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Thread: Updated!!! Think you have Pancreatic Cancer? Not yet diagnosed? Please read!

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    Updated!!! Think you have Pancreatic Cancer? Not yet diagnosed? Please read!

    You may now post your concerns in the "Worried About Possible Cancer" forum, which can be found here:

    Any post about undiagnosed pancreatic cancer (PanCan) that is posted here will be moved to the above forum. If you are not sure if you should post, please read below.

    If you are writing to say that you are worried because you have symptoms related to Pancreatic Cancer but you haven't been to a doctor yet, here is a summary of what we are probably going to say to you:

    * Don't panic!
    * The median age for a Pancreatic cancer diagnosis is >70 years.
    * Pancreatic cancer takes about 20 years to develop from first mutation to tumor.
    * Back/abdominal pains are common to hundreds of ailments that are not cancer.
    * PanCan can be difficult to diagnose. Consider a visit to a major cancer center that more experience.
    * Consulting Dr. Google will only increase your fears.

    Dr. Google can convince people that they are seriously ill when mostly they are not.

    * You probably don't have Pancreatic Cancer. There are hundreds of things that can cause symptoms similar to PanCan and most are not, in fact, PanCan!

    * Unfortunately, we cannot tell you that you definitely do NOT have PanCan either. We are not doctors, and the ONLY way that PanCan can be diagnosed is with a biopsy of an affected area. What we can tell you is that you are obviously concerned and you should seek medical counsel for your own peace of mind.

    * In summary, if you are concerned, go see a doctor. If you are not satisfied with how they treat you, see another one. You are the greatest advocate for your own health, as you have the greatest stake in it.

    * The best diagnostic tools for PanCan are:
    • Endoscopic UltraSound (EUS)
    • CT scan using pancreas protocol
    • CA19-9 blood test is unreliable, but still informative

    * A biopsy of tumor site is necessary for an official diagnosis. A tumor on scans might be a metastasis from a different type of cancer. Even if it is confirmed as pancreatic cancer, The biopsy should also identify the subtype. There are a three main types of PanCan, with wildly different prognosis and treatment. If diagnosed, make sure you learn which type you have!
    • Ductal adenocarcinoma (95%)
    • Neuroendocrine aka pNET (<5%)
    • Acinar (1%)

    * If you have been to a doctor who suspects Pancreatic Cancer, or have the discovery of a condition that may be pre-cancerous or cancerous (i.e. pancreatic cysts) and you are currently undergoing tests specifically for PanCan, we will support you through diagnosis. However, if a doctor tells you that you do NOT have PanCan, please refrain from posting your fears on this site as there is nothing else we can do to help you. This has proven to be upsetting to our members who are currently battling PanCan or have loved ones who are.

    If you have any questions about whether or not you should post, please feel free to send ddessert or BobInBonita a private message and they will let you know. Best of luck!
    Last edited by ddessert; 12-29-2017 at 01:03 AM. Reason: Merging posts into one
    March 21, 2011 - Dad diagnosed. Pancreatic Adenocarcinoma on head of pancreas.
    April 2011 - Gemcitabine and radiation for a total of 12 weeks.
    October 14, 2011 - Successful Whipple procedure. Cancer free! Best 5 months of my life!!!
    March 2, 2012 - CT scan and discovery of possible mets to both lungs.
    March 23, 2012 - Biopsy confirmed recurrence.
    May 2, 2012 - Folfiri regimen started. Stopped after 2 treatments due to infection.
    June 2, 2012 - Switched to Xeloda
    Sept. 21, 2012 - No more chemo...treatment not working anymore. Now we wait and pray.
    October 6, 2012 - My dad is now at peace in Heaven, watching over us until we meet again.

    ♥ Forever in my heart! Miss you every day more than words can say! ♥


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