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Thread: Stage 3A Rectal Cancer, stage 1 2007

  1. #21
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
    Posts
    5,438
    Activeman,
    It's just a guess but yes I do think the UK in someways is ahead of the US.
    We are lucky that our National Health Service is fully integrated in terms of research and implementation of latest and best techniques and practices.
    Also, we have so many of the worlds top surgeons (consultants) and research specialists who are directly linked into teaching hospitals.
    Ultimately it boils down to the surgeon once he gets inside who decides what are the best options.
    I was on a forced liquid diet for a long time as my bowels went on strike for nearly 2 weeks post surgery so I couldn't take solids in any form, not even porridge.
    It was TPN for me, for 2 weeks until the bowels decided to wake up, then it was sloppy diet for another 2 weeks and gradually introducing semi solids. I lived on boiled rice and desiccated chicken, Fried rice and desiccated chicken for another month.
    Now I can eat almost anything apart from mayonnaise which plays havoc.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  2. #22
    activeman- Ive been following your post but since the others with similar experience were giving you advice they seemed to do well enough. Mom never got the chance for reconnection so I cant relate any similar info. but I want to let you know that Im happy for the good reults and want to wish you future luck as well.
    MOMS Journey
    April06- Emergencysurgery,exploratory,10units blood,largetumor and 10inches of colon removed,temp.colostomy.diagnosed stage IV colon.
    oxyplatin,5fu
    Oct06-radiation,surgery,several lymphs,cervix,1 ovary,fallopian,40% remaining colon,large tumor to adipose tissue,appendix,gallbladder removed.permant colostomy/iliostomy
    oxyplatin,transfusion.
    April 07-xeloda-overdose
    surgery-1/3liver,partial diaphra, removed clipped and questionable spots oblated.
    port-port rejection-port removed 1week.
    picc line,5fu,oxyplatin,camptosar.
    Oct-08-surgery-remaining ovary engulfed in tumor,partial bone scrape.
    transfusion central line TPN 1 month.
    oct-09-surgery tumor ,colon and jejuneum removed.
    xeloda reduced. severe dehydration,heart attack.
    april10-remission-avistan
    oct-10-erbitux,camptosar
    Jan-11-5fu
    mar-11 return to original site-oxyplatin,5fu
    Aug-11-erbitux,camptosar.
    dec-28-blood transfusion
    dec-30-back to chemo erbitux camtosar
    Jan-16 injections neulasta and aranesp
    feb16-transfusion
    feb 21-Tumor found stomach,liver, and liver "hot spots" inflamed lymph in rt ureter in kidney causing obstruction-surgery schedualed Mar 16.
    march 16/12-no more kidney obstruction not lymph ...dehydration is causing blockage, two litters blood for anemia, stomach liver tumor small-med,abalation, 1 hidden tumor deep in muscle mass on side flank(hid from scans) -gone!
    june/15/12-blood transfusion
    starting a regimine of celebrex
    aug/16/12-blood transfusion
    aug/30-12 discontinued celebrex -failure one kidney. needed to see urologist
    sept/10-12-good urologist report one kidney functioning well for now.
    oct/23/12-chemo pill Stivarga(regorafenib)
    Nov/22/12-blood transfusion
    dec/18/12-blood transfusion chemo pill dosage cut back to 1 pill.
    Feb/21/13 neulasta injection
    Feb/22/13-blood transfusion. still taking stivarga.
    mar/20/13-arenespt injection rehydration and magnesium IV
    mar/21/13-acute renal failure-kidney infection
    april/1/13.-recovery from 4 day coma infection cleared/4 units blood/ off stivarga/starting rehab therapy,
    swollen hand no apparent reason black spots in vision off and on. both cleared up.
    may/22/13-home oxycodone for pain shoulder neck arm
    june/1/13 pain subsided off oxy onto aleve
    june/09/13-pain back off aleve on vicodin
    june 10/13-cancer in back/neck- starting radiation for arm neck and shoulder pain.
    june24/13-last day of radiation-on steroids
    july1/13-swollen legs and feet-lasix off steroids still on vicodin and xanax
    july 23/13 vicodin cut in half blood transfusion.
    sept/6/13-off all pain meds since late aug
    scan results fracture in spine mid back
    sept/12/13-spine healing on its own,weaning off steroids, no visible tumors.
    nov/7/13-edema both legs and one arm on lasix since oct.
    nov/21/13- leg edema subsiding still alot in one arm- she is talking but keeps her eyes closed. achy but no major pain. nurse and aide to visit once a week schedualed. having trouble standing.
    nov/24/13-sadly but peacefully moms cancer journey is at an end, she will start her new spiritual journey together hand in hand with dad.

  3. #23
    Hi Activeman, glad to see update from you. You really will get used to the bag. I also used Hollister 2-piece but no filter.I liked to use the hot tub and wanted no leaks. I am bagless now but still trying to get the plumbing regulated. I will update my post soon. If you have any specific questions, feel free to ask publicly or privately. Good luck to you.
    Deb f53
    Diag at 49 RCa 5-4-12
    28 rounds Xeloda+radiation 5-12 to 7-12
    Lovely month of normalcy in August
    LAR + temp ileo 9-5-12
    Stage IIIa T2, N1
    FOLFOX 10-16-12 x 12 rounds for 6 months
    Round 12 completed 4-4-13--YAY!
    NED 4-12-13 CT Scan
    Ileo reversal 4-19-13; contracted c-diff--went into toxic shock; 2nd surgery 4-22-13;
    Hospital release 4-30-13
    7-13 to 9-13 Joined LIVESTRONG program at YMCA
    NED 8-13 Breast and cervical biopsies (due to abnormalities)
    NED 9-20-13 Colonoscopy
    American Cancer Society 9-21-13 Relay for Life Event
    NED 4-10-14 CT scan
    NED 1-13-15 CT scan
    NED Dec 2015 Colonoscopy
    NED Feb 2016 CT scan

  4. #24
    Senior User
    Join Date
    Dec 2012
    Posts
    360
    Hello Activeman,

    My dad has been diagnosed with rectal cancer stage III. Thus far he went through chemotherapy and radiation for 1.5 months, two months off to recoup, then surgery to remove the tumor with temporary colostomy, then two months off to recoup. At this point, he is on his second infusion out of 12 chemotherapy sessions, he will have to recoup again for 2 months after his chemotherapy and then the doctor's will reverse the colostomy bag. I hope this was helpful, I wish you best of luck and hang in there. This forum is great and people on this forum are very supportive.
    Good Luck and keep us posted.
    Aneta

  5. #25
    Activeman..my husband had his reversal of the bag this past Feb 2013. He was diagnosed last May, so we are past the year mark of diagnosis. He had radiation prior to first surgery, low laying rectal cancer. Very low. We thought he'd have a permanent bag and were prepared for that. He went thru treatment and all and chemo post surgery. You will get a lot of great advice here about foods and stuff. I do know we followed almost all of it. Red wine seemed to be a bad factor for him. It would give him a "flat tire" in the middle of the night. That's what we called it when the bag would break.

    I will tell you the surgery to remove the tumor and have the bag was tough and even sitting for a long time was very difficult He took his donut with him and that relieved a LOT of the pressure.

    The reconstruction was a little tough but not compared to everything else. He loved the donut and still uses it as sitting for long periods is sometimes hard.

    He is finally getting better control and more regular. Things set him off and then he's up all night. Dairy and again, red wine, is a factor that makes the volcano active. LOL--these are all his analogies.

    Give yourself time to adapt and introduce foods little bit at a time.

    Personal life is just as good as it was before..so no affecting that aspect of it. Wishing you a great recovery!! And the body is an amazing thing. The new things it learns is incredible. The doctor told us he has no rectum and his colon is learning that function. And it has. For awhile there my husband said it was on the short bus, now it's accelerated to honor student.

    So there you go!

  6. #26
    Regular User
    Join Date
    Feb 2013
    Posts
    27
    6-25-18 All is good. Activeman
    Stage 1 rectal cancer 5/07, age 50
    Transanal removal with clear margins
    No Chemo and no Radiation.
    Stage 3A rectal cancer 12/12 in one lymph node adjacent to rectum, age 56
    3/12 started 28 days of Xeloda (3000mg) and Radiation.
    6/13 LAR at UCSF, home after 6 days with ileostomy.
    8/13 start 12 rounds of oxaliplatin Flourouracil cocktail. Completed 2/14.
    2/27/14 Take down of ileostomy, home after two days. One tough night after 5 days to restart bowls, now feeling quite well with minimal issues.
    4/14 Okay blood work, 5/14 Clear PET scan, 6/14 Clear colonostomy. Meeting with Oncologist to see if they can remove port.
    7/14 Port removed, looking to go topless in a month or so. Fiber therapy after lunch and appreciate a little personal time about an hour after my big meal of the day, which can have me walking to the restroom two to three times in the next hour.

  7. #27
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
    Posts
    5,438
    Good to hear all is good.
    Barry
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20, 23/08 now 8.2, current 8.1
    Prostate Cancer confirmed Gleason 3+Marginal 4.
    Active surveillance continues.
    PET CT Aug 2017 indicated lung nodule changes
    CT Guided biopsy 7/09
    November 1 Vats Wedge section pathology Glomulated previous infection
    no Cancer.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Motto
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile, too many bullets at moment.

  8. #28
    Happy to hear it. Thanks for checking in!
    Deb f53
    Diag at 49 RCa 5-4-12
    28 rounds Xeloda+radiation 5-12 to 7-12
    Lovely month of normalcy in August
    LAR + temp ileo 9-5-12
    Stage IIIa T2, N1
    FOLFOX 10-16-12 x 12 rounds for 6 months
    Round 12 completed 4-4-13--YAY!
    NED 4-12-13 CT Scan
    Ileo reversal 4-19-13; contracted c-diff--went into toxic shock; 2nd surgery 4-22-13;
    Hospital release 4-30-13
    7-13 to 9-13 Joined LIVESTRONG program at YMCA
    NED 8-13 Breast and cervical biopsies (due to abnormalities)
    NED 9-20-13 Colonoscopy
    American Cancer Society 9-21-13 Relay for Life Event
    NED 4-10-14 CT scan
    NED 1-13-15 CT scan
    NED Dec 2015 Colonoscopy
    NED Feb 2016 CT scan

 

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