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Thread: Can't Bite

  1. #1
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    Exclamation Can't Bite

    My son can't bite down. He says it makes his mouth hurt- I said the entire jaw/mouth area kinda burns.

    I am struggling to find different things for him to eat without chewing..

    He's only had one round of chemo (started Tuesday) and is on Prednisone... If the entire 10 weeks is like this, I don't know what I'm going to do!!

  2. #2
    Is your son on any antibiotics?

    I was put on powerful antibiotics and my mouth reacted terribly to it, the exact same as you described in your thread, so painful that I stopped taking my antibiotics, I could not eat for days, even drinking water stung/burnt my mouth, and any sort of jaw movement.

    I would put this down to a reaction from medication.

  3. #3
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    Well, he's on Bactrim- but only Saturdays and Sundays- so his first time taking it was yesterday and the mouth pain started before Saturday.

    He can drink and eat soft stuff- just nothing he can chew so he's eating grits, oatmeal, scrambled eggs, soup, etc.
    I hope it doesn't worsen. I'm going to take him to the clinic asap per the on-call physician at the cancer center.

  4. #4
    I'm glad you're taking him in to have it looked at. It's easy to get infections in the mouth during chemotherapy. I was told to be sure to run any mouth problems past the oncologist first, and not to see the dentist during chemo without getting approval from the oncologist first. I hope they'll be able to stop this quickly - it's miserable to have tooth pain!
    Diagnosed with stage 2c papillary serous cystadenoma borderline malignancy of the ovary in 2009. Hysterectomy, omenectomy, appendectomy, debulking.
    - 2010 - laparoscopy showed inoperable recurrence, so started chemo.
    - Frontline chemo - carboplatin and cyclophosphamide, six cycles
    - Additional chemo regimens: Avastin - ten cycles; Weekly Topotecan - 4 cycles.
    - Spring 2012 developed pleural nodules. Topotecan plus Avastin - 1year.
    - April, 2014, had surgery to remove Aspergillus infection from right lung.
    - September, 2015, started on Megace because my tumors are PR positive. Stopped Megace after three months.
    - September, 2016, hospitalized for shortness of breath and back pain.
    - September, 2016, respiratory failure reversed with prednisone. Maintaining on 50 mg Prednisone per day and supplemental O2.
    - October, 2016 left hospital with no supplemental oxygen. Feeling great! Will start tapering off the prednisone Oct. 10.

  5. #5
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    The pain seems to have resided- so I'm just going to have him looked at Thursday ...

  6. #6
    How old is he and what type of cancer does he have? Is the pain in his mouth, his teeth or his jaw? Where is he getting treatment and what does your oncologist say?
    Quote Originally Posted by JsMom View Post
    My son can't bite down. He says it makes his mouth hurt- I said the entire jaw/mouth area kinda burns.

    I am struggling to find different things for him to eat without chewing..

    He's only had one round of chemo (started Tuesday) and is on Prednisone... If the entire 10 weeks is like this, I don't know what I'm going to do!!

  7. #7
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    They said it was the chemo that caused the jaw pain- but it goes away after a couple of days so I have Loratab for that and soft things to eat for days directly following. After a couple of days, he's fine.

  8. #8
    Jsmom- good to hear the pain is under control and you got your answer as to why this happened . thanks for the update hope he soon is able to eat things he likes.
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    oxyplatin,5fu
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    oxyplatin,transfusion.
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    april10-remission-avistan
    oct-10-erbitux,camptosar
    Jan-11-5fu
    mar-11 return to original site-oxyplatin,5fu
    Aug-11-erbitux,camptosar.
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb16-transfusion
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.

 

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