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Thread: Got my membership in The Zero Club!

  1. #1
    Newbie New User
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    Jan 2015
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    Got my membership in The Zero Club!

    Got my first Post-Op PSA....less than .01!! Big sigh of relief!
    So, No cancer.....no pads.....no significant ED (usually) !!! Time to move to my next chapter and hopefully put PCa behind me. (But forever a member of the club!)

  2. #2
    Senior User Ray61's Avatar
    Join Date
    Feb 2015
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    221

    Thumbs up

    Outstanding! Time to move on and leave that pesky Ca behind. Congratulations.
    Age 66
    2005 Primary diagnosed moderate BPH, had symptoms for awhile
    DRE by primary showed moderate BPH, no lumps.
    2010 Prostatitis/antibiotics
    Oct. 2013 PSA 3.9
    March 2014 PSA 4.8
    Oct. 2014 PSA 6.8
    Oct. 2014 14 needle biopsy=Neg but many atypical cells
    Jan. 2015 follow-up biopsy=Gleeson 3+3=6 with perineural invasion
    PC found in one core
    2nd opinion on slides from Dr. Epstein confirmed
    Appt. for Surgical consult with Dr. Vipul Patel 3/11/15
    Robotic Prostatectomy 5/1/2015
    Stage upgraded to pT2c
    Gleason post surgical biopsy 3+4=7
    Tumor in both lobes 12% of prostate, negative surgical margins
    Oct 2017 cancer undetectable, no incontinence, zero erections.

  3. #3
    Newbie New User
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    Jan 2015
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    Thanks Ray! BTW, I happen to notice that you are seeing Dr.Patel. His team took care of me. You are going to see the best, they will take good care of you. If you have any questions, please feel free to reach out.

    Good Luck!

  4. #4
    Moderator Top User HighlanderCFH's Avatar
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    Nov 2011
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    7,234
    That is one of the best recoveries I've ever read about.
    Successful surgery, no intontinence and plenty of sexual ability.

    Congratulations!!
    July 2011 local PSA lab reading 6.41 (from 4.1 in 2009). Mayo Clinic PSA 9/ 2011 = 5.7.
    Local uro DRE revealed significant BPH, no lumps.
    PCa Dx Aug. 2011 age of 61.
    Biopsy DXd adenocarcinoma in 3/20 cores (one 5%, two 20%). T2C.
    Gleason 3+3=6. CT abdomen, bone scan negative.
    DaVinci prostatectomy 11/1/11 at Mayo Clinic (Rochester, MN), nerve sparing, age 62.
    Surgeon was Dr. Matthew Tollefson, who I highly recommend.
    Final pathology shows tumor confined to prostate.
    5 lymph nodes, seminal vesicules, extraprostatic soft tissue all negative.
    1.0 x 0.6 x 0.6 cm mass involving right posterior inferior, right posterior apex & left
    mid posterior prostate. Right posterior apex margin involved by tumor over 0.2 cm length,
    doctor says this is insignificant.
    Prostate 98 grams, tumor 2 grams.
    Catheter out in 7 days. No incontinence, minor dripping for a few weeks.
    Eight annual post-op exams 2012 through 2019: PSA <0.1
    Semi-firm erections without "training wheels," usable erections with 100mg Sildenafil.
    NOTE: ED caused by BPH, not the surgery.

  5. #5
    Congrats Driscoll. great news
    Diagnosed at age 64 (in November, 2014), PSA 4.3
    Nov 2014 BX 3 of 12 cores positive original pathology G8. Johns Hopkins second opinion, G6
    Surgery with Dr Ash Tewari Jan 6, 2015
    Post surgical pathology, stage T2c, bilateral disease, upstaged to G7(3+4)
    5% of Prostate involved in Tumor. Organ confined, Margins, SV, lymph nodes (9) all negative, PNI positive
    PSA <.02 until (uh-oh), 2/17 .02. Then 5/17-.033, 8/17-.033, 11/17-.046, 4/18-.060, 6/18-.068, 7/18- .082, 8/18-. 078.
    Decipher score low risk, .37
    ADT/Firmagon started August 2018. SRT to start SEPT 2018. Finished SRT November 2018, Finished ADT Feb 2019
    T=7, PSA <.05

  6. #6
    Very good news, if you were here I would buy you a drink
    Born in 1962
    PSA 6.5, free PSA 10% Oct 2014
    10 biopsies taken Oct 2014
    6 biopsies G 3+3
    2 biopsies G 3+4
    T1c
    Total of 30 mm cancer of 130 mm biopsy samples
    da Vinci surgery jan 7th 2015, nerves spared on one side and "almost all" on other side
    Catheter out jan 23
    Feb 2nd, one shield/day almost continent
    March 17 2015 PSA<0.1
    Final stage pT2, no external invasion, no vesicles invasion, no lymph node invasion, small positive margin
    August 24 2015 PSA <0.1
    February 18 2016 PSA <0.1
    September 12 2016 PSA <0.05
    April 14 2017 PSE <0.05
    October 2017 PSA 0.05....
    Jan 2018 PSA 0.05
    Aug 2018 PSA <0.05
    Feb 2019 PSA 0.06
    Aug 2019 PSA 0.06

  7. #7
    Senior User Ray61's Avatar
    Join Date
    Feb 2015
    Posts
    221
    Thanks Driscoll, will see him wed. hope to get scheduled ASAP due to a long planned Alaska trip in June.
    Age 66
    2005 Primary diagnosed moderate BPH, had symptoms for awhile
    DRE by primary showed moderate BPH, no lumps.
    2010 Prostatitis/antibiotics
    Oct. 2013 PSA 3.9
    March 2014 PSA 4.8
    Oct. 2014 PSA 6.8
    Oct. 2014 14 needle biopsy=Neg but many atypical cells
    Jan. 2015 follow-up biopsy=Gleeson 3+3=6 with perineural invasion
    PC found in one core
    2nd opinion on slides from Dr. Epstein confirmed
    Appt. for Surgical consult with Dr. Vipul Patel 3/11/15
    Robotic Prostatectomy 5/1/2015
    Stage upgraded to pT2c
    Gleason post surgical biopsy 3+4=7
    Tumor in both lobes 12% of prostate, negative surgical margins
    Oct 2017 cancer undetectable, no incontinence, zero erections.

  8. #8
    Wonderful to hear

    Congratulations
    At age 55, PSA 22, Gleason: 9 (4+5), 8(4+4), 7(3+4), 6(3+3)
    8 out of 12 cores positive
    DaVinci 14 October 2014
    Pathology of surrounding tissue samples was negative, though they annotated it as stage 3.
    Post surgery PSA:
    Jan 2015 <0.04
    2016 <0.04
    2017 0.05
    2018 0.1


    In 2018; 45 radiation treatments and hormone treatment [with Lupron for the next 2 years].
    In 2019; on Lexapro to deal with the Lupron.

  9. #9
    Excellent Outcomes DOFD! Congrats! Be sure to discuss with your MD the recommended frequency to continue to monitor your PSA. The beauty of ultrasensitive methodologies is they will detect any upward PSA movement early on. In the highly unlikely scenario of recurrence, early detection of an increasing PSA will offer a broader spectrum of courses of action. We are all fortunate to access the current advancements in PC detection, diagnosis and treatments. Think of the new treatments and cures that will be available in the next 5 - 10 years!
    Life is good! Enjoy it!
    PSA: Oct '09 = 1.91, Oct '11 = 2.79, Dec '11 = 2.98 (PSA, Free = 0.39ng/ml, % PSA Free = 13%)
    Referred to URO MD
    Jan '12: DRE = Positive: "Left induration"
    Jan '12: Biopsy = 6 of 12 Cores were Positive: 1 = G7 (3+4) and 5 = Gleason 6
    Referred to URO Surgeon
    March '12: Robotic RP: Left: PM + EPE. MD waited in surgery for preliminary Path Report then excised substantial left adjacent tissue(s) down to negative margins and placed 2 Ti clips for SR guidance, if needed in future.
    Pathology: Gleason (3+4) pT3a pNO pMX pRO c tertiary pattern 5 / Prostate Size = 32 grams / Tumor = Bilateral: 20% / PNI: present
    3 month Post Op standard PSA = <0.1 ng/ml
    1st uPSA at 7 months Post Op = 0.018 ng/ml
    uPSA remains "stable" at 91 Months Post Op: Mean = 0.022 (22x uPSAs: Range 0.017 - 0.032) LabCorp: Ultrasensitive PSA: Roche ECLIA
    Continence = Very Good (≥ 99%)
    ED = present

  10. #10
    Senior User Ray61's Avatar
    Join Date
    Feb 2015
    Posts
    221
    Driscoll, Have not heard from the Concierge at the hospital yet. Surgery is next Friday. When do they call? Thanks Ray
    Age 66
    2005 Primary diagnosed moderate BPH, had symptoms for awhile
    DRE by primary showed moderate BPH, no lumps.
    2010 Prostatitis/antibiotics
    Oct. 2013 PSA 3.9
    March 2014 PSA 4.8
    Oct. 2014 PSA 6.8
    Oct. 2014 14 needle biopsy=Neg but many atypical cells
    Jan. 2015 follow-up biopsy=Gleeson 3+3=6 with perineural invasion
    PC found in one core
    2nd opinion on slides from Dr. Epstein confirmed
    Appt. for Surgical consult with Dr. Vipul Patel 3/11/15
    Robotic Prostatectomy 5/1/2015
    Stage upgraded to pT2c
    Gleason post surgical biopsy 3+4=7
    Tumor in both lobes 12% of prostate, negative surgical margins
    Oct 2017 cancer undetectable, no incontinence, zero erections.

 

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