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Thread: Dexamethasone (Decadron) - advice?

  1. #1

    Dexamethasone (Decadron) - advice?

    There is the possibility my husband has mets to the brain. Dexamethasone has been recommended, to aid in the resulting confusion and general weakness. My husband is now nearly bedridden.

    Any advice, comments, or experiences you could share, prior to making the decision to start on that drug?

    Thanks!
    Tarceva hints in this thread.

    Hospice - a support thread here .

  2. #2
    Super Moderator Top User
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    Hi Spouse,

    My Dad was put on dex when he started radiation on brain met. When we later weaned him off he was so frustrated with his lack of energy and appetite he talked to his doctors about going back on them. They agreed he could stay on a low dose for as long as he wanted to. As he was terminal at that point, anything that improved his quality of life was done. God bless

    Irish
    Irish,
    Caregiver to my Dad, who was diagnosed in June 2010 with Stage 1V NSCLC with single met to brain,
    He sadly lost his battle in August 2010 and we miss his smiling Irish blue eyes terribly.
    My Dad's story:
    http://www.cancerforums.net/threads/...th-how-he-died.

  3. #3
    Administrator Top User ChemoMan's Avatar
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    The crew in the brain cancer forum are well versed with Dex
    Age 62
    Diffuse Large B cell Lymphoma
    Stage 2a Bulky presentation
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    Still alive in 2019 !

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  4. #4
    Administrator Top User ChemoMan's Avatar
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    Spouse I have copied your post to the brain tumor forum. look there for replies as well as here.
    Age 62
    Diffuse Large B cell Lymphoma
    Stage 2a Bulky presentation
    Finished six cycles of R chop 21 26th May 2008
    Officially in remission 9th July 2008
    Remission reconfirmed 1st October 2008
    Remission reconfirmed 17th June 2009
    Remission reconfirmed 7th June 2010
    Remission reconfirmed 6th July 2011

    NED AND DECLARED CURED on the 2/01/2013

    No more scheduled visits to the Prof
    http://cancerforums.net/viewtopic.php?t=9620

    Still alive in 2019 !

    RULE NUMBER 1.....Don't Panic
    RULE NUMBER 2..... Don't forget rule Number 1

    Great moments often catch us unaware-beautifully wrapped in what others may consider a small one.

    I may not have gone where I intended to go,
    but I think I have ended up where I needed to be.

  5. #5
    Quote Originally Posted by irish View Post
    When we later weaned him off he was so frustrated with his lack of energy and appetite he talked to his doctors about going back on them. They agreed he could stay on a low dose for as long as he wanted to. As he was terminal at that point, anything that improved his quality of life was done.
    More energy .... better appetite .. sounds great! But it's the negative potentials that have me wondering if its a good choice or not.
    Tarceva hints in this thread.

    Hospice - a support thread here .

  6. #6
    Super Moderator Top User
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    You're right Spouse, for my Dad the biggest downside was losing all the muscle strength in his legs. Although we didn't realize it at the time that it was caused by the steroids. We thought it was weakness caused disease progression. He had no other side effects from the steroids although some people can become aggressive on them. We saw no sign of that with my Dad and he did do much better when he was put back on a low dose.

    Irish
    Irish,
    Caregiver to my Dad, who was diagnosed in June 2010 with Stage 1V NSCLC with single met to brain,
    He sadly lost his battle in August 2010 and we miss his smiling Irish blue eyes terribly.
    My Dad's story:
    http://www.cancerforums.net/threads/...th-how-he-died.

  7. #7
    Administrator Top User lisa1962's Avatar
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    Spouse,

    I have followed your posts regarding your dear husband and have found your many responses and support for others very helpful and endearing. You haven't posted in awhile and I know your lasts posts were about your husband in hospice care.

    I just want you to know I and I am sure many others here, are thinking about you.

    Strength and comfort to you,

    Lisa

  8. #8
    Newbie Regular User BOBSS396's Avatar
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    Jul 2014
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    My wife Barbara had it right after her chemo treatments, it was injected into her chemo port a few times I was there with her. It was supposed to increase her appetite somewhat, but she was eating little in her last 2 months. She did have the swelling of her feet and ankles that goes with it. I think it did improve her overall condition a few times following chemo.

 

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