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Thread: multiple myeloma relapsed - treat with Velcade need your advise

  1. #1
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    Feb 2014
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    multiple myeloma relapsed - treat with Velcade need your advise

    Hello

    My Mom is 73, diagnosed multiple myeloma in 2014.
    she was treated with:
    V.A.D + steroid
    + radiation spinal column )D2
    after that she got Thalidomide + steroid for 5 years and aredia for 3 years.
    She suffers from neuropathy. Osteoporosis and Hypothyroidism.
    After that remission for 5 years

    last month they did blood test & CT pet and found that multiple myeloma is relapsed.
    she must start treatment immediately.
    The want to give her Velcade injections in two weeks - 4 injections.

    I would like your advise:
    1. do you think Velcade is the right one for her? We heard there are new treatments: Kyprolis, Carfilzomibe do you have any idea what we need to ask the doctors?
    2. any one has a similar story that can tell us some tips?
    thank you in advanced
    Nana

  2. #2
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    Mar 2014
    Location
    North Reading, Ma
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    I have just turned 62. in 2010 I was diagnosed with MM. They put me on Velcade and dex which worked extremely well fortunately. I went thru 15 weeks if IV velcade and stopped because of neuropathy. I am told that now they can do velcade subcutaneously (injection) and that the chances of neuropathy is greatly reduced. Neuropathy itself can really be a big deal. I lost 20 pound in 6 weeks until I got some meds for it. I still take some now.

  3. #3
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    May 2014
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    Best medicine was velcade+dexa40mg

    cal if any doubts 09948491585
    Last edited by ravi_mjcet; 05-10-2014 at 11:54 AM.

  4. #4
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    The doc would know best. There are several options. Revlimid is a pill. I believe Carfizlomid is IV and does not cause neuropathy.


    Quote Originally Posted by hilitli View Post
    Hello

    My Mom is 73, diagnosed multiple myeloma in 2014.
    she was treated with:
    V.A.D + steroid
    + radiation spinal column )D2
    after that she got Thalidomide + steroid for 5 years and aredia for 3 years.
    She suffers from neuropathy. Osteoporosis and Hypothyroidism.
    After that remission for 5 years

    last month they did blood test & CT pet and found that multiple myeloma is relapsed.
    she must start treatment immediately.
    The want to give her Velcade injections in two weeks - 4 injections.

    I would like your advise:
    1. do you think Velcade is the right one for her? We heard there are new treatments: Kyprolis, Carfilzomibe do you have any idea what we need to ask the doctors?
    2. any one has a similar story that can tell us some tips?
    thank you in advanced
    Nana

  5. #5
    Newbie New User
    Join Date
    Mar 2015
    Posts
    4
    My husband was on Revlimid and it caused severe anemia. Needed blood transfusions every week. On Pomalyst now and doing ok. As ok as you can be with MM.

 

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