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Thread: Bleeding

  1. #1
    Newbie New User
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    Bleeding

    Hi, I'm new here. Basically I'm worried and scared. I'm 39, active, been eating healthy all my life, but now and have been experiencing bright red blood in my stool for at least a couple of months.... not exactly sure if it was longer than that because I wasn't really looking, until I had a cramps one day. The cramps went away within a week, but the bleeding has been there since. Liver, pancreas, kidney blood tests normal, H Pylori neg, and no hemrrhoids, and no pain when passing stool. My colonoscopy is scheduled next week. Scared of what is causing the bleeding. Can't exactly hope it's nothing, because obviously presence of blood means something.... Just what are the chances it could mean anything other than cancer?

  2. #2
    Moderator Top User Fourlegsgood's Avatar
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    Scared39

    Firstly, you are doing exactly the right thing in getting checked out and having a colonoscopy. Of course you are worried, that is only natural, but there really are many many other more likely reasons for the bleeding. In the worst case at least you will have discovered it and be able to have it treated. Colon and rectal cancers are usually very slow growing and respond well to treatment.

    As you do not yet have a diagnosis I am moving your thread to the Worried About Possible Cancer part of the forum so you can get the best support from the forum community. Please do let us know how you get on with the colonoscopy.

    Nick
    Age 1/2 way to 120 plus 1. Symptom of blood in stools May 2011. Colonoscopy June 2011 confirmed rectal cancer. CT scan June 2011 showed no spread to other organs. Anterior resection July 2011 plus 50% bowel removed due to thickening observed during operation. Biopsy confirmed stage 2 in rectum only. Completed 8 cycles of precautionary capecitabine (4600mg Xeloda). Returned to horse riding 6 weeks post op, jumping 2weeks later and first competition 2 weeks after that. July 2012 - CT scan clear. June 2014 - CT scan clear. December 2014 - Colonoscopy clear. July 2017 - 6 year CT scan clear.

  3. #3
    Super Moderator Top User Hope2012's Avatar
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    Hello Scared,

    I know how worrisome it can be, but please know that that could happen for a variety of reasons, the least common being cancer.

    - hemorrhoids
    - anal fissure
    - anal abscess or fistula
    - diverticulosis/diverticulitis
    - inflammatory bowel disease (IBD)
    - ulcers
    - large polyps

    Let us know how your colonoscopy goes next week. I just had one a few months ago (I also had bleeding) and found out it was hemorrhoids. Stay positive and good luck!
    This dark night shall end and the sun will rise again...
    Believe

    - Dad diagnosed in 1992 with primary bladder cancer
    - bladder removed and new one made from resected intestine
    - chemotherapy regimen started
    - mets to large intestines discovered in 1993...more chemo...tumors disappearing
    - complained of neck pain Dec 1994. Mets to brainstem confirmed
    - passed away Feb 24, 1995

  4. #4
    Super Moderator Top User po18guy's Avatar
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    Hope2012 has it right. Think about the number of times in your life when you had bleeding, beginning with childhood. How many times was it cancer? Zero. While that may have been external bleeding (with an obvious cause) this is internal bleeding, which certainly can be serious, but the worry comes from not knowing the cause. External bleeding is easy to explain, while internal takes more examination. If the anxiety is horrible, I would ask for some pre-meds to help you cope. I recently had low lymphocytes, undersized red blood cells and low iron. My hematologist was concerned about internal bleeding, suggesting a colonoscopy as screening for colon cancer. Oh. Well, as it turns out, no colon cancer or polyps. It was the acid-reducer I was taking which affected my body's uptake of iron. Bottom line: on the slight chance that it is cancer, you need to know now and take action now.
    05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
    07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
    08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
    02/09 2) Relapse.
    03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
    07/13 3) Relapse, 4) Suspected Mutation.
    08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
    09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
    10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
    10/25/14 Clinical trial of Alisertib/Failed - Progression.
    01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
    02/24/15 Pralatrexate/Failed - Progression. 04/17/15
    04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
    04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
    06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
    BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
    07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
    07/16/15 Total Body Irradiation.
    07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
    07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
    07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
    08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
    08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
    09/21/15 Acute skin Graft versus Host Disease arrives.
    DEXA scan reveals Osteoporosis.
    09/26/-11/03/15 Prednisone to control skin GvHD.
    11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
    05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
    09/16/16 Three skin punch biopsies.
    11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
    12/16 Type II Diabetes, Hypertension - both treatment-related.
    05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
    05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
    06/17 Trying various antibiotics in a search for tolerable prophylaxis.
    08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
    12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
    01/18 Consented for Kadmon clinical trial.
    03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
    09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
    10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
    11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.

    To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
    Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.

    Believing in the redemptive value of suffering makes all the difference.

  5. #5
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    Colonoscopy

    So I had my colonoscopy today. Good news, no cancer, nor any polyps. What I do appear to have is colitis in the end of my colon. That is most likely why it's been bleeding everyday. So, the GI doctor prescribed a suppository that I'm supposed to take for 8 weeks. Then follow up with her to see if the bleeding has stopped. Hopefully it will have by then. She also said the causes for it can be autoimmune, even stress related. No one knows for sure. For me, I think it was stress related because all this first started with a presentation of mucus, then blood, a few weeks before my final exams.

  6. #6
    Super Moderator Top User Hope2012's Avatar
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    Great news Scared! Colitis can be controlled with proper diet and medicine. I'm happy for you that it wasn't cancer. Hopefully you can breathe a little easier now.
    This dark night shall end and the sun will rise again...
    Believe

    - Dad diagnosed in 1992 with primary bladder cancer
    - bladder removed and new one made from resected intestine
    - chemotherapy regimen started
    - mets to large intestines discovered in 1993...more chemo...tumors disappearing
    - complained of neck pain Dec 1994. Mets to brainstem confirmed
    - passed away Feb 24, 1995

 

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