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Hi Deb,
If the pins and needles continues, make sure you tell your dr. That is how my neuropathy started and now I still have it afterbeing over 5 weeks since my last chemo. If it gets too bad, it could be permanent. Mine goes up my leg and my arm, and also I still have that feeling in my throat. Just let the dr know and dont be stubborn like I was for too long....lol (I always thought, oh, it will go away).
KC
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My mouth/lips feel a little numb. Is that common?
Deb f53
Diag at 49 RCa 5-4-12
28 rounds Xeloda+radiation 5-12 to 7-12
Lovely month of normalcy in August
LAR + temp ileo 9-5-12
Stage IIIa T2, N1
FOLFOX 10-16-12 x 12 rounds for 6 months
Round 12 completed 4-4-13--YAY!
NED 4-12-13 CT Scan
Ileo reversal 4-19-13; contracted c-diff--went into toxic shock; 2nd surgery 4-22-13;
Hospital release 4-30-13
7-13 to 9-13 Joined LIVESTRONG program at YMCA
NED 8-13 Breast and cervical biopsies (due to abnormalities)
NED 9-20-13 Colonoscopy
American Cancer Society 9-21-13 Relay for Life Event
NED 4-10-14 CT scan
NED 1-13-15 CT scan
NED Dec 2015 Colonoscopy
NED Feb 2016 CT scan
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I had something the same today eating and drinking things at a quite cool room temperature.
And not for the first time, but only when something cool has been in contact and at the start of the cycle.
My cancer nurses have also told me to report bad and or persistent symptoms.
I have to concentrate on my lips to feel anything at all now though.
I'm not going to worry unless it gets worse, persistent until late into cycle or both.
David
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Mouth numbness gone I think. Mostly have the finger tingles this morning. Thought I would add my FOLFOX6 drug regimen:
Chemo: Oxaliplatin, inj. 150 mg. Rate over 2 hours IV. Mix in 250 mL D5W.--NOW REDUCED 10%.
Leucovorin calcium, inj. 35 mg. Rate over 90-120 mins IV. Mix in 250 mL NS or D5W.
Fluorouracil, inj. 704 mg. Rate 2-4 mins IV push.
Fluorouacil, inj. 4220 mg. Rate over 46 hours pump. Disconnect on Day 3.
Other meds: Calcium gluconate mixed with Magnesium sulfate, inj. 1 gm each and mixed with 100 mL NS or D5W. Rate 30-60 mins IV. Add before Oxaliplaten to prevent toxicity. Same dose added after Oxaliplaten for same reason.
Palonosetron hcl (Aloxi) .25mg IV inj. (Anti-nausea)
Dexamethasone sod phosphate 10mg IV inj. (Steroid anti-nausea)
Fosaprepitant dimeglumine (Emend) 150mg IV inj. (Anti-nausea) (30 mins prior to chemo)
Lorazepam (Ativan) .05 IV inj. (Anti-nausea)
At home pills:
Lorazepam .5 mg (for nausea)
Dexamethasone 4mg (for nausea) (steroid to take day 2-4 of chemo at breakfast and dinner)
Prochlorperazine maleate 10mg (for nausea)
Also take multivitamin and Celexa 20mg to regulate mood issues.
More meds this year than I've taken my whole life before!
Deb f53
Diag at 49 RCa 5-4-12
28 rounds Xeloda+radiation 5-12 to 7-12
Lovely month of normalcy in August
LAR + temp ileo 9-5-12
Stage IIIa T2, N1
FOLFOX 10-16-12 x 12 rounds for 6 months
Round 12 completed 4-4-13--YAY!
NED 4-12-13 CT Scan
Ileo reversal 4-19-13; contracted c-diff--went into toxic shock; 2nd surgery 4-22-13;
Hospital release 4-30-13
7-13 to 9-13 Joined LIVESTRONG program at YMCA
NED 8-13 Breast and cervical biopsies (due to abnormalities)
NED 9-20-13 Colonoscopy
American Cancer Society 9-21-13 Relay for Life Event
NED 4-10-14 CT scan
NED 1-13-15 CT scan
NED Dec 2015 Colonoscopy
NED Feb 2016 CT scan
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Top User
Deb- sounds as if so far your doing pretty good. all the side effects are par for the course. Im surprised you are still eating and enjoying? food. thrush actually is a type of fungus but is easily cleared up.the black probably was something you ate.
glad the numbness in your lips are going away praying you are able to kick cancer butt.! hope your next scan shows much improvement and that you are a candidate for the reversal- hang in there and thanks for continuing with this diary your and Dens are very helpfull for alot of people.
MOMS Journey
April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
oxyplatin,5fu
Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
oxyplatin,transfusion.
April 07-xeloda-overdose
surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
port-port rejection-port removed 1week.
picc line,5fu,oxyplatin,camptosar.
Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
transfusion central line TPN 1 month.
oct-09-surgery tumor ,colon and jejuneum removed.
xeloda reduced. severe dehydration,heart attack.
april10-remission-avistan
oct-10-erbitux,camptosar
Jan-11-5fu
mar-11 return to original site-oxyplatin,5fu
Aug-11-erbitux,camptosar.
dec-28-blood transfusion
dec-30-back to chemo erbitux camtosar
Jan-16 injections neulasta and aranesp
feb16-transfusion
feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
june/15/12-blood transfusion
starting a regimine of celebrex
aug/16/12-blood transfusion
aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
sept/10-12-good urologist report one kidney functioning well for now.
oct/23/12-chemo pill Stivarga(regorafenib)
Nov/22/12-blood transfusion
dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
Feb/21/13 neulasta injection
Feb/22/13-blood transfusion. still taking stivarga.
mar/20/13-arenespt injection rehydration and magnesium IV
mar/21/13-acute renal failure-kidney infection
april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
swollen hand no apparent reason black spots in vision off and on. both cleared up.
may/22/13-home oxycodone for pain shoulder neck arm
june/1/13 pain subsided off oxy onto aleve
june/09/13-pain back off aleve on vicodin
june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
june24/13-last day of radiation-on steroids
july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
july 23/13 vicodin cut in half blood transfusion.
sept/6/13-off all pain meds since late aug
scan results fracture in spine mid back
sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
nov/7/13-edema both legs and one arm on lasix since oct.
nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.
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Deb,
I did have the numb tongue and lips and also my gums. This was WITHOUT eating or drinking anything. I cant stress enough that if it continues tell your Dr or the nurses at te treatment center. Some things can be irreversible from what I understand.
Kerri
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Day 2. Today was a good day. I took a hot bath to warm my tootsies, worked a few hours from home and did 3 loads of laundry, Finally tonight the cold touch appears to be wearing off a bit. I even had half a scoop of chocolate ice cream but it numbed my mouth a bit. My cheeks looked a bit flushed today.
Deb f53
Diag at 49 RCa 5-4-12
28 rounds Xeloda+radiation 5-12 to 7-12
Lovely month of normalcy in August
LAR + temp ileo 9-5-12
Stage IIIa T2, N1
FOLFOX 10-16-12 x 12 rounds for 6 months
Round 12 completed 4-4-13--YAY!
NED 4-12-13 CT Scan
Ileo reversal 4-19-13; contracted c-diff--went into toxic shock; 2nd surgery 4-22-13;
Hospital release 4-30-13
7-13 to 9-13 Joined LIVESTRONG program at YMCA
NED 8-13 Breast and cervical biopsies (due to abnormalities)
NED 9-20-13 Colonoscopy
American Cancer Society 9-21-13 Relay for Life Event
NED 4-10-14 CT scan
NED 1-13-15 CT scan
NED Dec 2015 Colonoscopy
NED Feb 2016 CT scan
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Day 3. Disconnected plus hydration plus neulasta shot. Had some pins and needles this morning in fingers from cold but when my hands are warm it goes away. Good day so far.
Deb f53
Diag at 49 RCa 5-4-12
28 rounds Xeloda+radiation 5-12 to 7-12
Lovely month of normalcy in August
LAR + temp ileo 9-5-12
Stage IIIa T2, N1
FOLFOX 10-16-12 x 12 rounds for 6 months
Round 12 completed 4-4-13--YAY!
NED 4-12-13 CT Scan
Ileo reversal 4-19-13; contracted c-diff--went into toxic shock; 2nd surgery 4-22-13;
Hospital release 4-30-13
7-13 to 9-13 Joined LIVESTRONG program at YMCA
NED 8-13 Breast and cervical biopsies (due to abnormalities)
NED 9-20-13 Colonoscopy
American Cancer Society 9-21-13 Relay for Life Event
NED 4-10-14 CT scan
NED 1-13-15 CT scan
NED Dec 2015 Colonoscopy
NED Feb 2016 CT scan
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Day 4. Slept on and off last night and able to work about 3 hours this morning, then the crappy feeling began and I felt listless and mopey the rest of the day. Was able to eat well and took a lot of naps. Stayed in my pjs all day. Just took a bath and ready for bed. Doesn't seem to matter how much I drink, I am always thirsty.
Deb f53
Diag at 49 RCa 5-4-12
28 rounds Xeloda+radiation 5-12 to 7-12
Lovely month of normalcy in August
LAR + temp ileo 9-5-12
Stage IIIa T2, N1
FOLFOX 10-16-12 x 12 rounds for 6 months
Round 12 completed 4-4-13--YAY!
NED 4-12-13 CT Scan
Ileo reversal 4-19-13; contracted c-diff--went into toxic shock; 2nd surgery 4-22-13;
Hospital release 4-30-13
7-13 to 9-13 Joined LIVESTRONG program at YMCA
NED 8-13 Breast and cervical biopsies (due to abnormalities)
NED 9-20-13 Colonoscopy
American Cancer Society 9-21-13 Relay for Life Event
NED 4-10-14 CT scan
NED 1-13-15 CT scan
NED Dec 2015 Colonoscopy
NED Feb 2016 CT scan
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Top User
Deb- that neulasta injection can produce flu like symptoms-not to worry its common. mom felt extra weak at that time(especially the legs). hope you get rid of the crappies soon.
MOMS Journey
April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
oxyplatin,5fu
Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
oxyplatin,transfusion.
April 07-xeloda-overdose
surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
port-port rejection-port removed 1week.
picc line,5fu,oxyplatin,camptosar.
Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
transfusion central line TPN 1 month.
oct-09-surgery tumor ,colon and jejuneum removed.
xeloda reduced. severe dehydration,heart attack.
april10-remission-avistan
oct-10-erbitux,camptosar
Jan-11-5fu
mar-11 return to original site-oxyplatin,5fu
Aug-11-erbitux,camptosar.
dec-28-blood transfusion
dec-30-back to chemo erbitux camtosar
Jan-16 injections neulasta and aranesp
feb16-transfusion
feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
june/15/12-blood transfusion
starting a regimine of celebrex
aug/16/12-blood transfusion
aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
sept/10-12-good urologist report one kidney functioning well for now.
oct/23/12-chemo pill Stivarga(regorafenib)
Nov/22/12-blood transfusion
dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
Feb/21/13 neulasta injection
Feb/22/13-blood transfusion. still taking stivarga.
mar/20/13-arenespt injection rehydration and magnesium IV
mar/21/13-acute renal failure-kidney infection
april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
swollen hand no apparent reason black spots in vision off and on. both cleared up.
may/22/13-home oxycodone for pain shoulder neck arm
june/1/13 pain subsided off oxy onto aleve
june/09/13-pain back off aleve on vicodin
june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
june24/13-last day of radiation-on steroids
july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
july 23/13 vicodin cut in half blood transfusion.
sept/6/13-off all pain meds since late aug
scan results fracture in spine mid back
sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
nov/7/13-edema both legs and one arm on lasix since oct.
nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.
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