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Thread: My wife with stage 4

  1. #11
    Senior User
    Join Date
    Jul 2012
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    I'm happy to hear your wife is tolerating the chemo and has lots of energy. Your thoughtfulness is so very sweet! She is lucky to have you to inspire her. God bless you both!! Anj.
    Caregiver to mom, 64 Ovarian Cancer Remission since 1997.
    6/19/12 Annual blood work - CA125 came back elevated.
    6/21/12 CT abdomen, RUL 2.8cm spot, LLL 5mm spot, lt. adrenal gland mass 8.3cm, rt. adrenal gland mass 4.6 cm.,
    6/28/12 Brain MRI-Clear,
    6/29/12 Lung Biopsy=Stage 4 NSCLC.
    7/11, 8/3, 8/23, 9/13/12 Chemo (Carb/Alimta).
    CT Scan 10/4/12 1 of 4 tumors decreased. 20% Kidney function. Blood transfusion
    10/9/12. Mets to liver.
    12/11 chemo (carb/taxotere) continued thru March.
    March 27, 2013. Told no more chemo, cancer now in the brain, to call out Hospice. Set up hospice March 31, 2013. Mom passed April 12, 2013. She will always be in my heart, never forgotten and always loved. May we reunite soon....after only a temporary separation!

  2. #12
    I am so glad to hear your wife is tolerating the chemo well, I love the idea of the inspirational quotes. What a thoughtful husband you are!
    Mom's xray July 2011 looks suspicious, CAT scan July 2011 SCLC ES diagnosed August 2011
    Etoposide Carboplatin begins august 24th 2011
    CAT December 2011 lung tumors gone or greatly reduced, liver tumor not detectable PCR January 2012 CAT March 2012 more shrinkage
    CAT July 2012 tumors growing July 2012 Topotecan CAT October 2012 Liver tumor has grown October 2012 Taxotere begins CT scan - no growth - brain mets, WBRT in February, CT Scan in March 2013 shows more growth, begin Gemzar.
    Mom passed away July 8, 2013.

  3. #13
    Super Moderator Top User
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    Sep 2010
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    2,728
    I'm going to add to choir and say how glad I am that your wife is tolerating the chemo well. Sending best wishes that it continues. God Bless.

    Irish
    Irish,
    Caregiver to my Dad, who was diagnosed in June 2010 with Stage 1V NSCLC with single met to brain,
    He sadly lost his battle in August 2010 and we miss his smiling Irish blue eyes terribly.
    My Dad's story:
    http://www.cancerforums.net/threads/...th-how-he-died.

  4. #14
    Administrator Top User lisa1962's Avatar
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    Just sending positive thoughts your way that your wife continues to tolerate chemo well.

  5. #15
    Experienced User
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    May 2013
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    71
    thank you all for the good wishes. I really mean that.

    Today at her 2nd chemo, she was there for 7 1/2 hours. It was mostly due to them not being able to get a draw of blood from her port. They tried some medicine to get it going and it didn't work. So they took some X-Rays to make sure it was still where it was supposed to be. Then another drug was introduced to basically make sure there was no flap around the end of the port to block the blood flow. Then the waiting. They started the other drugs earlier in her arm.

    Hopefully, being tired will be the only problems today.

  6. #16
    Quote Originally Posted by tomyo10 View Post
    One thing that has helped her is that I've gathered hundreds of inspirational quotes, printed them and cut them into individual strips. I give her one every day. She cries a bit when she reads them, but still wants them every day. She is going to tape them on the piece of yarn and hang it in her room. I think it helps.
    That is such a great idea! I am sure she gets emotional but this shows that your thought is greatly appreciated by her. I hope she continues to do well with chemo!

    Mary

  7. #17
    Experienced User
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    May 2013
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    They've been having problems with her port. For the first 2 weeks, they had problems getting a blood flow from her port but eventually it worked.

    Last week, they couldn't do it and she had to take the chemo in the arm. Not as pleasant. We went to the hospital yesterday to get some dye injected to see if there's a blockage. No blockage there. But they did figure it out- they tried a few different diameters and length needles as well as positions.

    We're hoping the cancer center can duplicate that tomorrow.

    One more problem is disconcerting for me. She doesn't sleep more than 5 hours a day. She is so wound up during the day, our house is as organized as it can get at this point. I woke up last night at 1:30 to find her on the kitchen floor organizing the junk drawer. For the second time.

    I tell her she needs rest and she knows it. She tries but can't seem to get consistant time to rest.

  8. #18
    Administrator Top User lisa1962's Avatar
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    Is your wife on a steriod? This may account for insomia. Also, she has so much on her mind being the one with this horrible disease that it may be hard for her to get a consistant nights sleep due to her mind waundering.... So sorry she was having problem with her port but relieved they figured it out. One suggestion, maybe ask the oncologist for a low dose sleeping pill that can help. Please keep posted to let us know how she is doing.

  9. #19
    Experienced User
    Join Date
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    Quote Originally Posted by lisa1962 View Post
    Is your wife on a steriod? This may account for insomia. Also, she has so much on her mind being the one with this horrible disease that it may be hard for her to get a consistant nights sleep due to her mind waundering.... So sorry she was having problem with her port but relieved they figured it out. One suggestion, maybe ask the oncologist for a low dose sleeping pill that can help. Please keep posted to let us know how she is doing.
    She is almost done with the steroids, which has also puffed out her face and belly as well as weakening her legs.

    I do believe the not sleeping has most to do with the thinking of her problems.

  10. #20
    You might want to try Ativan. It might calm her a bit.

    mike
    At the time - 46 yo male, non-smoker
    Sept 2012 - DX - One tumor NSCLC Squamous Cell Right Upper Lung
    Oct 2012 - TX - Treatment similar to Pancoast Tumor - Pre-operation radiation and chemo (5.5 weeks of IGRT and 3 cycles of Cisplatin and Etoposide)
    Dec 2012 - Surgery - Remove RUL, Surgical Pathology Report Adenocarcinoma T2N0M0
    Now - Wait, watch, & pray

 

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