CRANK%7C0
    Stay hopeful.....

  5. #5
    Top User
    Join Date
    Nov 2009
    Curcumin has shown some effectiveness in trials and labs. It is clearly no cure-all, but worth trying. No harm can come of it that I have ever read about at least.

  6. #6
    Newbie Regular User
    Join Date
    May 2013
    I agree trying healing foods
    As well as standard treatment
    I believe on Turmic and ginger and onions
    Garlic and dandelion weed tea
    You gotta eat anyway
    I make a curry beef with tons of vegetables
    And have it three times a week
    Cinnomin twice a day
    Less meatarianism (Meat only three times a week )
    Use the spice rack every meal
    Drink and eat dandelions And all vegetables
    No white flour
    The whiter the flour the sooner your dead

    Still your case sounds like its a mechanical problem
    And needs a mechanical fix (surgery )

  7. #7
    Newbie New User
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    Jul 2015
    Hello Mar, My girlfriend has stage 4 cholangiocarcinoma with mets to the liver and lungs. Sorry for reaching out so long after you posted. It's July, 2015. I was wondering how you made out with your mom's care? Thanks, Pete

  8. #8
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Pacific NW, USA

    A resource to check on alternative treatments and quackery.

    We often never hear back on these old threads. We also do not advocate "alternative" treatments, i.e. alternatives to science-based medicine. For those who hear about miracles cures, etc, please look up the various methods as www.quackwatch.org/
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TREC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measureable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial of drug KD025, a ROCK2 inhibitor that is believed to help with chronic GvHD.
    To date: 18 chemotherapeutic drugs in 9 regimens (4 of them at least twice), 5 salvage regimens, 3 clinical trials, 4 post-transplant immuno-suppressant drugs, the equivalent of 1,000 years of background radiation from scanning from 45+ CT series scans and about 24 PET scans. Two lymphoid malignancies plus a myeloid malignancy lend a certain symmetry to the journey.

    Believing in the redemptive value of suffering makes all the difference.


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