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Thread: U.S. Clinical Trials

  1. #1
    Administrator Top User Kermica's Avatar
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    U.S. Clinical Trials

    Hi everyone, if you are in need of a search tool for seeking a clinical trial in the U.S., the following are worth your time:

    http://www.cancer.gov/clinicaltrials

    http://clinicaltrials.gov/ (this one is actually a worldwide database)

    http://www.cancer.org/treatment/trea...tching-service

    Good luck and good health to all,

    kermica
    Last edited by Kermica; 01-08-2012 at 02:32 PM.
    When the world says, "Give up," Hope whispers, "Try it one more time."
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  2. #2
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    Thanks Kermica. I wish I'd had this from the start when we started looking.

    PS to anyone from what I gather, any U.S. trial at least I have heard is supposed to be registered at clinicaltrials.gov, but it is poorly designed - prepare for what may be a labor-intensive effort - !

  3. #3
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    Does old clinical trials matter here? I was in Dr. kaplan's clinical trials with the Linear Accelerator for Hodgkins at Stanford University in 1970 when I was 21. I was stage 1A. I am now 63, RCA opening stented in 2005 (found "accidentally") and Aortic Valve Replacement in April 2011 at USC with Dr. Starnes, Surgeon.
    Have never met anyone this far out from treatment, even online, yet. I am VERY FAR OUT from treatment, most get my symptoms 20-25 yrs earlier.... Am 42 years out now. Michelle

  4. #4
    Administrator Top User ChemoMan's Avatar
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    Quote Originally Posted by Michellemar View Post
    Does old clinical trials matter here? I was in Dr. kaplan's clinical trials with the Linear Accelerator for Hodgkins at Stanford University in 1970 when I was 21. I was stage 1A. I am now 63, RCA opening stented in 2005 (found "accidentally") and Aortic Valve Replacement in April 2011 at USC with Dr. Starnes, Surgeon.
    Have never met anyone this far out from treatment, even online, yet. I am VERY FAR OUT from treatment, most get my symptoms 20-25 yrs earlier.... Am 42 years out now. Michelle
    Hi michellemar
    This thread is for current trials for the benefit of those among us who may need the help Its alright no harm done with your post.

    Cheers
    Last edited by ChemoMan; 10-29-2012 at 10:56 AM.
    Age 60
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    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

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  5. #5
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    For those dealing with leukemia or lymphoma, The Leukemia and Lymphoma Society has a *free* clinical trial help service. They will provide you with a personalized listing of clinical trials specific to your situation. Could save a lot of time and aggravation!
    https://www.lls.org/treatment/types-...linical-trials
    Researcher, advocate, and caregiver to my son, age 24
    July 2016, Diagnosed with Systemic ALCL ALK-neg, DUSP-neg, stage IV, IPI 2, PIT 1, normal LDH, normal B2 microglobulin
    Sept 2016, Third round of E-CHOP complete;; PET scan NED
    Nov 2016, Sixth and final round of E-CHOP completed
    Primary side effects: Some mucositis and constipation, but this resolved early on. Fatigue. Thrush after chemo resolved with Nystatin. Depression (also an issue before cancer diagnosis).
    Continued to live alone and work two jobs through chemo!
    Dec 2016, PET scan NED
    March 2017, Experiencing symptoms: cough and stomach issues. Found two small lumps in neck
    March 2017, CT scan shows relapse. Confirmed by PET
    April 2017, CD-30 confirmed with biopsy; Begin Brentuximab for at least three cycles
    May 2017, Biopsy came back with new diagnosis: Classical Hodgkin's! Likely misdiagnosed initially (by three different pathologists).

 

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