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Thread: Husband has extensive stage sclc

  1. #1
    Senior User
    Join Date
    Nov 2012

    Husband has extensive stage sclc

    Hello all,

    I have been reading on this forum for the last few days and this is my first post. My husband was diagnosed with extensive stage small cell lung cancer on Sept 28. He has begun chemotherapy (Cisplatin and Etoposide). He has completed 2 cycles and goes for re-staging CT scans of head, chest, abdomen, and pelvis on Monday. I expect we will see significant regression of the cancer based on what the oncologist has predicted as well as comments I have read on this forum.

    Originally, he had a 5 X 8 cm mass in his right lung with smaller lesions in both right and left lungs, nodal mets, "innumerable" lesions in his liver, and lesions at T-8 and L-4.

    So far he has tolerated the chemo amazingly well with no nausea or vomiting. Just periodic bouts of hiccups! In fact, he had been experiencing nausea pre- treatment and we have commented that he is the only person we know that chemo CURED the nausea! His cough is much better, as well as the SOB.

    I don't know what the future has in store for us, but am glad to have found this forum. You all seem to be very supportive and caring. This is still so surreal. He looks the same (except his hair is now VERY thin) and he has had none of the ugly chemo side effects we were afraid he would suffer. Makes it so hard to believe that this is reality and not some sick joke.

    Thank you--I expect to be posting more and more as time goes by and we learn what is in store....

  2. #2
    Super Moderator Top User
    Join Date
    Sep 2010
    Hi Toppermom,

    Welcome to our Forum and I hope you come to find the value we have all found here. Your husband's first round of chemo sounds like it is going well. One of the few benefits of SCLC is that it usually responds well to the first round of chemo. Glad he is having little in the way of side effects. Please keep us posted and we'll try to help you through. God Bless.

    Caregiver to my Dad, who was diagnosed in June 2010 with Stage 1V NSCLC with single met to brain,
    He sadly lost his battle in August 2010 and we miss his smiling Irish blue eyes terribly.
    My Dad's story:

  3. #3
    Hi Toppermom, I am glad you found your way here! My mom has extensive stage sclc also. Her 1st line chemo was carboplatin and etoposide. She had very few side effects (lost her hair) and it worked really well. She was so much better and it shrunk her cancer substantially! Hang in there, and have hope!

  4. #4
    Senior User
    Join Date
    Nov 2012
    Good Morning folks,

    It has been a long week for us. My husband had a shot of Neulasta on Monday to boost his white count. As the steroids given with chemo have worn off, he is naturally feeling less energetic, less optimistic, and more tired. This morning he got up and said he had a horrible night--he hurts all over. His back, his rib cage, his extremities, just "all over". His cough is returning again (it almost disappears on the days right after chemo, which ended last Friday, the 9th). Not sure how to help--don't want to smother with kindness, but want to do anything possible to be helpful.

    His sister is coming to visit next week along with 2 of our kids. I hope that is not going to be too much for him....

    He is getting CT scans on Monday of his head, chest, abdomen and pelvis for re-staging now that he has completed 2 cycles of chemo.

    Additionally, in spite of my best efforts, I somehow caught a cold, so I have tried to isolate myself from him as much as possible so that he does not get it. I really HATE that I can't touch him....

  5. #5
    We all hate it when we get colds, I work in an elementary school so it is hard to avoid. Mom washes her hands and uses lysol wipes frequently and that has helped some. We also all use those hand cleaners like Purell all the time. Hope you feel better soon!
    Mom's xray July 2011 looks suspicious, CAT scan July 2011 SCLC ES diagnosed August 2011
    Etoposide Carboplatin begins august 24th 2011
    CAT December 2011 lung tumors gone or greatly reduced, liver tumor not detectable PCR January 2012 CAT March 2012 more shrinkage
    CAT July 2012 tumors growing July 2012 Topotecan CAT October 2012 Liver tumor has grown October 2012 Taxotere begins CT scan - no growth - brain mets, WBRT in February, CT Scan in March 2013 shows more growth, begin Gemzar.
    Mom passed away July 8, 2013.

  6. #6
    Senior User
    Join Date
    Nov 2012
    Thank you, Franniedid. We have been avoiding kids (including our grand kids right now) and using the hand sanitizers, etc. So far he doesn't seem like he is showing any cold symptoms ( thank goodness) in spite of his white count likely being at it's low point.

    He is presently getting his CT scans so hopefully we will get good news with the reports. Fingers crossed.

    He isn't feeling great--I don't know if it is chemo related, anxiety about the scans, or just plain being bummed about the whole situation. Probably a bit of all of the above.

    I so wish I could do more to help.
    Caregiver to 71 YO Husband Ex Stage SCLC:
    Chest x-ray Feb 2012 negative
    Chest X-ray Sept 27, 2012 large mass right lung. CT scan confirms lung mass with liver involvement.
    Oct 4 Liver biopsy confirms Ex Stage SCLC
    Pet Scan-large (6 X 8 cm) mass right lung with smaller masses both lungs, lymph node involvement, innumerable masses in liver, bony mets to L-4 & T-8
    Oct 17 Begin Chemo (Cisplatin-Etoposide)

  7. #7
    Administrator Top User Didee's Avatar
    Join Date
    Jun 2010
    Some people have a lot of bone pain from Neulasta and many find relief by taking the over the counter antihistamine Claratyne/Claratin.
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016

  8. #8
    Senior User
    Join Date
    Nov 2012
    Thank you Didee--would never have thought of that. Will definitely try it when it flares again, which presumably it will with the next injection.

    Really appreciate the tip.
    Caregiver to 71 YO Husband Ex Stage SCLC:
    Chest x-ray Feb 2012 negative
    Chest X-ray Sept 27, 2012 large mass right lung. CT scan confirms lung mass with liver involvement.
    Oct 4 Liver biopsy confirms Ex Stage SCLC
    Pet Scan-large (6 X 8 cm) mass right lung with smaller masses both lungs, lymph node involvement, innumerable masses in liver, bony mets to L-4 & T-8
    Oct 17 Begin Chemo (Cisplatin-Etoposide)

  9. #9
    Senior User
    Join Date
    Jul 2012
    Hi Toppermom,
    I just wanted to say hello and offer any help I can. Our family is going through this as well. My MIL was diagnosed in April of this year with Ex stage SCLC as well and her husband (my FIL) has alziemhers which is progressing. Times are tough but we are hanging in there, as I know you all will as well. I can hear from your posts just how much you care for your husband and I can not imagine how scared you are but I hope you find the forum to be comforting and as helpful as I have. It is a place where everyone understands all of the different emotions and feeling we have. I wish you all the best and will send prayers for you both.
    God Bless!
    73 y/o MIL- dx Ex Stage SCLC 4/30/12
    Liver biopsy 06/21/12
    Mets to lymph nodes & spine
    July 4, 5, 6. Chemo
    July 16, in hospital for pain
    July 18. CAT scan.Brain ok,Spine has mets
    July 23-27 radiation to prevent fracture
    Chemo Aug 8, 9, 10
    Chemo Aug 29, 30, 31
    Chemo Sept 26,27,28
    Cat Scan Oct 3, Oncologist Oct 15
    More mets, no further treatment
    Jan 8/13- CT confirmed large brain mets
    Feb 19, 2013 Carol passed away with all of us at her side.

  10. #10
    Senior User
    Join Date
    Jul 2012
    Hi Toppermom, welcome to the forum. My mother has nsclc. The one bit of advice that I have is to spend as much time as possible making memories. Journal if you can. Remember to find the gold nuggets that come with this dreadful disease. They are there, you just have to find the. I pray for strength for you and for him. God bless you. Anj.
    Caregiver to mom, 64 Ovarian Cancer Remission since 1997.
    6/19/12 Annual blood work - CA125 came back elevated.
    6/21/12 CT abdomen, RUL 2.8cm spot, LLL 5mm spot, lt. adrenal gland mass 8.3cm, rt. adrenal gland mass 4.6 cm.,
    6/28/12 Brain MRI-Clear,
    6/29/12 Lung Biopsy=Stage 4 NSCLC.
    7/11, 8/3, 8/23, 9/13/12 Chemo (Carb/Alimta).
    CT Scan 10/4/12 1 of 4 tumors decreased. 20% Kidney function. Blood transfusion
    10/9/12. Mets to liver.
    12/11 chemo (carb/taxotere) continued thru March.
    March 27, 2013. Told no more chemo, cancer now in the brain, to call out Hospice. Set up hospice March 31, 2013. Mom passed April 12, 2013. She will always be in my heart, never forgotten and always loved. May we reunite soon....after only a temporary separation!


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