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Thread: What I Need to Know About ED

  1. #1
    Senior User Race's Avatar
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    Dec 2011
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    127

    Sex life

    I had the unfortunate experience of being diagnosed with PC just a month after my wife (of 31 years) asked me for a divorce. We had sex issues, but nothing attributable to the PC. Now, on the other side of divorce and RRP, I have been lucky enough to find a new partner, who has been great in dealing with the ED from the start of our relationship.
    This is just to say, in my case anyway, prostate cancer is not good for your sex life, but it is no worse than the other troubles one might have in a relationship. My sex life is better now than it ever was.
    Diagnosed at age 52.
    PSA in 2000 2.2
    02/24/2011 3.8
    08/24/2011 5.2
    Biopsy on 10/3/2011
    Malignant in 1 of 8 cores. Gleason 3+3=6
    11/15/2011 Open Retropubic Radical Prostatectomy
    Negative Margins
    post - op PSA:
    01/15/2012 undetectable
    07/15/2012 undetectible
    01/10/2013 undetectable
    07/16/2013 undetectable
    01/21/2014 undetectable

  2. #2
    Senior User
    Join Date
    Jan 2013
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    257
    Glad to hear it.
    Biopsy right prostate: Benign tissue
    Biopsy left prostate: Prostatic adenocarcinoma, Gleason score 7 (4+3), tumor involves 2 of 10 cores & 5% of total tissue sampled, Stage T1c, positive for PNI
    TRUS measured prostate volume 19.36 cc - Stage T1c
    66 Pd-103 seeds implanted 3/13
    PSAs: 4.76 5/12 - 4.23 8/12 - 3.98 10/12 - 4.9 2/13 - 2.9 6/13 - 2.7 11/13 - 1.31 3/14 - 1.07 7/14 - 0.69 10/14 - 1.6 3/15 - 2.0 6/15 - 0.64 8/15 - 0.68 4/16 - 0.16 11/16 - 0.12 6/17 - 0.12 6/18

  3. #3
    Experienced User
    Join Date
    May 2013
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    Greetings,

    I am glad to hear it Race. Thanks for sharing..


    Regards,
    Age: 50
    PSA Trend: 2003/1.86, 2004/2.06, 2005/2.12, 2006/2.08, 2007/2.12, 2008/2.62, 2009/3.47, 2010/2.90
    Jan 2011 PSA = 6.95 - Biopsy, 12 cores benign, 1 shows high grade PIN
    October 2011 PSA = 4.53
    October 2012 PSA = 6.85
    April 2013 PSA = 6.64
    April 2013 - Second biopsy, 12 cores, 1 positive for Adenocarcinoma, 5 % involvement, no tumors, Gleason 7 (3+4), Stage T1c
    July 30, 2013 - Had DaVinci Robotic Prostatectomy: Dr. Michael Esposito, New Jersey Center for prostate cancer & urology at Hacksensack University Medical Center
    Pathology Report: Cancer present on both sides but contained within center of prostate capsule, negative margins, Gleason 7 (3+4) remained unchanged
    No issues with incontinence or sexual function.
    Three post surgery PSA's = 0.
    Here is my story

  4. #4
    Senior User
    Join Date
    May 2013
    Posts
    194
    Very good attitude Race! Glad to hear you found someone who understands.

    I am thinking of getting a Penile Implant, but my wife say's it makes no difference to her. Our sex life is great, but I'd still like to be able to get an erection, especially now that I have such great orgasms after the surgery. Post op the orgasms are like they were when I was 20, they curl my toes.
    Age 66,
    Biopsy 2006 neg. 11/07 PSA1.7, 12/08 PSA 2.5,6/10 PSA 3.7, 7/5/11 PSA 4.4, 7/19/11 PSA 4.1, Went on Jayln, 3/12 PSA 1.7, 3/13 PSA 1.1

    5/3/13 Biopsy, (4+3) 15%, (4+3) 40%, (4+3) 60%, (4+4) 15%, & 1 core looking suspicious, out of 12 cores taken.
    CT scan negative, bone scan negative. Stage T2C.

    RRP 06/11/13 Cath. out after 7 days

    Path Report: Prostate wt. 29g.Size 3.5x3x3 cm. Adenocarcinoma, Gleason 4+3=7, proportion involved 15%, dominate tumor size 1.2cm, Margins, negative. Extraprostatic extension: left posterior, right posterior, right base. Seminal vesicle invasion: Not identified, Lympovascular invasion :Indeterminate, Path staging TNM, Primary tumor T3a, No regional lymph node metastasis.

    PSA 8/13/13 <0.1
    PSA 10/23/13 <0.1

  5. #5
    Moderator Top User HighlanderCFH's Avatar
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    Nov 2011
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    What I Need to Know About ED

    MODERATOR'S NOTE: I have been asked to create two more stickies dedicated to ED and incontinence. While I am beginning to fear we are becoming overloaded with stickies (I have to scroll way down now to see the latest regular threads), we might as well go for broke & add two more. And then I think we'll be sticky enough around here.

    The above posts have been transferred from an existing thread.

    Thanks,
    Chuck
    Last edited by HighlanderCFH; 08-27-2013 at 08:26 AM.
    July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA 9/ 2011 = 5.7.
    Local uro DRE revealed significant BPH, no lumps.
    PCa Dx Aug. 2011 age of 61.
    Biopsy DXd adenocarcinoma in 3/20 cores (one 5%, two 20%). T2C.
    Gleason 3+3=6. CT abdomen, bone scan negative.
    DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
    Surgeon was Dr. Matthew Tollefson, who I highly recommend.
    Final pathology shows tumor confined to prostate.
    5 lymph nodes, seminal vesicules, extraprostatic soft tissue all negative.
    1.0 x 0.6 x 0.6 cm mass involving right posterior inferior, right posterior apex & left
    mid posterior prostate. Right posterior apex margin involved by tumor over 0.2 cm length,
    doctor says this is insignificant.
    Prostate 98 grams, tumor 2 grams.
    Catheter out in 7 days. No incontinence, minor dripping for a few weeks.
    Seven annual post-op exams 2012 through 2018: PSA <0.1
    Semi-firm erections without "training wheels," usable erections with 100mg Sildenafil.
    NOTE: ED caused by BPH, not the surgery.

  6. #6
    Once I found out that I joined this "club", (or even after my first biopsy, which was negative) I wish I had realized (and expected) that insurance will not cover more than a handful each month.

    I wish I had immediately asked for an ED Drug such as viagra, filled it each month, and "stockpiled them" for use after my surgery.
    BD: 1959 PSA 4.9 11/2012 (no symptoms)
    Biopsy 12/2012 Negative
    PSA 5.9 05/2013 (still no symptoms)
    Biopsy 6/2013 3+4 (thank goodness for PSA tests)
    1 core positive (upper left), 1 suspicious (lower left) out of 12
    DRE: bump right side T1c; PCA-III = 20 (normal)

    Da Vinci 7/18/2013: Invasive carcinoma involves left lobe of prostate only, extends from left apex to posterior mid region of left lobe Gleason 7/10 (4+3); G4 tumor comprises 75% of invasive carcinoma present
    Estimated total volume of carcinoma in entire prostate gland: 10%
    TNM: T2b NX MX (Stage IIA)

    8/13 11/13 2/14 8/14 2/15 8/15 3/16, 8/16, 3/17,9/17,4/18, 9/18 PSA undetectable
    3/19: .1 (damn), 4/19,6/29 retests: .1 (damn)


    My Story:
    T-Minus-36-Hours-until-da-Vinci...
    Catheter is Out!

  7. #7
    Senior User Race's Avatar
    Join Date
    Dec 2011
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    127
    I am honored to have a sticky from a thread that I started.
    My best advice on dealing with ED is this: be willing to experiment. I'm coming from a relationship that ended that did include sexual problems (not related to ED) and then starting a new relationship fresh with ED as part of the package.
    You need to be able to try things (pumps, pills, shots) and positions and oral and time of day and everything - and be willing to have some of those things not work - then learn what does work. I had the good fortune to find a new partner willing to deal with this with a positive attitude, and I am pretty happy.
    Diagnosed at age 52.
    PSA in 2000 2.2
    02/24/2011 3.8
    08/24/2011 5.2
    Biopsy on 10/3/2011
    Malignant in 1 of 8 cores. Gleason 3+3=6
    11/15/2011 Open Retropubic Radical Prostatectomy
    Negative Margins
    post - op PSA:
    01/15/2012 undetectable
    07/15/2012 undetectible
    01/10/2013 undetectable
    07/16/2013 undetectable
    01/21/2014 undetectable

  8. #8
    Nice thread here about Penile Injections:
    http://www.cancerforums.net/threads/...ile-Injections
    BD: 1959 PSA 4.9 11/2012 (no symptoms)
    Biopsy 12/2012 Negative
    PSA 5.9 05/2013 (still no symptoms)
    Biopsy 6/2013 3+4 (thank goodness for PSA tests)
    1 core positive (upper left), 1 suspicious (lower left) out of 12
    DRE: bump right side T1c; PCA-III = 20 (normal)

    Da Vinci 7/18/2013: Invasive carcinoma involves left lobe of prostate only, extends from left apex to posterior mid region of left lobe Gleason 7/10 (4+3); G4 tumor comprises 75% of invasive carcinoma present
    Estimated total volume of carcinoma in entire prostate gland: 10%
    TNM: T2b NX MX (Stage IIA)

    8/13 11/13 2/14 8/14 2/15 8/15 3/16, 8/16, 3/17,9/17,4/18, 9/18 PSA undetectable
    3/19: .1 (damn), 4/19,6/29 retests: .1 (damn)


    My Story:
    T-Minus-36-Hours-until-da-Vinci...
    Catheter is Out!

  9. #9
    Regular User mariod's Avatar
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    Feb 2013
    Posts
    15
    experimenting, I have been doing that since the 60s...serioulsy though I was always very active sexually until this PC thing. I take Cialis daily and Viagra as a booster, not much happens...Depressing. The worst thing is leakage while trying to get an erection....I wish there was a pill to stop the desires...
    PSA : 4 in may 2011, 11 in december 2012
    Biopsy results February 1st 2013
    16 samples taken 2 positive at 5%
    Gleason 3+3
    Refused Watchful Waiting (thats what we call it in Canada)
    Radical prostatectomy August 15th 2013

  10. #10
    Senior User Bob_R's Avatar
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    Aug 2013
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    212
    Still early days mate, I understand where your head is at but I am 2 months behind you and wishing I could predict what the future holds in that regard. They say it could take 18 months or so to regain what is needed.

    I believe beer will help you with the desires, lots of it take up home brewing, gives you and interest and a result.. I have

 

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