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Thread: Legitimate symptoms.. please take a look :< Im not usually ever worried..

  1. #1
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    Legitimate symptoms.. please take a look :< Im not usually ever worried..

    Hello.
    Recently I've had nausea attack. they go away rather quick but come out of nothing. Also feel like vomiting when that happens. Today Ive been writing simple words wrong and feel a bit confused, like when I try to grab my phone on the left side of my desk and it was in my jacket and simple things like that.

    And I suddenly feel like I have fever, but Im shaking at the same time and my hands feel cold, but my face very warm. The dizzyness wasnt the kind where I stand up and it goes a bit black, it was just simple dizzyness that make me sit completely still to not get nauseous and I couldnt think really straight.

    Ive had a 1,5 cm lymph node a looooong time. 3 months since I had a cold, and I think ive had that enlarged lymph node for a long time, but didnt give it a second thought until I got these new sensations of nausea and dizzyness I didnt recognize.
    You know how you feel nauseous in different ways, and dizzy too?

    I have an incredible need for sleep. Maybe just .. i just wrote 3 weeks instead of what I was supposed to write. 3 hours. 3 hours after I wake up, I feel like its evening and I have to sleep again. Ive had this sleep need for a long time. Usually I sleep 10 hours though. But if I get up at 7 am, I already want to end it and sleep at 2-4pm.

    I just had a blood test today, and my doctor scheduled me for a biopsy, but it might have queue time. I wonder if I should go see a doctor asap, because of how i feel right now, writing this.

    What do you think? I feel otherwise from this fine. And I feel weak but at the same time strong. I can walk 50 stairs and just be out of breath and recover in some mins and then eat and thats okay if im not under a nausea attack or am dizzy. I feel Im getting more and more symptoms leading me closer and closer to the diagnosis..

  2. #2
    Administrator Top User Kermica's Avatar
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    I just had a blood test today, and my doctor scheduled me for a biopsy, but it might have queue time. I wonder if I should go see a doctor asap, because of how i feel right now, writing this.
    fiddlesticks, welcome. I think you are already doing the right things and there is no need at this point to "throw the baby out with the bathwater" by rushing off to see another doc. Be sure you are listing all symptoms and are sharing all of your concerns with the doctor you are seeing now. Go ahead and get the biopsy done, as well. From your description, it sounds like there is something going on though I don't have a bunch of alarm bells ringing based on what you wrote. I am not sure what kind of cancer you are suspecting but. for now, stay off the internet and let this doc do his job. If you are not satisfied when he/she is completed that is the time to consider a second opinion or a different doctor.

    Good luck with everything and hang in there.

    Good health,

    kermica
    When the world says, "Give up," Hope whispers, "Try it one more time."
    ~Author Unknown

    Age 67
    Follicular lymphoma diagnosed August 08, Stage 1
    2 cycles (20 treatments each) localized radiation to tumor sites. Remission confirmed July 09
    Restaged to Stage 3 May 2010
    Recurrence confirmed May 2010 - Watch and Wait commenced - multiple scans with minimal progression.
    Cutaneous Squamous Cell Carcinoma diagnosed September 2012. Mohs surgical excision 09/2012. Successful, clean edges all around.
    Significant progression detected in PET scan - December 2012
    Biopsy to check for transformation 1/18/2013 - negative for that but full of lymphoma, of course.
    July 2013 - Rescan due to progression shows one tumor (among many) very suspect for transformation, another biopsy 8/12/13.
    August 2013 - No evidence of transformation, 6 courses of B+R commence 8/29 due to "extensive, systemic disease".
    February 2014 - Diagnostic PET scan states: Negative PET scan. Previous noted hypermetabolic cervical, axillary, iliac and inguinal lymphadenopathy has resolved. Doctor confirms full remission.
    June 2014 - started 2 year maintenance Rituxan, 1 infusion every 3 months. Doctor confirms lump under right arm are "suspicious" for recurrent disease, deferring scans for now.
    February 2015 - Doc and I agreed to stop R maintenance as it is depressing my immune system too much.
    June 2015 - Confirm that the beast is back by physical exam, will scan in August after esophageal issues settle down so we can get a clear view.
    August 2015 - physical exam in error, PET/CT shows no evidence of disease. Remission continues well into second year!
    December 2015 - Cardiologist tells me I have plaque buildup growing at an alarming rate. Stent or bypass down the road but not yet...
    March 2016 - new tumor below the jaw so remission is over. Back to active surveillance until treatment is needed.
    June 2016 - C/T scan indicates presence of multiple lesions in iliac chain.
    August 2016 - PET/CT shows multiple areas of lymphoma as expected plus new areas of concern in bowel.
    January 2017 - C/T scan shows significant progression in cervical and inguinal lymph chains, largest tumor is impacting hearing, measures 2.1x4.6 cm. 4 to 8 cycles of R-CVP, 1x3weeks to commence 2/6/17.
    April 2017 - Mid treatment scan shows about 1/3 reduction in multiple tumors. Also shows abdominal aortic aneurysm with peripheral thrombus. Cardiologist changed meds, spoke of need for surgical repair down the road.
    September 2017 - finished 10 rounds of R-CP, V was stopped due to neuropathy in feet. No further treatment planned at this time, at least 10 tumors can be felt which seem to be growing again.
    December 2017 - Biopsy of external iliac node with SUV of 13.1 shows no transformation! However, the FL grade is now 3A instead of Gr 1-2. Will start indefinite protocol using Copanlisib, one of the new targeted therapies. I remain hopeful.
    March 2018 - Copanlisib failed, treatment stopped 3/28. New plan is to go to Dana Farber on 4/16 for case review and treatment recommendation.

    May 2018 - did not qualify for clinical trials at Dana Farber. Tumors need to get larger to be considered. On consultation w/Dr. Armand at DF and my onc, have decided to take a break from cancer treatments. Will have a biopsy of the mass in my sinus discovered in scan at DF and to get the aneurysm repaired as it has developed a potentially catastrophic penetrating ulcer. Surgery scheduled for 7/12.

    September 2018 - biopsy of mass in nose shows transformed DLBCL throughout. Assessing options for this negative development.

    October 2018 - started 6 to 8 cycles of R-CHOP. Goal is to get to full remission to open up other options.

    February/March 2019 - PET shows four hot spots following R-CHOP. referred to Dana Farber for stem cell transplant. Pre testing all good, accepted for Auto Transplant. Will begin inpatient process about April 1.

  3. #3
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    Quote Originally Posted by Kermica View Post
    fiddlesticks, welcome. I think you are already doing the right things and there is no need at this point to "throw the baby out with the bathwater" by rushing off to see another doc. Be sure you are listing all symptoms and are sharing all of your concerns with the doctor you are seeing now. Go ahead and get the biopsy done, as well. From your description, it sounds like there is something going on though I don't have a bunch of alarm bells ringing based on what you wrote. I am not sure what kind of cancer you are suspecting but. for now, stay off the internet and let this doc do his job. If you are not satisfied when he/she is completed that is the time to consider a second opinion or a different doctor.

    Good luck with everything and hang in there.

    Good health,

    kermica

    Thank you for the answer. I hope the fact that I have a good appetite and not usually fever will mean that it is okay, and something else. I do live in good hope and I dont spend much time worrying, its just when I get new symptoms I have never ever felt before. I am looking forward to finding out if there is something wrong. If this turns out to be something else and I am lucky, I am glad this opened my eyes to the seriousness of cancer, and to eat healthy and get nutrients I need, and keep out crap I dont need. I have started juicing, and preparing without worrying, because I do feel there is a 50/50 shot, or atleast a slight, but big enough shot there is something serious.

    Can I ask you to explain the dizzyness/nausea(if you had nausea) you experienced if you did, with your lymphoma?

  4. #4
    Administrator Top User Kermica's Avatar
    Join Date
    Jul 2009
    Posts
    6,589
    fiddlesticks, I did not have dizzyness or nausea issues prior to my diagnosis. Neither is a typical symptom and the only really sure way to diagnose the disease is to have a full excisional biopsy of a suspect lymph node. I am not a doctor, of course, so my input is worth about what you are paying for it but I don't see any reason to suspect lymphoma in what you have described.

    Good health,

    kermica
    When the world says, "Give up," Hope whispers, "Try it one more time."
    ~Author Unknown

    Age 67
    Follicular lymphoma diagnosed August 08, Stage 1
    2 cycles (20 treatments each) localized radiation to tumor sites. Remission confirmed July 09
    Restaged to Stage 3 May 2010
    Recurrence confirmed May 2010 - Watch and Wait commenced - multiple scans with minimal progression.
    Cutaneous Squamous Cell Carcinoma diagnosed September 2012. Mohs surgical excision 09/2012. Successful, clean edges all around.
    Significant progression detected in PET scan - December 2012
    Biopsy to check for transformation 1/18/2013 - negative for that but full of lymphoma, of course.
    July 2013 - Rescan due to progression shows one tumor (among many) very suspect for transformation, another biopsy 8/12/13.
    August 2013 - No evidence of transformation, 6 courses of B+R commence 8/29 due to "extensive, systemic disease".
    February 2014 - Diagnostic PET scan states: Negative PET scan. Previous noted hypermetabolic cervical, axillary, iliac and inguinal lymphadenopathy has resolved. Doctor confirms full remission.
    June 2014 - started 2 year maintenance Rituxan, 1 infusion every 3 months. Doctor confirms lump under right arm are "suspicious" for recurrent disease, deferring scans for now.
    February 2015 - Doc and I agreed to stop R maintenance as it is depressing my immune system too much.
    June 2015 - Confirm that the beast is back by physical exam, will scan in August after esophageal issues settle down so we can get a clear view.
    August 2015 - physical exam in error, PET/CT shows no evidence of disease. Remission continues well into second year!
    December 2015 - Cardiologist tells me I have plaque buildup growing at an alarming rate. Stent or bypass down the road but not yet...
    March 2016 - new tumor below the jaw so remission is over. Back to active surveillance until treatment is needed.
    June 2016 - C/T scan indicates presence of multiple lesions in iliac chain.
    August 2016 - PET/CT shows multiple areas of lymphoma as expected plus new areas of concern in bowel.
    January 2017 - C/T scan shows significant progression in cervical and inguinal lymph chains, largest tumor is impacting hearing, measures 2.1x4.6 cm. 4 to 8 cycles of R-CVP, 1x3weeks to commence 2/6/17.
    April 2017 - Mid treatment scan shows about 1/3 reduction in multiple tumors. Also shows abdominal aortic aneurysm with peripheral thrombus. Cardiologist changed meds, spoke of need for surgical repair down the road.
    September 2017 - finished 10 rounds of R-CP, V was stopped due to neuropathy in feet. No further treatment planned at this time, at least 10 tumors can be felt which seem to be growing again.
    December 2017 - Biopsy of external iliac node with SUV of 13.1 shows no transformation! However, the FL grade is now 3A instead of Gr 1-2. Will start indefinite protocol using Copanlisib, one of the new targeted therapies. I remain hopeful.
    March 2018 - Copanlisib failed, treatment stopped 3/28. New plan is to go to Dana Farber on 4/16 for case review and treatment recommendation.

    May 2018 - did not qualify for clinical trials at Dana Farber. Tumors need to get larger to be considered. On consultation w/Dr. Armand at DF and my onc, have decided to take a break from cancer treatments. Will have a biopsy of the mass in my sinus discovered in scan at DF and to get the aneurysm repaired as it has developed a potentially catastrophic penetrating ulcer. Surgery scheduled for 7/12.

    September 2018 - biopsy of mass in nose shows transformed DLBCL throughout. Assessing options for this negative development.

    October 2018 - started 6 to 8 cycles of R-CHOP. Goal is to get to full remission to open up other options.

    February/March 2019 - PET shows four hot spots following R-CHOP. referred to Dana Farber for stem cell transplant. Pre testing all good, accepted for Auto Transplant. Will begin inpatient process about April 1.

  5. #5
    Newbie New User
    Join Date
    Jan 2014
    Posts
    3
    I went back to the doctor and she ordered a biopsy. The date I was is a long time away. 3 weeks. And when the lymph note was measured two-three weeks ago it was 1,5 cm. It is now 2,2cm.. Do they handle biopsy queue wait after condition or just order? If I have cancer, I want to know as soon as possible so I can get use of the time I have left in that case. I also have headaches all the time now, and it truly feels like my body is not doing good even though my diet is very good nowadays. How long does biopsy answers take approx?

  6. #6
    Administrator Top User Didee's Avatar
    Join Date
    Jun 2010
    Posts
    11,461
    Oh for heaven's sake. Calm down. You have yourself dead and buried.
    I gather you are having a node removed to test for Lymphoma? A 3 week wait is just fine. Result times vary depending where you live and how busy the labs are.

    Good luck. If you get a cancer diagnosis we will be here for you but I have no alarm bells ringing either except maybe for anxiety.
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016

 

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