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Thread: Victorian (Australia) Research

  1. #1
    Senior User rizza's Avatar
    Join Date
    Jan 2010

    Victorian (Australia) Research

    Not sure if this is in the right forum as it's for research, not a trial, but...

    The Cancer Council Victoria is doing research into 'the forgotten cancers' (Non hodgkins lymphoma, multiple myeloma bladder, gallbladder, liver, esophageal, thyroid, pancreatic, kidney, bone, small intestine, brain and uterine cancer. It involves answering survey questions online and a saliva test (they post it to you).

    If anyone wants to take part, here's the link http://www.forgottencancers.com.au/
    30yo female (27 at diagnosis)
    Mediastinal Large B-cell Lymphoma
    Started six cycles of R CHOP 21 on 8th Jan 2010, completed 23rd April 2010
    4 weeks of daily radiation, started on 18th May 2010
    First clear PET scan 5th August 2010!
    2 years cancer free June 2012!
    My blog: http://dlbcljourney.blogspot.com/

  2. #2
    Administrator Top User Didee's Avatar
    Join Date
    Jun 2010
    Good place to put it, Riz. I have done it.
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016


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