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Thread: NHL stage 4 and and the love of my life

  1. #251
    Moderator Top User
    Join Date
    Mar 2010
    Quote Originally Posted by zorro View Post
    Hello everyone, I posted earlier and was on someone's else's post thinking I was on mine. Ooopps. I did add it was mistake and am sorry. Oh well, it happens so to speak
    Did you read chemoman's advice about worrying and anxiety?

    I used the magic button and sorted this for you, posts deleted, as for rchop working, the are lots of us about now who have benefitted from this regime in mid October it will be 10 years since my treatment ended, so fingers crossed thats it all sorted.
    NHL DLBC aggressive stage 4B advanced
    diagnosed april 09
    after 8 rchop and a couple of delays, in remission
    some long term side effects to manage post treatment
    some blips and investigations on the journey but now
    22nd oct 2014 discharged no more hospital visits

    we are all on a roller coaster ride, riding blind never knowing where the highs and lows are.

  2. #252
    Senior User
    Join Date
    Oct 2013
    Thank you Po and John. Updated the signature and I am doing pretty good with anxiety. I would say the gym is the best medicine for us and just getting out and enjoying some fun like riding the dunes in Oregon so if we are on watch and wait we will fill in the wait for fun.
    Age 61
    diagnosed March 20 2013
    High Grade Non-Hodgkin Diffuse B-Cell Lymphoma w/some Burkitt like cells involved
    PET showed spots on liver and enlarged spleen w/hot spots all over Lymp areas
    Treatment started Martch 29 2013 R-ECHOP 6 rounds (1 week on 2 wks home)
    Spinal tap w/chemo for insuarnce (clean spinal fluid)
    neulasta shot after R-ECHop treatment
    June 29 PET clean
    Sepr 12 PET clean
    Nov 11 2013 melanoma removed from back all clear margins 7 inch cut
    Nov 25 confirmed MRSA infection and cleared up with bactrim
    Dec 16 still waiting for wound to close and heal (on his lat and he works out)
    wound from melanoma healed and infection gone, great war scar now
    Cat Scan Dec19th scan was clean
    Feb 20th Ct came back NED "NO ENEMY DETECTED" WHEW!!!
    May 20th 2014 NO ENEMY DETECTED!!!!!!!!! CT clean
    Aug 12 Bloodwork came back as doing what it should be doing. Cat scan in Nov.
    Oct 08 2014 tested positive for hyperthyroid. testing this week to find out more.


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