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Thread: My Chemo Diary

  1. #11

    As I mentioned, I was in the hospital bed for four days after the bowel resection until i could get off the iv pain meds and onto oral meds. 23 staples in the gut and such they don't want you moving around too much the first couple days. After that I was in bed/chair at home for three or four days before I started moving around semi normally, although it's important to start walking as soon as it's tolerable. Took awhile for bowel movements to get back to normal, and weeks later i still have a little strain on urination but it is getting better. Although I'm not going through as much treatment as you for sure.

    Chemo Diary 4/27 - yesterday (first day after getting the pump off from first treatment) I got really tired in the afternoon. Ended up going to bed about 8 pm and sleeping through the night. The tingling seems to come and go, I'm actually sipping an iced latte this morning (very carefully) and it is sooooooooo good! Had a few small stomach cramps this morning also but they didn't last long after i started moving around. I'm actually in the office today

    Also - started putting lotion on the medi-port. The soreness is gone but the skin is stretched tight over the thing so trying to loosen it up a bit. One of the toughest parts so far seems to be the fact that, because of all the symptoms, even the small ones, there is always something reminding you of what you are going through.

  2. #12
    Experienced User
    Join Date
    Jan 2012
    Hi there, I too have just started Folfox on Friday. Had it removed yesterday. So far no real worries apart from the cold and feeling a bit tired today. I will be having this for 6 months every 2 weeks. I am looking forward to comparing our results. Anna.

  3. #13
    Hi Anna!

    Chemo Diary 5/1 - Had my follow up with the doctor yesterday - five days after removing pump from first treatment. Told her about the cold tingles (which subsided) and the fatigue (also subsided two days after pump removal). She said all normal, and that if all goes to plan over the 12 treatments the symptoms should not get worse, but just might last a day or so longer as we go along, so that sounds promising if that's turns out to be the case. Only other thing right now is that the passed couple days I have had frequent gas that keeps me checking into the bathroom a lot.

    Enjoy the day!

  4. #14
    Experienced User
    Join Date
    Jan 2012
    Dennis, let's just hope that all this is worthwhile and fries the beast!!!! so that we can enjoy our lives!!

  5. #15
    Newbie New User
    Join Date
    Apr 2012
    Hi Dennis, my mum is in a very similar position to you. She was diagnosed with Stage 3 rectal cancer last Dec, had 5 weeks of chemo-radio and the surgery on the 2nd Apr. The chemo started on the 30th Apr. So far no major side effects, she is tired in general but it's managable. We look forward to hearing your experience.

  6. #16
    Chemo Diary - May 5th - for the past three or four days I have felt pretty back to normal and it has been great! So, tomorrow is my 2nd treatment and we will start the cycle over again and see how it goes. The nurse told me it would go like this- she said just about the time you feel all better, it will be time for the next treatment. Will keep you updated on treatment number 2 as the week goes by!

    - Dennis

  7. #17
    Newbie New User
    Join Date
    May 2012
    Hello Dennis,

    I'm in almost the same place as you. I will have my second chemo treatment on Monday, May 7th. I also have a pump that runs for 46 hours.

    My symptoms.....an odd thing in the back of my throat when I drank something cold, jaws hurting on first bite of each meal or even a piece of gum subsided in a few days but nausea lingered for a week. I'm feeling good right now.

  8. #18
    Dennis- I too think its a good idea-I wish you susccess with your treatments. so far everything your saying has been the case with mom- only she infortunately had to have all IV treatments with a picc line they could not get her body to accept the port.
    stay away from cold- mom described the sensation as if she were drinking shrds of glass- but then again she seems to react more sensitively then some of the others on here. wear gloves when going in and out of your freezer and keep even your meals (not only the drinks) at room temp when possible. If your mouth becomes so sensitive that bread and crackers hurt try useing flour tortillas in place of them for whatever such as sandwhichs.. its softer and doesnt dig at the gums as much. when mom developed mouth sores she found chewing very small bites with the front teeth easier doesnt look so appealing to the onlooker but hey...whatever works just to get it down.
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    mar-11 return to original site-oxyplatin,5fu
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.

  9. #19
    Experienced User
    Join Date
    Jan 2012
    Hi Dennis, just checking in re my treatment. Feeling good today. Do you have to use the toilet more frequently? That and the nausea is probably the only worry at the moment. I start my second cycle on Thursday 10 May so I will be interested to see if other problems come up. From reading the posts it sound like a few of us are all starting our cycles at about the same time which will be good to compare. Anna

  10. #20
    The cold sensitivity and neuropathy will get worse with time. At least you are getting your treatments in warmer weather. My treatments were during the winter. The only bad thing about getting oxaliplatin in the summer is that you won't be able to drink anything cold. By the 5th or 6th treatment it is likely that the oncologist will begin to reduce the dose of the oxaliplatin. My oncologist told me that he has never had a patient to get all 12 treatments of FOLFOX at full dosage.
    May 1988 acute lymphoblastic leukemia (2 yrs chemo & radiation)
    Sept 2009 papillary thyroid cancer (thyroid removal & radioactive iodine)
    Sept 2009 colon cancer stage IIIC (removal of sigmoid colon & resection)
    Oct 2009-May 2010 FOLFOX6
    July 2010 stage IV colon cancer, irinotecan & avastin
    Dec 2010-July 2011 avastin maintenance
    Sept 2011 tumor removal involving small bowel resections
    Nov 2011-April 2012 resume irinotecan
    May 29 2012 begin radiation treatments 15 total
    current age: 28


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