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Thread: suspicion of tcc of the bladder

  1. #1
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    suspicion of tcc of the bladder

    I has been a NH Lymphoma patent for at least 22 years and I was treated with rads in both of my groins (one groin in 1992 and the other groin in 2007). Now they see a small exophytic mass on my bladder and I am referred to a urologist for biopsy. This mass did not grow from 6 months yearlier scan and at that time they thought it another lymph node as I had a lot of them in my abdomen at that time. Now Iam in treatment for lymphoma and almost all lymph nodes are gone and this mass did not. They suspect tcc. I know nothing about tcc. Could you explain to me if it exophytic does it mean muscle invasive and stage 4? does it mean outside the bladder? What should i expect in terms of treatment? My lymphoma treatment should finish in 3 months. Its a different chemo but it kills my lymphocites and my immune system is compromised. Any input is very appreciated.
    66y female, dx @43 in 1992 - DLBCL (aggressive lymphoma) CHOP x 6, rads x 20. 2007- Follicular Lymphoma (FL) grade1-2, stage 2, rads x 20. 2013 relapsed FL, grade 1-2, stage 4. R-bendamustine x 6. Finished Jan 2015. Rituxan maintenance till 2017. 11/2014 bladder cancer, surgery end of Jan 2015.

  2. #2
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    Today I had a cystoscopy and it confirmed TCC. So now I have two cancers to fight. I finish my lymphoma treatment in 3 months, then I will do the surgery on the bladder. I hope it's superficial non-invasive. The biopsy will be done after the surgery.
    66y female, dx @43 in 1992 - DLBCL (aggressive lymphoma) CHOP x 6, rads x 20. 2007- Follicular Lymphoma (FL) grade1-2, stage 2, rads x 20. 2013 relapsed FL, grade 1-2, stage 4. R-bendamustine x 6. Finished Jan 2015. Rituxan maintenance till 2017. 11/2014 bladder cancer, surgery end of Jan 2015.

  3. #3
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    It started in January of 2013 when I noticed a blood clot in my urine. Next day I went to my doc and I had a urine test that did not show any blood or cancer cells in the urine. I had ct scans for lymphoma once a year from 2007. On the last ct it was noticed that there was some mass in my bladder that did not shrink as the other lymphoma masses. So almost 2 years later after my first blood clot in the urine I got my diagnosis.
    66y female, dx @43 in 1992 - DLBCL (aggressive lymphoma) CHOP x 6, rads x 20. 2007- Follicular Lymphoma (FL) grade1-2, stage 2, rads x 20. 2013 relapsed FL, grade 1-2, stage 4. R-bendamustine x 6. Finished Jan 2015. Rituxan maintenance till 2017. 11/2014 bladder cancer, surgery end of Jan 2015.

  4. #4
    Administrator Top User Didee's Avatar
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    I am so sorry that you are facing this as well. This is a quiet area of the forum but I hope someone will be by with some knowledge and support. I have my fingers crossed for you.
    Aussie, age 61
    1987 CIN 111. Cervix lasered, no further problems.

    Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.

    Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
    6 chop14 and Neulasta.
    Clean PET April/10, 18 rads 36gy mop up. All done May 2010
    Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
    Discharged Nov 2014.

    May/2012. U/sound, thyroid scan, FNB. Benign adenoma.

    Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.

    SCT Aug 2016

  5. #5
    Super Moderator Top User Hope2012's Avatar
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    Hi fighterm

    Wow. You've been through a lot already with your lymphoma and now on to tcc of the bladder. You are obviously a fighter and that's great news!

    Exophytic means it's growing outward and not inward. I believe that is a positive sign. The 5 yr survival rate of this is close to 80% so it's highly treatable.

    I'm sorry to hear you have yet another fight on your hands, but please feel free to stop by here for support and updates if you wish.

    Best of luck!
    This dark night shall end and the sun will rise again...
    Believe

    - Dad diagnosed in 1992 with primary bladder cancer
    - bladder removed and new one made from resected intestine
    - chemotherapy regimen started
    - mets to large intestines discovered in 1993...more chemo...tumors disappearing
    - complained of neck pain Dec 1994. Mets to brainstem confirmed
    - passed away Feb 24, 1995

  6. #6
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    Thanks for your replies. I am kicking myself that I did not ask for a cystoscopy 2 years ago. I thought that because I had a ct scan once a year (for lymphoma) they would catch anything else. And they saw it in March this year, but assumed it lymphoma. I guess ct scan is not as clear as cystoscopy.
    66y female, dx @43 in 1992 - DLBCL (aggressive lymphoma) CHOP x 6, rads x 20. 2007- Follicular Lymphoma (FL) grade1-2, stage 2, rads x 20. 2013 relapsed FL, grade 1-2, stage 4. R-bendamustine x 6. Finished Jan 2015. Rituxan maintenance till 2017. 11/2014 bladder cancer, surgery end of Jan 2015.

 

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