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Thread: My Chemo Diary

  1. #291
    Regular User breray80's Avatar
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    Ok guys, this may seem like alot, my husband is about 5'10 200lbs at the time he was doing this so maybe too much for some, the results were night and day for him, if he didnt take these it would come back....but now he is neuropathy free 100% and its been a year and a half.

    Acetyl L-Carnitine: 4 pills
    L-Arginine: 4 pills
    Calcium: 3 pills
    Vit D: 3 pills
    Vit E: 3 pills
    St Johns Wort: 3 pills
    B-12: 2 pills
    vit C: 2 pills
    B complex: 1 pill
    B-2: 1 pill
    Probiotic: 1 pill
    Biotin: 1 pill
    Beta-Carotene: 1 pill

    Morning:
    1 each ALC, LA, Calcium, D, E, SJW, Probiotic, BC, C, B-12

    Noon:
    2 each ALC, LA
    1 each Calcium, D, E, SJW, Beta-Carotene, Biotin, B-2

    Evening:
    1 each ALC, LA, Calcium, D, E, SJW, B-12, C

    these are all over the counter dosages, nothing crazy hope this helps you guys


    Glad to hear things are getting better Dennis, My husband is still looking, had a bunch of interview lately so fingers crossed



    Quote Originally Posted by dennper View Post
    Hi Breray -

    Thank you so much, I'm glad my diary effort was able to help, and I'm very glad to hear how well your husband is doing! Please do come back with the details on the supplements your hubbie took for the neuropathy, as it affects sooooo many of us chemo junkies and so little is ever said about treating it from the doctors.

    Oh, and I'm now gainfully employed again, just had my physical, and have my follow ups with the cancer clinic scheduled so we are back on track!

    Thanks again!

    Dennis
    Husband with stage 3 colon cancer
    May 9th right colon reduction
    May21st Port
    May30th Chemo starts

  2. #292
    Senior User naturehd's Avatar
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    im gonna get mama to try that vitamin cocktail a try, ty breray80. not sure if it will be effective since she is doing a diff chemo regime for a diff cancer but it cant hurt yo. dennper thanks for this thread man it does help others as if you don't already know lol
    april / 2013 pop passes away on mama's birthday
    march / 2013 mama has a colon resection due to benign tumor
    august / 2013 mama goes jaundice, has a stent put in bile duct, diagnosed with 2b tumor on the ampulla of vater stage 2
    september / 2013 mama has wipple procedure
    december / 2013 mama has a port put in for future chemo
    january / 2014 scans show no cancer with benign cyst on liver and kidney
    january /2014 gemzar - tarceva chemo treatment begins
    may / 2014 scans show cancer spread to liver stage 4
    may / 2014 abraxane replaces tarceva as palliative treatment
    october / 2014 xoleda replaces gemzar - abraxane treatment
    november / 2014 mama goes to heaven
    cancer sucks

  3. #293
    Senior User dennper's Avatar
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    Mead, CO
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    Just found out a friend has cancer and it made me think about all of the wonderful support I got from the folks in this forum.
    I can never thank you enough.
    Be well, my friends.

    Dennis

  4. #294
    Super Moderator Top User sheila's Avatar
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    Jul 2008
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    bethel park pa
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    6,679
    Hi Den- glad your still doing well thanks for stopping by.
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    oxyplatin,5fu
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    oxyplatin,transfusion.
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    april10-remission-avistan
    oct-10-erbitux,camptosar
    Jan-11-5fu
    mar-11 return to original site-oxyplatin,5fu
    Aug-11-erbitux,camptosar.
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb16-transfusion
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.

  5. #295
    Top User Doug K's Avatar
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    Dennis,

    I was diagnosed with a 5cm rectal tumor Aug. 23, 2013. In October-November I had chemo and radiation. The tumor was gone, but it continued to be unclear as to whether it had permeated the rectal wall, thus I had a LAR surgery in January this year. Follow up chemo was six infusions over 12 weeks, February-April. I am fortunate to be able to say at this time, I am cancer free.

    I am writing here to let you know that I discovered your blog in February and in one very long night read all 250+ entries. It was very instructive and very helpful for me at that time. We had similar experiences in many ways. I too, have neuropathy in my feet and to some degree in my finger tips. My feet are serious at this point. Seems to me to have begun after treatment. (I did have the fingertip aversion to cold during treatment.)

    Mostly, I want you to know that you have helped many more people than those who have commented on your blog. I hope you will continue to log in every few months or so. Thanks again.

    doug

    Quote Originally Posted by dennper View Post
    Just found out a friend has cancer and it made me think about all of the wonderful support I got from the folks in this forum.
    I can never thank you enough.
    Be well, my friends.

    Dennis
    Last edited by Doug K; 12-17-2014 at 07:32 PM.

  6. #296
    Senior User dennper's Avatar
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    Hi Doug,

    Thank you for the kind words. Here's an update. I went for my yearly colonoscopy and they found 11 polyps, all benign. But since I am producing so many so fast my doctor wants me to have genetics testing for polyposis. I am currently between insurance policies so it will be just a while, but I'll let you know what they find out. He also is now recommending a colonoscopy every six months. Not a bad diagnosis so long as I keep up with it.

    On another note, my neuropathy hasn't diminished any further and it has been over two years. When I mentioned this to my doctor he kind of flippantly said well then I guess it's not going away. This really leads me to believe they very much downplayed the possibility of it being permanent, likely so as not to discourage me from taking the chemo. I can understand that, but think some straighter facts would have been in order. Either way what's done is done and it is a small price to pay, as well as being a constant reminder of what I went through.

    I hope everyone is safe and in good spirits.

    Dennis

  7. #297
    Top User
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    Lake Jackson, Texas
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    Dennis, so happy to see your update. I am sorry that your neuropathy hasn't diminished any further, but as you said it could be considered a small price to pay for your life. Do keep us updated when the tests are done. Wishing you all the best.

    Amanda
    Caregiver to son, 32 , 5/18/2011 Stage IV
    Sigmoid colectomy , liver biopsy 5/18/2011
    6cm sigmoid tumor, low grade (well-to-mod. differentiated)
    6 of 33 lymph nodes +
    FOLFOX /Avastin 6/2011-8/2011
    Rt hepatectomy on 9/20/2011---70%
    2012
    FOLFOX /Avastin 4 cycles 1/31 stopped-low platelets
    3/5 CT clear
    4/ PET scan showed peritoneal mets
    4/24 splenic embolization for low platelets
    FOLFIRI/ Avastin 5/12-8/12
    Consult for HIPEC 8/12 denied---tumors too many, possibly in ureter.
    5FU/ Avastin 8/2012-2/2013
    12/5/12 scan tumors stable
    12/12 aranespt
    2013
    3/5 tumor progression in abdomin
    Restart FOLFIRI/ Avastin with lower dose of Irinotecan 3/11-3/25
    nuelasta shots
    ER - bowel obstruction 4/4
    Port removed 4/12
    Port replaced 5/9
    ER 30 hrs
    Erbitux in, Irinotecan lowered 5/20 & 6/17
    9/17scan indicates stable
    9/18-27 & 10/7-11 small bowel obst.
    Erbitux & Irinotecan 11/5, 12/2
    Bowel obst. 12/31
    2014
    1/8 urether stent
    1/17 Hospice
    3/27 started his heavenly journey

  8. #298
    Top User Doug K's Avatar
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    Dennis, Thanks for posting how things are going for you. I just had a three month blood work up done and all is good according to the hematologist. CEA is continuing a downward trend... to 0.6 from 0.9 the last six months. I too, continue with the neuropathy in my feet. My finger tips seem some better (cold weather doesn't help). I wrestle with the LARSyndrome with my stool, but as you have said, it pales in comparison to what my outcome could have been. So, all things are continuing to look good. Remember to come back once and awhile and give these great updates.

    doug
    MyJourney:
    August 2004 Colonoscopy Clear
    June-July 2013 Abdominal Discomfort Upper Abdomen X-ray, UltraSound, CTScan all clear
    August 23, 2013 Diagnosed 5cm tumor on rectum wall: adenocarcinoma @age 66
    August-Sept2013 Met with Surgeon,Hematologist and Radiation oncologist
    Oct.-Nov.: Xeloda concurrent with radiation: 25 doses
    November CTScan, MRI and surgeon scoped: Tumor gone, scar tissue
    Jan.6, 2014 Surgery LAR: Rectum removed, sphincter remains: Pathology: no lymph node,
    Tumor downgraded from Possible T3 to T2.
    Feb. - April Chemo:5 FU and Oxilaplatin:6 infusions over 14 weeks
    Sept. 4, 2014 ColonoscopyClear,CT Clear
    Dec. 2014 Follow up BlWk good,CEA .9
    Mar.2015Follow up BlWk continues good, CEA .6
    June 2015 Follow up BlWk good, CEA .7
    Sept2015Followup BlWkgood CEA .7 CT ScanClear NED
    Dec2015SurgicalHerniaRepair surgery, recovering.
    Sept2016Followup BlWkGood CEA .7 CTScanClear NED
    Continue ColoRectal Support Group monthly.

  9. #299
    Senior User dennper's Avatar
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    Hi Friends - Been a long time since I've been here!

    My last colonoscopy was clean and the doctor said "See you in 3 years"

    There is hope and love out there. Never give in!

    All best wishes and prayers,

    Dennis

  10. #300
    Top User Doug K's Avatar
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    Dennis,
    Good to hear from you and glad things are good. I am now three years from diagnosis and NED as of this fall, CTScan, blood work and exams. All good. There is hope and people here need to know that!

    Thanks, and best wishes to you!

    doug


    Quote Originally Posted by dennper View Post
    Hi Friends - Been a long time since I've been here!

    My last colonoscopy was clean and the doctor said "See you in 3 years"

    There is hope and love out there. Never give in!

    All best wishes and prayers,

    Dennis
    MyJourney:
    August 2004 Colonoscopy Clear
    June-July 2013 Abdominal Discomfort Upper Abdomen X-ray, UltraSound, CTScan all clear
    August 23, 2013 Diagnosed 5cm tumor on rectum wall: adenocarcinoma @age 66
    August-Sept2013 Met with Surgeon,Hematologist and Radiation oncologist
    Oct.-Nov.: Xeloda concurrent with radiation: 25 doses
    November CTScan, MRI and surgeon scoped: Tumor gone, scar tissue
    Jan.6, 2014 Surgery LAR: Rectum removed, sphincter remains: Pathology: no lymph node,
    Tumor downgraded from Possible T3 to T2.
    Feb. - April Chemo:5 FU and Oxilaplatin:6 infusions over 14 weeks
    Sept. 4, 2014 ColonoscopyClear,CT Clear
    Dec. 2014 Follow up BlWk good,CEA .9
    Mar.2015Follow up BlWk continues good, CEA .6
    June 2015 Follow up BlWk good, CEA .7
    Sept2015Followup BlWkgood CEA .7 CT ScanClear NED
    Dec2015SurgicalHerniaRepair surgery, recovering.
    Sept2016Followup BlWkGood CEA .7 CTScanClear NED
    Continue ColoRectal Support Group monthly.

 

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