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Thread: Hepatocellular Adenoma's

  1. #1
    Newbie New User
    Join Date
    Mar 2015

    Hepatocellular Adenoma's

    Hi guys, I'm a newbie here. I was diagnosed with a hepatic adenoma that burst while i was at a casino

    Anyway, I had an embolization to stop the blood flow to the adenoma. The procedure was only supposed to be 1 12/ hours, but it ended up being over 6 hours. The doctor told me that he found multiple tumors in my liver, and tried to cut the blood flow to as many as he could, but there are still dozens more in my liver. I'm 37 and I was on birth control pills for a long time, in order to shrink cysts on my overies.

    The doctors said that in most cases birth control pills do cause adenoma'a, but in my case, they are not sure because there are so many tumors in my liver. They said that from now on I will need to take an MRI every 6-12 months to make sure that they are not growing or transforming into malignant tumors.

    My question is, what do you think the odds are of these tumors becoming malignant. I have over a dozen. My MRI looks like I could connect the dots.

    Has anyone had any experience with this? Thanks for any replies. My prayers are with everyone

  2. #2
    Administrator Top User Kermica's Avatar
    Join Date
    Jul 2009
    My question is, what do you think the odds are of these tumors becoming malignant.
    Hi there Imdonetrying and welcome though I am sorry for the worry that brings you here. I did a bit of research and, according to one of the papers I found, the transformation rate is about 4.2%. Here ias the reference document: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2997656/

    Good luck with everything and remember, a 4.2 % possibility of something bad happening means a 95.8% possibility that it won't. I wouldn't be "done trying" if I were you.

    Good health,

    When the world says, "Give up," Hope whispers, "Try it one more time."
    ~Author Unknown

    Age 67
    Follicular lymphoma diagnosed August 08, Stage 1
    2 cycles (20 treatments each) localized radiation to tumor sites. Remission confirmed July 09
    Restaged to Stage 3 May 2010
    Recurrence confirmed May 2010 - Watch and Wait commenced - multiple scans with minimal progression.
    Cutaneous Squamous Cell Carcinoma diagnosed September 2012. Mohs surgical excision 09/2012. Successful, clean edges all around.
    Significant progression detected in PET scan - December 2012
    Biopsy to check for transformation 1/18/2013 - negative for that but full of lymphoma, of course.
    July 2013 - Rescan due to progression shows one tumor (among many) very suspect for transformation, another biopsy 8/12/13.
    August 2013 - No evidence of transformation, 6 courses of B+R commence 8/29 due to "extensive, systemic disease".
    February 2014 - Diagnostic PET scan states: Negative PET scan. Previous noted hypermetabolic cervical, axillary, iliac and inguinal lymphadenopathy has resolved. Doctor confirms full remission.
    June 2014 - started 2 year maintenance Rituxan, 1 infusion every 3 months. Doctor confirms lump under right arm are "suspicious" for recurrent disease, deferring scans for now.
    February 2015 - Doc and I agreed to stop R maintenance as it is depressing my immune system too much.
    June 2015 - Confirm that the beast is back by physical exam, will scan in August after esophageal issues settle down so we can get a clear view.
    August 2015 - physical exam in error, PET/CT shows no evidence of disease. Remission continues well into second year!
    December 2015 - Cardiologist tells me I have plaque buildup growing at an alarming rate. Stent or bypass down the road but not yet...
    March 2016 - new tumor below the jaw so remission is over. Back to active surveillance until treatment is needed.
    June 2016 - C/T scan indicates presence of multiple lesions in iliac chain.
    August 2016 - PET/CT shows multiple areas of lymphoma as expected plus new areas of concern in bowel.
    January 2017 - C/T scan shows significant progression in cervical and inguinal lymph chains, largest tumor is impacting hearing, measures 2.1x4.6 cm. 4 to 8 cycles of R-CVP, 1x3weeks to commence 2/6/17.
    April 2017 - Mid treatment scan shows about 1/3 reduction in multiple tumors. Also shows abdominal aortic aneurysm with peripheral thrombus. Cardiologist changed meds, spoke of need for surgical repair down the road.
    September 2017 - finished 10 rounds of R-CP, V was stopped due to neuropathy in feet. No further treatment planned at this time, at least 10 tumors can be felt which seem to be growing again.
    December 2017 - Biopsy of external iliac node with SUV of 13.1 shows no transformation! However, the FL grade is now 3A instead of Gr 1-2. Will start indefinite protocol using Copanlisib, one of the new targeted therapies. I remain hopeful.
    March 2018 - Copanlisib failed, treatment stopped 3/28. New plan is to go to Dana Farber on 4/16 for case review and treatment recommendation.

    May 2018 - did not qualify for clinical trials at Dana Farber. Tumors need to get larger to be considered. On consultation w/Dr. Armand at DF and my onc, have decided to take a break from cancer treatments. Will have a biopsy of the mass in my sinus discovered in scan at DF and to get the aneurysm repaired as it has developed a potentially catastrophic penetrating ulcer. Surgery scheduled for 7/12.

    September 2018 - biopsy of mass in nose shows transformed DLBCL throughout. Assessing options for this negative development.

    October 2018 - started 6 to 8 cycles of R-CHOP. Goal is to get to full remission to open up other options.

    February/March 2019 - PET shows four hot spots following R-CHOP. referred to Dana Farber for stem cell transplant. Pre testing all good, accepted for Auto Transplant. Will begin inpatient process about April 1.

  3. #3
    Newbie New User
    Join Date
    Sep 2017
    So I am in the same boat...had a very large adenoma rupture...unfortunately it took 3 weeks before someone figured that out while I was slowly bleeding internally. I have 15-20 countable adenoma's on my liver. I have been off estrogen based contraceptive for over 3 years now, and they have all decreased in size. However, I still have pains, I still have irregular labs, and I also have a lot of autoimmune issues for which no one can figure out the reason behind, or treatment for. I have recently found out that there is a adenoma that is also related to autoimmune disorder...so there is a chance of these being more than one kind of adenoma...and I completely can relate to your worry. I started out with MRI's every 3 months for the first year, then went to 6 months, then 9 months, and 2 weeks ago was my first one that was a year apart from the last. I am guessing since I first found this forum now, I probably won't get a response, but I am hoping for an update on your case. I seem to be the only advocate for my health conditions and the Physicians I work for as well as the specialists I see do not seem to want to investigate any connection, so I have been working on it myself. Just wondering if you have any other symptoms, disorders, or anything that has come up since your diagnosis as well! Thanks!

  4. #4
    Administrator Top User lisa1962's Avatar
    Join Date
    Jan 2013

    Sorry to have to welcome you here. This thread is well over 2 years old so unlikely you will receive a response from the OP.

    Feel free to create your own unique thread and perhaps one of our members may be able to provide some insight.

    Locking this thread to avoid confusion



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