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Thread: Dosage of megace for endometrial cancer stage 1 what are you taking? Please reply!

  1. #11
    Newbie New User
    Join Date
    May 2012
    Posts
    4
    So guys is it 160 mg or 320 mg that we should take ???i took 160 mg for 3 months and just had my second d&c on Friday, so waiting to see the results ...they found 2 polyps again not sure if benign or cancer this time...waiting for pathology reports.
    anyone had cancer free results after taking megace? Please please share!!

  2. #12
    Faith, I will be praying for good test results for you, I won't know until September. I having been looking online and some women have had luck, just enough to start trying for a baby. Standard dose is 160 I believe. I've lost weight on it, but recently I have plateaued...some I'm researching ways to restart my metabolism. My doctor said the most important tool for me was to get rid of my fat as it stores estrogen....so that's what I have been working on. I'll be thinking of you!
    Married my best friend 12/10/11 :
    Hysterscopy with D&C 5/4/12
    Diagnosed with Endometrial Cancer 5/14/12
    160 mg/day of Megace (Progesterone) to see if we can stop the cancer and protect fertility
    D&C, and suspicious freckle removal 10/11/12
    10/19/12 All benign
    12/18/12- Megace decreased from 160 mg to 80
    2/7/13 Benign biopsy
    5/23/13-Benign office biopsy results!
    11/2013 Biopsy - Benign, Megace dose dropped down to 40/day
    1/2014 - My Doctors at OSU thought it would be beneficial to do another D&C to test a larger sample and the results were benign as well. The doctor suggested that I try weaning myself off of the megace in June. I have another biopsy in August, and if that goes well we can start trying for a baby!!!

  3. #13
    Newbie New User
    Join Date
    Aug 2012
    Posts
    8
    Hello, I was first diagnosed at 32 w/endrometrial cancer and treated with Megace at 160. After several months and 4 D&Cs later we dialed down the dose and I eventually quit taking it and was fine for three years. Unfortunately the cancer returned after about 3 years and I also now have colon cancer too. Their thinking it might be a genetics disorder- lynch syndrome. If you have a family history of colon cancer this could be the case for you also. But weight is definitely a factor in endrometrial cancer and weight loss can be difficult while taking Megace because it increases appetite. Hope all goes well!
    Brief cancer history - http://amyslifeblog.com/about/

  4. #14
    Experienced User
    Join Date
    Feb 2012
    Posts
    95
    Thank you for your response. I am sorry that cancer has returned, please be strong! Fight!... If you don't mind me asking, did you stay on megace and the surgery hysterectomy, did you remove everything but left ovaries?

  5. #15
    Hello, everyone.

    Yesterday, I was diagnosed with ENDOMETRIAL CANCER. Four months ago it was complex endometrial hyperplasia with atypia. After my third biopsy, my OB hit me with the news that now it's ENDOMETRIAL CANCER GRADE 1. Like you, Faith21, I also took Megace (160mg/ day for 3 months) when I was diagnosed with endometrial hyperplasia. My OB suggested I have hysterectomy, but I took my chances on Megace because I don't want to have my uterus removed... I want to get pregnant someday... I want to have a child. For 3 months, Megace didn't help improve my condition. This time, I want to give it one more try... maybe higher dosage or maybe another med... just not hysterectomy... not yet... not while I don't have a baby yet. =(

    I hope we will all get better. I pray for everyone here. God bless us all.

  6. #16
    Dear Chrissantosra -- I am so sorry to hear of your diagnosis. It must be particularly difficult when you want to have a child so much. I was post menopausal when diagnosed, so I am not familiar with the options that may or may not be available to you. Is it possible to get a second medical opinion? The more information that you can have the better equiped you will be to make a good decision. God bless.
    Endometrial adenocarcinoma
    stage 1 (10% penetration of myometrium), grade 2
    daVinci hysterectomy March 2011
    No further treatment. Feeling great!

  7. #17
    Thank you for the reply, Endosophie. My husband and I are considering that. We are getting ready to fly to the Philippines this month to get second opinion from another gyne-onco who could explain to me well what to do. I go to the best hospital here in South Korea (that's what they say), but they don't discuss other alternatives. Based on my research, there are other alternatives besides hysterectomy... but my OB is insisting I have my uterus removed and that's the only way. I found out from forums about the use of IUD for endometrial cancer, but my OB didn't even tell me about that. It seems as if they're telling me to just give up motherhood, because there's no hope for that. I am confused.

    Is endometrial cancer grade 1 "untreatable"? I need to be enlightened. Is our condition like other kinds of cancer: you could die anytime soon? Please, please... those who have been through it... tell me where I am right now.


    Quote Originally Posted by endosophie View Post
    Dear Chrissantosra -- I am so sorry to hear of your diagnosis. It must be particularly difficult when you want to have a child so much. I was post menopausal when diagnosed, so I am not familiar with the options that may or may not be available to you. Is it possible to get a second medical opinion? The more information that you can have the better equiped you will be to make a good decision. God bless.

  8. #18
    Chrissantosra:

    Endometrial cancer is most certainly curable by complete hysterectomy if contained within the uterine wall. There are some women that have done well with the hormone therapy and their body "righted" itself, and they are cancer free years later. Cure by hormone therapy is considered rare and a miracle. I have seen case studies where most women relapsed with the hormone therapy eventually, and are put on a higher dose. Some of them stayed the course and improved again.
    It is very probable you will live a long and healthy life as long as you do not push your luck with the hormone therapy. It's not designed to be a long term solution. The only sure way they can stage you is by doing a hysterectomy....the MRI is not going to stage you as it cannot pick up microscopic cancer growth.

    I understand how you feel, and you have come to the right place. Not all onocologists have reviewed the hormone therapy and Mirena case studies.....it's rare that women of reproductive age get this kind of cancer. While many of them are sympathetic to our maternal needs....their job is to stop your cancer from growing....maternal needs are just not ranked#1 for them. As a patient you must be your own advocate..(I know I sound like a broken record)..meaning SHOVE the case studies under their nose and insist. I'm pushy...but I think my doctor appreciates my enthusiasm. Go to a library and online and arm yourself with as much information as possible.

    A few things that may help....you may think about being careful with your soy, processed food, and diary consumption. You may consider monitoring it carefully, along with your insulin. The Megace raised my insulin, I took more metformin as directed and my numbers are normal now. Your fertilty specialist will be looking at your insulin levels....I promise you. Regardless if you did not have insulin resistance before the hormone therapy....it can still go up in normal people.

    I'm sorry you are going through this too. I have ups and downs week to week...I know this is hard, been there. Please let me know if I can be of any help to you during this hard time.

    Take care
    Married my best friend 12/10/11 :
    Hysterscopy with D&C 5/4/12
    Diagnosed with Endometrial Cancer 5/14/12
    160 mg/day of Megace (Progesterone) to see if we can stop the cancer and protect fertility
    D&C, and suspicious freckle removal 10/11/12
    10/19/12 All benign
    12/18/12- Megace decreased from 160 mg to 80
    2/7/13 Benign biopsy
    5/23/13-Benign office biopsy results!
    11/2013 Biopsy - Benign, Megace dose dropped down to 40/day
    1/2014 - My Doctors at OSU thought it would be beneficial to do another D&C to test a larger sample and the results were benign as well. The doctor suggested that I try weaning myself off of the megace in June. I have another biopsy in August, and if that goes well we can start trying for a baby!!!

  9. #19
    Newbie New User
    Join Date
    Sep 2012
    Posts
    2
    Endometrial cancer stage 1 june 27, 2012. I am on 320 mg twice a day. The first week 3xday. I had some really bad hot flashes so my doctor cut it back to twice. I will be done in November 2012. Then I will have a D&C to see if everything is negative. Then my husband & I will try IVF. I am a nutcase some days with the megace. The weight is coming on but I am doing the vitamix program where I am eating fruits and vegetables more than i was before I was diagnose. I hope you get enough opinions to know for sure that this is the way to go. It seems like you do. Where are you now with your procedure.

  10. #20
    Newbie New User
    Join Date
    Aug 2012
    Posts
    8
    specialmagic - So far i still have my ovaries, but they removed the cervix and uterus. However with the addition of colon cancer and positive lymph nodes they are thinking its a genetic disorder called Lynch Syndrome. So I'm going back in for surgery to remove part of my colon and several lymph nodes. They will re-asccess my ability to keep my ovaries at that time. But if I do, they will be at high risk going forward, as will my colon. So there is a trade off to keeping them. Hope all is well!
    Brief cancer history - http://amyslifeblog.com/about/

 

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