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Thread: "Negotiating" with Cancer

  1. #41
    Administrator Top User ChemoMan's Avatar
    Join Date
    Jun 2008
    Blog Entries
    Hi All

    I am going to move this to the coping and support forum. It will receive a wider audience there. I will leave a redirect here.

    Age 62
    Diffuse Large B cell Lymphoma
    Stage 2a Bulky presentation
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof

    Still alive in 2019 !

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  2. #42
    Administrator Top User Didee's Avatar
    Join Date
    Jun 2010
    Excellent idea.
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016

  3. #43
    Experienced User
    Join Date
    Jul 2012
    I’ve enjoyed reading this thread and all of the different viewpoints. I wanted to add my own ½ cent and I apologize in advance if this has already been said. (I’ve been half skimming/half reading while at work.) I can understand where Lori is coming from when she says that anger can be a good thing. I think anger is a simply a catalyst that tells you when a change needs to be made. Once the anger is recognized then it is “ok, how do I use this anger in a productive way…what am I going to do about it?” Then from there you can let the anger morph into something useful, but you gotta let it go. Use it, don't harbor it.

    I won’t even begin to say that I know what it is like to have cancer...I don’t know what it’s like to be on the receiving end of that diagnosis. I was the only one in the hospital room with my dad when he found out and I was amazed at how calm (on the outside) he seemed. I was so angry and hurt and sad! But witnessing him deal with this stupid disease and seeing how he is fighting in his own way, I had to let the anger go. It wasn’t healthy for him and it damn sure isn’t healthy for me to walk around with anger in my heart – even for a stupid disease. (I call it stupid everyday…hmmm…is that anger manifesting itself??)

    This post has made me think about other things in my life that I am holding on to unnecessarily. So thank you to everyone for your thoughts and for causing me to do some self-reflection.
    Daughter to Dad 68, NSCLC dx'd July 1, 2012. 24+ radiation treatments; chemo every three weeks for 3 months.
    October update: Scans show scar tissue only and no mets. Next scan in December.

    December update: Mets to brain. Started radiation to shrink brain tumors.
    WBR did not work, tumors expanded throughout brain.

    Daddy I miss you and love you more than you will ever know.
    I am certain that I will see you again.
    RIP: 2/11/44-2/15/13


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