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Thread: Finacial Woes of Cancer Treatment?

  1. #1

    Arrow Finacial Woes of Cancer Treatment?

    My fiance and I are just starting this, um, journey... And of course, financial strain is a concern for us.

    I do have Medicare, which is a lifesaver, BUT... obviously we'll still have a lot of financial burden.

    Any suggestions, experiences, etc?
    Dx: 11/17/13 Non-Hodgkin B Cell Follicular Lymphoma
    Dx: 2012 Hashimotos Autoimmune Thyroiditis
    Dx: 2012 Diabetes II (Insulin Dependent)

  2. #2
    Top User
    Join Date
    Jan 2013
    Posts
    1,492
    I am in the Houston area and just called for a supplement policy to start the first of the year. My son will be on medicare at that time---permanent disability. I asked if it would be accepted at MD Anderson and was told that supplemental policies were----but no advantage policies were accepted. I went with a total policy that will pay the whole 20% not covered by medicare and it was around $200 a month. If you want I can give you the company I called. Best of luck.

    Amanda
    Caregiver to son, 32 , 5/18/2011 Stage IV
    Sigmoid colectomy , liver biopsy 5/18/2011
    6cm sigmoid tumor, low grade (well-to-mod. differentiated)
    6 of 33 lymph nodes +
    FOLFOX /Avastin 6/2011-8/2011
    Rt hepatectomy on 9/20/2011---70%
    2012
    FOLFOX /Avastin 4 cycles 1/31 stopped-low platelets
    3/5 CT clear
    4/ PET scan showed peritoneal mets
    4/24 splenic embolization for low platelets
    FOLFIRI/ Avastin 5/12-8/12
    Consult for HIPEC 8/12 denied---tumors too many, possibly in ureter.
    5FU/ Avastin 8/2012-2/2013
    12/5/12 scan tumors stable
    12/12 aranespt
    2013
    3/5 tumor progression in abdomin
    Restart FOLFIRI/ Avastin with lower dose of Irinotecan 3/11-3/25
    nuelasta shots
    ER - bowel obstruction 4/4
    Port removed 4/12
    Port replaced 5/9
    ER 30 hrs
    Erbitux in, Irinotecan lowered 5/20 & 6/17
    9/17scan indicates stable
    9/18-27 & 10/7-11 small bowel obst.
    Erbitux & Irinotecan 11/5, 12/2
    Bowel obst. 12/31
    2014
    1/8 urether stent
    1/17 Hospice
    3/27 started his heavenly journey

  3. #3
    Thanks, that would be great actually!
    Dx: 11/17/13 Non-Hodgkin B Cell Follicular Lymphoma
    Dx: 2012 Hashimotos Autoimmune Thyroiditis
    Dx: 2012 Diabetes II (Insulin Dependent)

  4. #4
    Top User
    Join Date
    Jan 2013
    Posts
    1,492
    Sent you a PM with the information.

    Amanda
    Caregiver to son, 32 , 5/18/2011 Stage IV
    Sigmoid colectomy , liver biopsy 5/18/2011
    6cm sigmoid tumor, low grade (well-to-mod. differentiated)
    6 of 33 lymph nodes +
    FOLFOX /Avastin 6/2011-8/2011
    Rt hepatectomy on 9/20/2011---70%
    2012
    FOLFOX /Avastin 4 cycles 1/31 stopped-low platelets
    3/5 CT clear
    4/ PET scan showed peritoneal mets
    4/24 splenic embolization for low platelets
    FOLFIRI/ Avastin 5/12-8/12
    Consult for HIPEC 8/12 denied---tumors too many, possibly in ureter.
    5FU/ Avastin 8/2012-2/2013
    12/5/12 scan tumors stable
    12/12 aranespt
    2013
    3/5 tumor progression in abdomin
    Restart FOLFIRI/ Avastin with lower dose of Irinotecan 3/11-3/25
    nuelasta shots
    ER - bowel obstruction 4/4
    Port removed 4/12
    Port replaced 5/9
    ER 30 hrs
    Erbitux in, Irinotecan lowered 5/20 & 6/17
    9/17scan indicates stable
    9/18-27 & 10/7-11 small bowel obst.
    Erbitux & Irinotecan 11/5, 12/2
    Bowel obst. 12/31
    2014
    1/8 urether stent
    1/17 Hospice
    3/27 started his heavenly journey

  5. #5
    Quote Originally Posted by jessabeth1980 View Post
    My fiance and I are just starting this, um, journey... And of course, financial strain is a concern for us.

    I do have Medicare, which is a lifesaver, BUT... obviously we'll still have a lot of financial burden.

    Any suggestions, experiences, etc?
    www.benefitscheckup.org for a variety of assistance, including links to pharmaceutical co's patient assistance programs and public assistance programs in addition to Medicare. For instance, some people are eligible for both Medicare and Medicaid.

    Also look into the treatment facility's financial assistance programs, based on your income in relationship to federal poverty level, for that portion not covered by Medicare. That info is likely available on their website.

    If you're over 60, or are over 18 with a disability, contact the Area Agency on Aging in your area for referrals and assistance. SHIBA and SMP are also good touchpoints.

    "Obamacare" is for primary insurance; where you already have Medicare, you have primary coverage and do not need to look for anything in the Affordable Healthcare Marketplace. If it turns out that you need to purchase coverage for the portion not covered by Medicare, you're looking for something like Amanda suggests for supplemental/secondary coverage.

    The hospital's billing dept is probably not your friend, but their social workers may well prove to be your best friends.

    Best of luck to you,
    MM
    Caregiver to my significant other.
    May 2008: transrectal procedure for Stage I CRC. Age 59
    April 2013: Finally "sick enough" to go to the Dr. CAT scan.
    May 2013: PET scan, surgical biopsy. DX'd terminal, inoperable, recurrent, metastatic, hypermetabolic StageIV CRC w/mets to liver & lymph node in neck
    June 2013: Port placement. Oxaliplatin, Erbitux, Xeloda
    August 2013: PET scan; NED
    September 2013: surgical repair of inguinal hernia
    November 2013: PET scan; NED
    January 2014: Changed out oxi for Irinotecan; continue Erbitux, Xeloda
    March 2014: PET scan; NED

 

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