A website to provide support for people who have or have had any type of cancer, for their caregivers and for their family members.
Results 1 to 2 of 2

Thread: Gbm4

  1. #1
    Newbie New User
    Join Date
    Apr 2012


    Hello All!

    My husband, Bob (66 years old), was diagnosed in September with GBMIV. Had surgery to remove the tumor from his left temporal lobe. Nobody could believe Bob was sick, except for the shaved head and bandage on the side of his head.
    He began his six week course of radiation and Temodar. He continued to feel pretty good for the first 3 weeks. He would go play golf afterwards, go on hikes, and walk the dogs. He was just a spectacle of good health.
    On the 4th week, Bob started feeling more run down, got a bad taste in his mouth (which he still has) and feeling a bit achy. He started taking more naps than usual. When he was done with his course of radiation, he was tired, but still fought back with his positive attitude and love of life. He continued with his favorite projects and we went on lots of day trips.
    Bob is about to begin his 4th round of Temodar. He is close to his 7 month mark from the time of his diagnosis. He is a happier man, more graciuos. He wants to be with family all the time. He continues with his projects.
    However, he is more tired and starting to be more forgetful. He sometimes has trouble getting out words. He feels cool to the touch, which concerns me and I will bring up with our oncologist next week. He is also scheduled for his bi-monthly MRI and I pray that it will be clear once again.
    I would love to hear from others about their journey with GBMIV, especially the caregivers.
    Thank you and Blessings.

  2. #2
    Administrator Top User Didee's Avatar
    Join Date
    Jun 2010
    NSW Australia
    Hi. Welcome to the forums. I am sorry to read about your husband's diagnosis.
    I see that you have posted in the Brain Cancer board. Lots of informed supportive people there and you will be in good hands.
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016


Similar Threads

  1. stupid gbm4...my mum!
    By aliceinoz in forum Brain Tumors Forum
    Replies: 39
    Last Post: 11-16-2011, 09:12 PM
  2. My Partner has a GBM4
    By Midnight Rambler in forum Brain Tumors Forum
    Replies: 2
    Last Post: 08-12-2011, 09:56 PM
  3. Mom has GBM4, they say it's inoperable
    By celluloidheros in forum Brain Tumors Forum
    Replies: 7
    Last Post: 11-30-2007, 01:12 AM
  4. Mom has GBM4, they say it's inoperable
    By celluloidheros in forum Brain Tumors Forum
    Replies: 19
    Last Post: 10-09-2007, 02:10 PM
  5. My mum has GBM4 and has refused treatment
    By amanda77 in forum Brain Tumors Forum
    Replies: 3
    Last Post: 09-27-2007, 12:08 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts