A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Results 1 to 5 of 5

Thread: sum1 plz help me????

  1. #1

    sum1 plz help me????

    Hi im 22yrs old with a 19month old daughter and im 9 weeks pregnant, my mum is 43 and 3 days ago was diagnosed with bowel cancer and advanced secondary liver cancer! The hospital said that they can remove the tumor from my mums bowel, but the secondary liver cancer is inoperpable as it has peppered the whole liver. But they are going to start her on chemo once a fortnight for six months. Does anyone know the life exspectancy for this pleases i really need to know will she be here to see my second child born. someone plz help!

  2. #2
    Regular User
    Join Date
    Oct 2005
    Posts
    14
    I am no expert on the subject, but I can relate what happened with my mother-in-law.

    First, it depends on how advaced the liver cancer is. My mother-in-law had secondary liver cancer but it had also spread other places too.

    From my personal experience, by the time she was told it had spread to her liver, she wasn't feeling well already and there was very little time between being told and her passing away. Keep in mind however, that everyone is different and it is all relative to the individual. I wish I had some better news, but I can only relate to my own personal experience

  3. #3
    Thank you very much for your reply, im really not sure whats happening the doctors are now saying they are not going to do the operation to remove it from her bowel, because they want to start her on chemo straight away. As it is advanced and is fast growing and they dont want it to spread past the liver. The only illness my mother has is the anemia which is due to the bleeding tumor in her bowel she has no other symptons. The doctors havent told us how long she has got only that it is uncurable, i really dont know what to think.

  4. #4
    Newbie New User
    Join Date
    May 2017
    Posts
    1

    Bowel cancer spread to liver

    I'm in the same situation with my dad, he had emergency surgery last year to remove a bleeding tumour from his bowel that was causing him to have blood transfusions because of anaemia, during his scan the surgeons said they were happy they got it all out of the bowel that they could see but it had spread to his liver, he was started on chemo straight away then after another scan was told that it was peppered through his liver and inoperable so giving him chemo to basically keep the pain (he's not in any) and the spread under control, i want my mam to ask the doctor if i get tested, and my brother is willing to get tested also, if we're a match would they take out the entire liver from my dad and transplant part of mine or my brothers but all my parents keep hearing in their heads is 'it's inoperable so there's no point the doctor knows best' it's driving me mad
    Quote Originally Posted by bhunt691 View Post
    Thank you very much for your reply, im really not sure whats happening the doctors are now saying they are not going to do the operation to remove it from her bowel, because they want to start her on chemo straight away. As it is advanced and is fast growing and they dont want it to spread past the liver. The only illness my mother has is the anemia which is due to the bleeding tumor in her bowel she has no other symptons. The doctors havent told us how long she has got only that it is uncurable, i really dont know what to think.

  5. #5
    Super Moderator Top User po18guy's Avatar
    Join Date
    Feb 2012
    Posts
    10,310
    There are far to many variables to give an estimate. Her overall health, the location, number of tumors, their sensitivity to chemo, their aggressiveness, etc. etc. etc. all make a difference, as does her will to fight. Statistics are meaningless, as there are those who expire very quickly and others who live out a nearly normal life span. Statistics and prognoses apply only to aggregate populations and never to any individual. I began in 2008 with a poor prognosis. That dropped to extremely poor in early 2009. It dropped twice again, and there is not a word to describe what little chance I had of survival.

    Just enjoy every moment you have with her - remembering that perfectly healthy people die suddenly each day in accidents. No warning at all.
    05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
    10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
    11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.

    To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
    Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.

    Believing in the redemptive value of suffering makes all the difference.

 

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •