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Thread: sorry everyone

  1. #21
    I'm so sorry to hear this

    Will be praying for Josh's family.

  2. #22
    Administrator Top User ChemoMan's Avatar
    Join Date
    Jun 2008
    Blog Entries
    I am really really going to miss Josh. This hurts

    My heartfelt condolences to Josh's family, stay strong, my thoughts are with you all today.
    Age 62
    Diffuse Large B cell Lymphoma
    Stage 2a Bulky presentation
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof

    Still alive in 2019 !

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  3. #23
    Praying for comfort for his family.

  4. #24
    Senior User
    Join Date
    Feb 2013
    really upsetting news..i was hoping he would get over the swelling and return to the forum to write about how is taking care his garden and lifting weights at the gym again..

  5. #25
    Senior User
    Join Date
    Apr 2012
    Very, very sad to hear this.....Thanks, Josh, for all the love and support you showed all of us on this site, you will be missed! I pray that you are a in a happy place!


  6. #26
    Super Moderator Top User
    Join Date
    May 2011
    That's awful news. Josh was such an inspiration with his 'can do' attitude. Having a chemo infusion then power washing his house and laying 10 yards of mulch.

    Glioblastoma IV, frontal lobe - Dx March 2011. Treated with standard Stupp protocol
    Recurrence August 2016 (at 5 years PFS). Surgery August 2016, rechallenge with TMZ with immunotheraphy (nivolumab)

  7. #27
    Regular User
    Join Date
    Mar 2013
    Many prayers going out to his family..

  8. #28
    Administrator Top User Kermica's Avatar
    Join Date
    Jul 2009
    I am saddened to hear of Josh's passing. His was a valient fight and he was a huge help to many here. My condolences and prayers go out to his family, may he rest inpeace.

    When the world says, "Give up," Hope whispers, "Try it one more time."
    ~Author Unknown

    Age 67
    Follicular lymphoma diagnosed August 08, Stage 1
    2 cycles (20 treatments each) localized radiation to tumor sites. Remission confirmed July 09
    Restaged to Stage 3 May 2010
    Recurrence confirmed May 2010 - Watch and Wait commenced - multiple scans with minimal progression.
    Cutaneous Squamous Cell Carcinoma diagnosed September 2012. Mohs surgical excision 09/2012. Successful, clean edges all around.
    Significant progression detected in PET scan - December 2012
    Biopsy to check for transformation 1/18/2013 - negative for that but full of lymphoma, of course.
    July 2013 - Rescan due to progression shows one tumor (among many) very suspect for transformation, another biopsy 8/12/13.
    August 2013 - No evidence of transformation, 6 courses of B+R commence 8/29 due to "extensive, systemic disease".
    February 2014 - Diagnostic PET scan states: Negative PET scan. Previous noted hypermetabolic cervical, axillary, iliac and inguinal lymphadenopathy has resolved. Doctor confirms full remission.
    June 2014 - started 2 year maintenance Rituxan, 1 infusion every 3 months. Doctor confirms lump under right arm are "suspicious" for recurrent disease, deferring scans for now.
    February 2015 - Doc and I agreed to stop R maintenance as it is depressing my immune system too much.
    June 2015 - Confirm that the beast is back by physical exam, will scan in August after esophageal issues settle down so we can get a clear view.
    August 2015 - physical exam in error, PET/CT shows no evidence of disease. Remission continues well into second year!
    December 2015 - Cardiologist tells me I have plaque buildup growing at an alarming rate. Stent or bypass down the road but not yet...
    March 2016 - new tumor below the jaw so remission is over. Back to active surveillance until treatment is needed.
    June 2016 - C/T scan indicates presence of multiple lesions in iliac chain.
    August 2016 - PET/CT shows multiple areas of lymphoma as expected plus new areas of concern in bowel.
    January 2017 - C/T scan shows significant progression in cervical and inguinal lymph chains, largest tumor is impacting hearing, measures 2.1x4.6 cm. 4 to 8 cycles of R-CVP, 1x3weeks to commence 2/6/17.
    April 2017 - Mid treatment scan shows about 1/3 reduction in multiple tumors. Also shows abdominal aortic aneurysm with peripheral thrombus. Cardiologist changed meds, spoke of need for surgical repair down the road.
    September 2017 - finished 10 rounds of R-CP, V was stopped due to neuropathy in feet. No further treatment planned at this time, at least 10 tumors can be felt which seem to be growing again.
    December 2017 - Biopsy of external iliac node with SUV of 13.1 shows no transformation! However, the FL grade is now 3A instead of Gr 1-2. Will start indefinite protocol using Copanlisib, one of the new targeted therapies. I remain hopeful.
    March 2018 - Copanlisib failed, treatment stopped 3/28. New plan is to go to Dana Farber on 4/16 for case review and treatment recommendation.

    May 2018 - did not qualify for clinical trials at Dana Farber. Tumors need to get larger to be considered. On consultation w/Dr. Armand at DF and my onc, have decided to take a break from cancer treatments. Will have a biopsy of the mass in my sinus discovered in scan at DF and to get the aneurysm repaired as it has developed a potentially catastrophic penetrating ulcer. Surgery scheduled for 7/12.

    September 2018 - biopsy of mass in nose shows transformed DLBCL throughout. Assessing options for this negative development.

    October 2018 - started 6 to 8 cycles of R-CHOP. Goal is to get to full remission to open up other options.

    February/March 2019 - PET shows four hot spots following R-CHOP. referred to Dana Farber for stem cell transplant. Pre testing all good, accepted for Auto Transplant. Will begin inpatient process about April 1.

  9. #29
    Newbie New User
    Join Date
    Aug 2013
    Quote Originally Posted by 4lindsay View Post
    I received word this morning that Josh passed away last night. A request has been made to pray for comfort for his wife and two wonderful kids, his parents and brother. You will be missed Josh!
    Hi everyone, you are right 4Lindsey, My younger brother, Josh, passed last Saturday night about 5pm local time. I wanted to let you know. He appreciated you guys a ton and I know that he loved the community of friends that he had here. Thank you for all of your prayers and notes.

    Josh was quite a unique guy and everything you read about the things he was doing was true. We almost had to tie him down so he could take a break.

    We (the families) recently had a great time during the first week of August together at a cabin. His eye sight diminished a fair amount and he had some confusion but overall it was a great time. He fished, told jokes and kept us entertained. I will miss him like you miss him. He became such a servant to others during the last two years.

    In regards to his tumor, the swelling never fully subsided and it was found to probably be new tumor growth. His eyesight declined about the time you saw his posts stop. He actually was doing all right until last Thursday when he needed better care than what his wife and my parents could provide. He was moved to Hospice on Friday and Passed on Saturday. Just like he wanted. It was quick and painless and we were all there for him.

    Thanks again for being his friends here. He will be missed

    Last edited by Chadman618; 08-20-2013 at 06:47 AM. Reason: Poor grammar, more to write

  10. #30
    Senior User
    Join Date
    Sep 2011
    Thinking of all Josh's family. RIP.
    Diagnosed with grade II oligoastrocytoma after a seizure in July 2011. Resection of approx 98% of tumour (hopefully). IDH1 positive and 1p19q co-deleted. On watch and wait status. No chemo or radio yet. Second round of brain surgery March 2012. Tumour still grade II thankfully.


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