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Thread: Medication Help Needed for 4th Stage Cancer Victim

  1. #1
    Newbie New User
    Join Date
    Jul 2012
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    1

    Post Medication Help Needed for 4th Stage Cancer Victim

    I am part of a ministry called faith OUTloud. We have been asked to find help for a young women with 4th stage Ovarian Cancer. She is in need of: Heperin Flush, Saline/Potassium IV, plus dressings. She does not need anyone to administer it as she is a nurse. This beautiful lady has a blockage that must be desolved before she can have chemo. She has insurance but as sometimes happens, she has nothing to help financially once she leaves the hospital. I have found assitance for her for 1 week but it is not enough. I am out of ideas and have tried most every place I can think of so I am coming to you, dear people who are dealing with Ovarian Cancer. Do you know of anyone that will help financially with this type of medication, any discount drug companies, Doctors or other helps? She lives in Tennessee. Any and all help is so appreciated. Thank you! Robin

  2. #2
    Administrator Top User Kermica's Avatar
    Join Date
    Jul 2009
    Posts
    6,585
    Hi Robin. Unfortunately for your friend, this is a worldwide support Forum for people with cancer, their families and thier caregivers. As such, we really don't have any localized information of the type you are seeking for this young lady. We also do not allow solicitations of any form here (which you haven't done, just pointing it out).

    Regarding local support, I would assume you have contacted the American Cancer Society, the local branch of ACS, any national Ovarian Cance support groups, your local social services and local churches which could possibly help, correct? The drug companies also often offer assistance with funding for their drugs in various cases. Of course, the local media can also be approached to publicize her plight and your appeal.

    I wish this young lady well and hope that you are able to locate additional support for her Robin. Good luck with everything.

    Good health,

    kermica
    When the world says, "Give up," Hope whispers, "Try it one more time."
    ~Author Unknown

    Age 67
    Follicular lymphoma diagnosed August 08, Stage 1
    2 cycles (20 treatments each) localized radiation to tumor sites. Remission confirmed July 09
    Restaged to Stage 3 May 2010
    Recurrence confirmed May 2010 - Watch and Wait commenced - multiple scans with minimal progression.
    Cutaneous Squamous Cell Carcinoma diagnosed September 2012. Mohs surgical excision 09/2012. Successful, clean edges all around.
    Significant progression detected in PET scan - December 2012
    Biopsy to check for transformation 1/18/2013 - negative for that but full of lymphoma, of course.
    July 2013 - Rescan due to progression shows one tumor (among many) very suspect for transformation, another biopsy 8/12/13.
    August 2013 - No evidence of transformation, 6 courses of B+R commence 8/29 due to "extensive, systemic disease".
    February 2014 - Diagnostic PET scan states: Negative PET scan. Previous noted hypermetabolic cervical, axillary, iliac and inguinal lymphadenopathy has resolved. Doctor confirms full remission.
    June 2014 - started 2 year maintenance Rituxan, 1 infusion every 3 months. Doctor confirms lump under right arm are "suspicious" for recurrent disease, deferring scans for now.
    February 2015 - Doc and I agreed to stop R maintenance as it is depressing my immune system too much.
    June 2015 - Confirm that the beast is back by physical exam, will scan in August after esophageal issues settle down so we can get a clear view.
    August 2015 - physical exam in error, PET/CT shows no evidence of disease. Remission continues well into second year!
    December 2015 - Cardiologist tells me I have plaque buildup growing at an alarming rate. Stent or bypass down the road but not yet...
    March 2016 - new tumor below the jaw so remission is over. Back to active surveillance until treatment is needed.
    June 2016 - C/T scan indicates presence of multiple lesions in iliac chain.
    August 2016 - PET/CT shows multiple areas of lymphoma as expected plus new areas of concern in bowel.
    January 2017 - C/T scan shows significant progression in cervical and inguinal lymph chains, largest tumor is impacting hearing, measures 2.1x4.6 cm. 4 to 8 cycles of R-CVP, 1x3weeks to commence 2/6/17.
    April 2017 - Mid treatment scan shows about 1/3 reduction in multiple tumors. Also shows abdominal aortic aneurysm with peripheral thrombus. Cardiologist changed meds, spoke of need for surgical repair down the road.
    September 2017 - finished 10 rounds of R-CP, V was stopped due to neuropathy in feet. No further treatment planned at this time, at least 10 tumors can be felt which seem to be growing again.
    December 2017 - Biopsy of external iliac node with SUV of 13.1 shows no transformation! However, the FL grade is now 3A instead of Gr 1-2. Will start indefinite protocol using Copanlisib, one of the new targeted therapies. I remain hopeful.
    March 2018 - Copanlisib failed, treatment stopped 3/28. New plan is to go to Dana Farber on 4/16 for case review and treatment recommendation.

    May 2018 - did not qualify for clinical trials at Dana Farber. Tumors need to get larger to be considered. On consultation w/Dr. Armand at DF and my onc, have decided to take a break from cancer treatments. Will have a biopsy of the mass in my sinus discovered in scan at DF and to get the aneurysm repaired as it has developed a potentially catastrophic penetrating ulcer. Surgery scheduled for 7/12.

    September 2018 - biopsy of mass in nose shows transformed DLBCL throughout. Assessing options for this negative development.

    October 2018 - started 6 to 8 cycles of R-CHOP. Goal is to get to full remission to open up other options.

    February/March 2019 - PET shows four hot spots following R-CHOP. referred to Dana Farber for stem cell transplant. Pre testing all good, accepted for Auto Transplant. Will begin inpatient process about April 1.

  3. #3
    Experienced User
    Join Date
    May 2012
    Posts
    54
    God Bless you for trying to get her some financial help.
    I also understand Kermica's point regarding solicitations.
    Try contacting the drug company directly that manufactures the drug.
    Maybe they can give your friend some free products through your pharmacy or her physician's office.
    I used to be a pharmaceutical sales rep and many times this was done.

    Good Luck.

 

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