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Thread: For those concerned about Lymphoma and why lymph nodes rise.

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    Administrator Top User Didee's Avatar
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    Jun 2010

    For those concerned about Lymphoma and why lymph nodes rise.

    A thread for those undiagnosed. Especially I have a lump posters

    If you are writing to say that you are worried because you have enlarged lymph nodes or other symptoms related to lymphoma, but you haven't been to a doctor yet, here is a summary of what we are probably going to say to you:

    * Don't panic!
    * Consulting Google will only increase your fears.

    Dr Google can convince people that they are seriously ill when mostly they are not.

    A link to a typical thread.


    THIS, thank goodness, is usually the outcome.


    * You probably don't have lymphoma. There are hundreds of things that can cause enlarged lymph nodes, and cancer is a rather rare one.

    * Don't believe that? Go back through the archives of the Lymphoma forum.Hundreds have posted here, and only a very few of them wrote back to say that they were diagnosed with lymphoma. Sometimes we get 3 or 4 a week who are worried. Most of them who write back say that it was diagnosed as an infection or some other benign cause or others did not bother to post at all so we can assume they did not have Lymphoma either.

    * Unfortunately, we cannot tell you that you definitely do NOT have lymphoma either. We are not doctors, and the ONLY way that lymphoma can be diagnosed is with a biopsy of an affected area. What we can tell you is that you are obviously concerned, so you should seek medical counsel for your own peace of mind.

    * Even if you are diagnosed with some form of lymphoma, it is one of the most treatable/curable forms of cancer, and you will travel down a road that untold thousands of people before you have successfully traversed. So, again, don't panic!

    * In summary, if you are concerned, go see a doctor. If you are not satisfied with how they treat you, see another one. You are the greatest advocate for your own health, as you have the greatest stake in it.

    * Good luck, and if you feel up to it, please keep in touch so that your experience may also help others in a similar situation.

    Causes of Lymphandenopathy.
    Although the finding of lymphadenopathy sometimes raises fears about serious illness, it is, in patients seen in primary care settings, usually a result of benign infectious causes. Most patients can be diagnosed on the basis of a careful history and physical examination. Localized adenopathy should prompt a search for an adjacent precipitating lesion and an examination of other nodal areas to rule out generalized lymphadenopathy. In general, lymph nodes greater than 1 cm in diameter are considered to be abnormal. Supraclavicular nodes are the most worrisome for malignancy. A three- to four-week period of observation is prudent in patients with localized nodes and a benign clinical picture. Generalized adenopathy should always prompt further clinical investigation. When a node biopsy is indicated, excisional biopsy of the most abnormal node will best enable the pathologist to determine a diagnosis. The cause of lymphadenopathy is often obvious: for example, the child who presents with a sore throat, tender cervical nodes and a positive rapid strep test, or the patient who presents with an infection of the hand and axillary lymphadenopathy. In other cases, the diagnosis is less clear. Lymphadenopathy may be the only clinical finding or one of several nonspecific findings, and the discovery of swollen lymph nodes will often raise the specter of serious illness such as lymphoma, acquired immunodeficiency syndrome or metastatic cancer. The physician's task is to efficiently differentiate the few patients with serious illness from the many with self-limited disease. This article reviews the evaluation of patients with a central clinical finding of lymphadenopathy, emphasizing the identification of patients with serious illness.

    The body has approximately 600 lymph nodes, but only those in the submandibular, axillary or inguinal regions may normally be palpable in healthy people.1 Lymphadenopathy refers to nodes that are abnormal in either size, consistency or number. There are various classifications of lymphadenopathy, but a simple and clinically useful system is to classify lymphadenopathy as “generalized” if lymph nodes are enlarged in two or more noncontiguous areas or “localized” if only one area is involved. Distinguishing between localized and generalized lymphadenopathy is important in formulating a differential diagnosis. In primary care patients with unexplained lymphadenopathy, approximately three fourths of patients will present with localized lymphadenopathy and one fourth with generalized lymphadenopathy (Figure 1).2,3

    ......and more follows.


    Why googling your symptoms is not a good idea


    Last edited by Didee; 01-06-2014 at 11:57 PM.
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016


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