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Thread: What to make of what's going on?

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  1. #1
    Newbie New User
    Join Date
    Jun 2011
    New Jersey

    What to make of what's going on?

    My mom was diagnosed in May and seemed to be doing well. It had spread to liver and lungs but both of those show almost no cancer now after several rounds of chemo. However, the cancer in her pancreas grew. The doctor always assures us how good she's doing and all I was concerned about was the cancer. However, this week she has had loose bowels, more troulbe eating, is barely getting out of bed and lost six pounds (down to 110). Today she told me she was very thirsty. Also, she told me it was just from laying down but she sounded kind of raspy.

    I called her doctor on Friday and he told me to call on Monday morning and he'll look at all her labs/etc. and decide what we should do. She only saw the NP on Friday as he was at the hospital and I had to miss the appt. because I've missed days of work due to my mother in law being in the ICU in critical condition with sepsis.

    I all of a sudden realize that she may not die from the cancer after all but just from what its doing to her. Does this imply something dire is going to happen soon? Do they have means to get her nutrition if she can't eat or can't keep it down?

    Thanks to anyone who can shed any light on all of this.


  2. #2
    Super Moderator Top User sheila's Avatar
    Join Date
    Jul 2008
    bethel park pa
    dKitten- I dont know anything about pancreatic cancer, but weve been dealing with colon liver and now stomach. at one point in time mom couldnt keep any foodsown and diahrea so she became very dehydrated. not a good situation- but yes they can rehydrate with saline and they cangive her what they call PTN-parental nutrition -mom got it through a picc line in her arm.
    she was on it for about a month -mostly they do that in the hospital . If they are able to be out of the hospital environment then they suggest a nursing unit or or this could be done at home- someone has to help her. mom had it about a month in the meantime she tried to eat and soon was able to get control of that -then the nutrition was no-longer needed.
    You can ask the doctor about it. I dont know your moms total situation and if it may or may not be necessary for her. If she isnt consuming water and just laying around sleeping and feeling very weak-she definately needs to get to a hospital.
    sorry aboutyourM-I-L hope thy can clear her problems up too.
    The raspy happens to my mom with different treatments- thats the chemo. I wouldnt worry about that too much.
    just make sure in the meantime she is keeping well hydrated or worst case scenario- her organs can shut down on her- I know this for a fact -almost happened to mom a few times. so Moday when you discuss this report to him how weak she is or what she is consuming. He should let you know from there what to do.
    hope she picks up soon ask if she can take immodium- if shes on it already ask him if he can prescribe her lomotil-also get her to eat things from the BRAT diet bannanas ,white rice only, applesauce and toast(plain) no jelly white rice works the best for mom. to control the diahrea. keep us posted and hope she did a bit better through the weekend.
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    mar-11 return to original site-oxyplatin,5fu
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.


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