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Thread: Burzynski The Movie

  1. #1

    Burzynski The Movie

    I watched this on Netflix this morning, but it is also available to watch at the bottom of this page:


    A cure for many difficult cancers already exists.
    Last edited by Kermica; 06-18-2012 at 07:15 PM. Reason: Removed link
    Diagnosed Sep 2005 with adenocarcinoma Stage 1A encapsulated in large Ovarian Cyst. Surgical removal of right ovary, tube, omentum, pelvic lymph nodes and appendix followed by repeated check-ups were all that were required. Gave birth to first child in November 2011.

  2. #2
    Administrator Top User Kermica's Avatar
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    A cure for many difficult cancers already exists.
    Hi Midnight_Butterfly. We don't believe that Dr. Bursinzki offers anyone any hope or any valid cancer treatments here. In fact, in many ways we consider him and his practices as alternative (not complementary but alternative) treatment which is an area of cancer care that we do not advocate on this site. Therefore, I removed the link to his movie.

    For a more lucid and well rounded view of the good doctor and his practices, I would refer you to this: http://en.wikipedia.org/wiki/Stanislaw_Burzynski As they used to say on the old TV show "Dragnet" - "just the facts, M'am, just the facts".

    Good health,

    kermica
    When the world says, "Give up," Hope whispers, "Try it one more time."
    ~Author Unknown

    Age 67
    Follicular lymphoma diagnosed August 08, Stage 1
    2 cycles (20 treatments each) localized radiation to tumor sites. Remission confirmed July 09
    Restaged to Stage 3 May 2010
    Recurrence confirmed May 2010 - Watch and Wait commenced - multiple scans with minimal progression.
    Cutaneous Squamous Cell Carcinoma diagnosed September 2012. Mohs surgical excision 09/2012. Successful, clean edges all around.
    Significant progression detected in PET scan - December 2012
    Biopsy to check for transformation 1/18/2013 - negative for that but full of lymphoma, of course.
    July 2013 - Rescan due to progression shows one tumor (among many) very suspect for transformation, another biopsy 8/12/13.
    August 2013 - No evidence of transformation, 6 courses of B+R commence 8/29 due to "extensive, systemic disease".
    February 2014 - Diagnostic PET scan states: Negative PET scan. Previous noted hypermetabolic cervical, axillary, iliac and inguinal lymphadenopathy has resolved. Doctor confirms full remission.
    June 2014 - started 2 year maintenance Rituxan, 1 infusion every 3 months. Doctor confirms lump under right arm are "suspicious" for recurrent disease, deferring scans for now.
    February 2015 - Doc and I agreed to stop R maintenance as it is depressing my immune system too much.
    June 2015 - Confirm that the beast is back by physical exam, will scan in August after esophageal issues settle down so we can get a clear view.
    August 2015 - physical exam in error, PET/CT shows no evidence of disease. Remission continues well into second year!
    December 2015 - Cardiologist tells me I have plaque buildup growing at an alarming rate. Stent or bypass down the road but not yet...
    March 2016 - new tumor below the jaw so remission is over. Back to active surveillance until treatment is needed.
    June 2016 - C/T scan indicates presence of multiple lesions in iliac chain.
    August 2016 - PET/CT shows multiple areas of lymphoma as expected plus new areas of concern in bowel.
    January 2017 - C/T scan shows significant progression in cervical and inguinal lymph chains, largest tumor is impacting hearing, measures 2.1x4.6 cm. 4 to 8 cycles of R-CVP, 1x3weeks to commence 2/6/17.
    April 2017 - Mid treatment scan shows about 1/3 reduction in multiple tumors. Also shows abdominal aortic aneurysm with peripheral thrombus. Cardiologist changed meds, spoke of need for surgical repair down the road.
    September 2017 - finished 10 rounds of R-CP, V was stopped due to neuropathy in feet. No further treatment planned at this time, at least 10 tumors can be felt which seem to be growing again.
    December 2017 - Biopsy of external iliac node with SUV of 13.1 shows no transformation! However, the FL grade is now 3A instead of Gr 1-2. Will start indefinite protocol using Copanlisib, one of the new targeted therapies. I remain hopeful.
    March 2018 - Copanlisib failed, treatment stopped 3/28. New plan is to go to Dana Farber on 4/16 for case review and treatment recommendation.

    May 2018 - did not qualify for clinical trials at Dana Farber. Tumors need to get larger to be considered. On consultation w/Dr. Armand at DF and my onc, have decided to take a break from cancer treatments. Will have a biopsy of the mass in my sinus discovered in scan at DF and to get the aneurysm repaired as it has developed a potentially catastrophic penetrating ulcer. Surgery scheduled for 7/12.

    September 2018 - biopsy of mass in nose shows transformed DLBCL throughout. Assessing options for this negative development.

    October 2018 - started 6 to 8 cycles of R-CHOP. Goal is to get to full remission to open up other options.

    February/March 2019 - PET shows four hot spots following R-CHOP. referred to Dana Farber for stem cell transplant. Pre testing all good, accepted for Auto Transplant. Will begin inpatient process about April 1.

  3. #3
    Hi Kermica,

    I apologize for breaching the rules of the forum. I should read them more often, eh? After watching the movie, I did find out that some people are wary of his practises. I also wondered how much it would actually cost and some were saying it was VERY expensive. I will look at that link. Thanks
    Diagnosed Sep 2005 with adenocarcinoma Stage 1A encapsulated in large Ovarian Cyst. Surgical removal of right ovary, tube, omentum, pelvic lymph nodes and appendix followed by repeated check-ups were all that were required. Gave birth to first child in November 2011.

  4. #4
    Newbie New User
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    I hope this does not get me booted off since I have yet to get any replies to my questions, but I am a patient at the Burzynski clinic. What attracted me was that they did 1000 genetic tests on my tumor (colon cancer) and selected my medicines from the information gathered there. My oncologist was just going to give me the standard for colon cancer. I had stage 3 cancer, but after the surgery no cancer can be found via blood tests or PET/CT so I am not a good one to look at for success of any treatment. I'm just trying to prevent any random cancer cell from attaching and growing. If allowed I can give some information about pricing but I assume I won't be.

    One more thing concerning any wikipedia information: It is created by the public and can be altered. From wikipedia on wikipedia "The Wikipedia model allows anyone to edit, and relies on a large number of well-intentioned editors to overcome issues raised by a smaller number of problematic editors. It is inherent in Wikipedia's editing model that misleading information can be added, but over time quality is anticipated to improve in a form of group learning as editors reach consensus, so that substandard edits will very rapidly be removed. This assumption is still being tested, and its limitations and reliability are not yet a settled matter. " Don't believe it just because it is on there. All the drugs I am taking are FDA approved

  5. #5
    Administrator Top User Didee's Avatar
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    http://www.cancerforums.net/threads/...ntineoplastons



    This forum is for those who have chosen to have mainstream therapies for their cancer.
    There are many places on the net where alternatives are discussed.

    His credentials and background

    http://www.quackwatch.org/01Quackery...urzynski1.html

    suing detractors


    http://scienceblogs.com/insolence/20...ki-clinic-thr/

    Hope or false hope
    http://scienceblog.cancerresearchuk....or-false-hope/

    The movie
    http://anaximperator.wordpress.com/2...gainst-cancer/

    White coat underground
    http://whitecoatunderground.com/2011...ening-critics/



    Bad medicine, bad movie and bad PR
    http://www.sciencebasedmedicine.org/...e-a-bad-movie/



    Can he do as he claims?
    http://whitecoatunderground.com/2011...hat-he-claims/

    Burzynski The Movie: Hitting you over the head with pseudoscience, just like Burzynski the man
    http://scienceblogs.com/insolence/20...ubtle-its-not/

    The Burzynski Cancer Treatment
    http://pipeline.corante.com/archives..._treatment.php

    antineoplastons, and the selling of an orphan drug as a cancer cure
    http://www.sciencebasedmedicine.org/...edium=facebook

    patient you won't hear about from Stanislaw Burzynski or his apologists
    http://scienceblogs.com/insolence/20...ut-from-stani/

    Another Burzynski Patient Dies
    http://scienceblogs.com/insolence/20...-patient-dies/

    Will Stanislaw Burzynski slither away from justice again?
    http://scienceblogs.com/insolence/20...ither-away-fr/

    http://scienceblogs.com/insolence/20...-on-burzynski/

    This is very informative for those contemplating treatment there.

    http://www.youtube.com/watch?v=qFrR7...ature=youtu.be
    Last edited by Didee; 01-30-2013 at 01:17 AM.
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016

 

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