Quote Originally Posted by Aaliya View Post
Is there any way to get an online consult or a second opinion from Dr Shustov?
Also the link to the interview doesn't show the interview.
Hi Aaliya, When we checked into this, I found that that The Hutch/Cancer Care Alliance where Dr. Shustov practices insists that they see the patient in person for a second opinion. I think there are rules about that, in general. (Concern of malpratice, liability, etc.). It's expensive but sometimes insurance will cover a second opinion. Ours does not. We ended up paying out of pocket, about $600 for 1.5 hours with him, plus the trip to Seattle. But there is one other option - to attend a free patient education seminar. We are going to one he is giving in SanFrancisco next week.

The Lymphoma Research Foundation also sponsors patient education "Ask the Doctor" events around the country. We just went to a general Lymphoma one where we live in Denver. Dr. Shustov was not there, another expert was, but she had great information and there was ample time to ask any questions we had.

Here are the upcoming "Ask the Doctor" seminars: More information here: http://www.lymphoma.org/site/pp.asp?...mK8E&b=6293647
Ask the Doctor About Lymphoma Programs are community-based, two-hour educational programs that provide an update on lymphoma treatment options.

Ask the Doctor About Lymphoma – June 6, 2017 – Raleigh, NC – Register today
Ask the Doctor About Lymphoma – June 21, 2017 – St. Louis, MO – Register today
Ask the Doctor About Lymphoma – August 10, 2017 – Cleveland, OH – Register today
Ask the Doctor About Lymphoma – August 10, 2017 – Philadelphia, PA – Register today
Ask the Doctor About Lymphoma – September 13, 2017 – Baltimore, MD – Register today
Ask the Doctor About Lymphoma – September 14, 2017 – Houston, TX – Register today

Here are the upcoming (dates need confirmation) patient education seminars specific to T-CELL and led by Dr. Shustov:

UPCOMING DATES AND CITIES:
T-Cell Lymphoma Patient Education Forums this year led by Dr. Shustov of Cancer Care Alliance/The Hutch
More information: http://www.tcllfoundation.org/

San Francisco - June 3, 2017 - Hotel Nikko
Anchorage, Alaska – July 15, 2017 (date needs confirmed)
Honolulu, Hawaii – October 7, 2017 (confirmed)
Seattle, Washington – December 9, 2017 (date needs confirmed)