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Thread: Crossed over into the "normal" zone...

  1. #21
    Good Luck George, fingers crossed...
    Born in 1962
    PSA 6.5, free PSA 10% Oct 2014
    10 biopsies taken Oct 2014
    6 biopsies G 3+3
    2 biopsies G 3+4
    T1c
    Total of 30 mm cancer of 130 mm biopsy samples
    da Vinci surgery jan 7th 2015, nerves spared on one side and "almost all" on other side
    Catheter out jan 23
    Feb 2nd, one shield/day almost continent
    March 17 2015 PSA<0.1
    Final stage pT2, no external invasion, no vesicles invasion, no lymph node invasion, small positive margin
    August 24 2015 PSA <0.1
    February 18 2016 PSA <0.1
    September 12 2016 PSA <0.05
    April 14 2017 PSE <0.05
    October 2017 PSA 0.05....
    Jan 2018 PSA 0.05
    Aug 2018 PSA <0.05
    Feb 2019 PSA 0.06
    Aug 2019 PSA 0.06

  2. #22
    Good luck GS!!!! May your PSA now be < 1.0 and your other inconveniences vanish as well!
    PSA: Oct '09 = 1.91, Oct '11 = 2.79, Dec '11 = 2.98 (PSA, Free = 0.39ng/ml, % PSA Free = 13%)
    Referred to URO MD
    Jan '12: DRE = Positive: "Left induration"
    Jan '12: Biopsy = 6 of 12 Cores were Positive: 1 = G7 (3+4) and 5 = Gleason 6
    Referred to URO Surgeon
    March '12: Robotic RP: Left: PM + EPE. MD waited in surgery for preliminary Path Report then excised substantial left adjacent tissue(s) down to negative margins and placed 2 Ti clips for SR guidance, if needed in future.
    Pathology: Gleason (3+4) pT3a pNO pMX pRO c tertiary pattern 5 / Prostate Size = 32 grams / Tumor = Bilateral: 20% / PNI: present
    3 month Post Op standard PSA = <0.1 ng/ml
    1st uPSA at 7 months Post Op = 0.018 ng/ml
    uPSA remains "stable" at 84 Months Post Op: Mean = 0.021 (20x uPSAs: Range 0.017 - 0.026) LabCorp: Ultrasensitive PSA: Roche ECLIA
    Continence = Very Good (≥ 99%)
    ED = present

  3. #23
    PSA 12/9/15 = 1.15

    We will need another test in 4mos to confirm but it appears I may have already hit bottom. (nadar)
    Last edited by GeorgeS; 12-10-2015 at 02:32 AM.
    - George

    55yo at diagnosis 3/14, PSA=395, 1 week later PSA=322, 98cc prostate at biopsy: 16/16 positive, 15-G9 (4+5), 1-G6(unknown). Stage4: T3BN1M0, "Metastatic to pelvic Lymph node" (bone scan clear) 12/14 DEX=normal, 12/16 DEX=normal

    - Currently on ADT/TAB: Lupron 4mo+Cassodex
    - PSA 03/14=322
    - PSA 06/14=55.88
    - PSA 08/14=37.63
    - PSA 10/14=11.35
    - PSA 12/14=6.78
    - PSA 04/15=2.69
    - PSA 04/16=0.38
    - PSA 04/17=0.19
    - PSA 08/17=0.16 Start Lupron Vacation #1
    - PSA 09/17=0.14
    - PSA 04/18=0.17, T=100
    - 5/18 Restart Lupron
    - 6/18 Start 40 sessions RT (8 weeks)
    - 8/18 End RT.
    - 9/18 Get last scheduled Lupron shot
    - PSA 09/18=0.12 (First post radiation reading)
    - PSA 01/19=0.09
    - PSA 07/19=0.06

  4. #24
    George: Looks like you may be a World's Limbo Champion!!! Just How Low Can You Go?!?!? Hang out in The Valley of The Nadir for many decades and enjoy!

    MF
    PSA: Oct '09 = 1.91, Oct '11 = 2.79, Dec '11 = 2.98 (PSA, Free = 0.39ng/ml, % PSA Free = 13%)
    Referred to URO MD
    Jan '12: DRE = Positive: "Left induration"
    Jan '12: Biopsy = 6 of 12 Cores were Positive: 1 = G7 (3+4) and 5 = Gleason 6
    Referred to URO Surgeon
    March '12: Robotic RP: Left: PM + EPE. MD waited in surgery for preliminary Path Report then excised substantial left adjacent tissue(s) down to negative margins and placed 2 Ti clips for SR guidance, if needed in future.
    Pathology: Gleason (3+4) pT3a pNO pMX pRO c tertiary pattern 5 / Prostate Size = 32 grams / Tumor = Bilateral: 20% / PNI: present
    3 month Post Op standard PSA = <0.1 ng/ml
    1st uPSA at 7 months Post Op = 0.018 ng/ml
    uPSA remains "stable" at 84 Months Post Op: Mean = 0.021 (20x uPSAs: Range 0.017 - 0.026) LabCorp: Ultrasensitive PSA: Roche ECLIA
    Continence = Very Good (≥ 99%)
    ED = present

  5. #25
    Hey George: I've read a number of your posts and have learned a great deal. Most of all, you are one brave and courageous man. Wishing you the best. MM
    DOB:Feb 1958
    PSA: 9/15: 5.9
    DRE: Negative
    Biopsy: 10/1/15. Second Opinion University of Chicago. +9 of 12 cores. G6: 5 cores, G7 ( 4+3) 4 cores
    10/12/15: -CT scan/BS
    Clinical Staging: 10/28/15 T2c
    ( RALP) UC 12/29/15

    Final Pathology Report; Jan. 6 2016

    -15 lymph nodes
    G9 ( 4+5)
    +EPE
    +LVI
    +Right SV -Left SV and vasa deferentia,
    PI present
    PM
    pT3bNO
    uPSA 2/9/16 0.05
    uPSA 3/23/16 0.11
    Casodex 4/1/16-8/5/16
    Lupron 4/15/16-5/15/18
    SRT 6/14/16...8/5/16 38Tx
    uPSA 8/10/16---8/22/19 <0.05
    Feb. 2017 Loyola Chicago
    11/15/2018 AUS 800 Implanted
    12/18/18...T Levels...Free T 42.8...Total T...262

  6. #26
    Hi George, I am not at all educated in HT and cannot evaluate your result, is your news good? are you ok with the result?
    Born in 1962
    PSA 6.5, free PSA 10% Oct 2014
    10 biopsies taken Oct 2014
    6 biopsies G 3+3
    2 biopsies G 3+4
    T1c
    Total of 30 mm cancer of 130 mm biopsy samples
    da Vinci surgery jan 7th 2015, nerves spared on one side and "almost all" on other side
    Catheter out jan 23
    Feb 2nd, one shield/day almost continent
    March 17 2015 PSA<0.1
    Final stage pT2, no external invasion, no vesicles invasion, no lymph node invasion, small positive margin
    August 24 2015 PSA <0.1
    February 18 2016 PSA <0.1
    September 12 2016 PSA <0.05
    April 14 2017 PSE <0.05
    October 2017 PSA 0.05....
    Jan 2018 PSA 0.05
    Aug 2018 PSA <0.05
    Feb 2019 PSA 0.06
    Aug 2019 PSA 0.06

  7. #27
    Quote Originally Posted by Wilde View Post
    Hi George, I am not at all educated in HT and cannot evaluate your result, is your news good? are you ok with the result?
    The three possibilities for PSA values are: lower, about the same and higher in relation to the last measured value.

    Given enough time in a perfect world a patient on ADT would eventually become a member of "The Zero Club" or at least less than "1". Less than 4 is generally better than greater than 4 and less than 1 is generally a bit better than greater than 1.

    When ADT stops working the PSA will start rising. The lowest measured PSA value will be the "nadar". There are a number of diagnostic studies published which attempt to use the nadar value as an prognostic indicator. Whatever be the case, two or more measurements need to be taken to show a trend and trigger a change in treatment. While the slightly higher value of my last test could be a fluke, it could also mark the beginning of the primary treatment failure and the onset of CRPC.

    While I'm not exactly thrilled with the result I'll reserve judgement until April and if actually trending upwards, the duration for PSA doubling will become the value to track.
    - George

    55yo at diagnosis 3/14, PSA=395, 1 week later PSA=322, 98cc prostate at biopsy: 16/16 positive, 15-G9 (4+5), 1-G6(unknown). Stage4: T3BN1M0, "Metastatic to pelvic Lymph node" (bone scan clear) 12/14 DEX=normal, 12/16 DEX=normal

    - Currently on ADT/TAB: Lupron 4mo+Cassodex
    - PSA 03/14=322
    - PSA 06/14=55.88
    - PSA 08/14=37.63
    - PSA 10/14=11.35
    - PSA 12/14=6.78
    - PSA 04/15=2.69
    - PSA 04/16=0.38
    - PSA 04/17=0.19
    - PSA 08/17=0.16 Start Lupron Vacation #1
    - PSA 09/17=0.14
    - PSA 04/18=0.17, T=100
    - 5/18 Restart Lupron
    - 6/18 Start 40 sessions RT (8 weeks)
    - 8/18 End RT.
    - 9/18 Get last scheduled Lupron shot
    - PSA 09/18=0.12 (First post radiation reading)
    - PSA 01/19=0.09
    - PSA 07/19=0.06

  8. #28
    Ok, thanks for explaining and letīs hope it is a fluke and that the April measurement is still low. I remember my own PSA fluctuating between 4 and 6 before surgery so there seems to be fluctuations.

    Take care
    Born in 1962
    PSA 6.5, free PSA 10% Oct 2014
    10 biopsies taken Oct 2014
    6 biopsies G 3+3
    2 biopsies G 3+4
    T1c
    Total of 30 mm cancer of 130 mm biopsy samples
    da Vinci surgery jan 7th 2015, nerves spared on one side and "almost all" on other side
    Catheter out jan 23
    Feb 2nd, one shield/day almost continent
    March 17 2015 PSA<0.1
    Final stage pT2, no external invasion, no vesicles invasion, no lymph node invasion, small positive margin
    August 24 2015 PSA <0.1
    February 18 2016 PSA <0.1
    September 12 2016 PSA <0.05
    April 14 2017 PSE <0.05
    October 2017 PSA 0.05....
    Jan 2018 PSA 0.05
    Aug 2018 PSA <0.05
    Feb 2019 PSA 0.06
    Aug 2019 PSA 0.06

  9. #29
    Senior User
    Join Date
    Feb 2015
    Posts
    360
    George,
    You are an inspiration to me.
    Ever get to Houston, I'll be pissed if you don't let me know so I can buy you dinner....and your wife or family or whoever you happen to have along.
    It is nothing compared to what you have given to me by your example of staying strong and on course.
    All the best,
    DD

  10. #30
    Surely while the numbers were slowly going down it was fairly easy to wait for the next test and results. However this is not longer the case. The slight rise in the last test has resulted in some self created stress at home and at work.

    At home we've decided to see if we can convince Kaiser to test again before April as it may slowly drive me crazy wondering if it was a fluke or not. Even if Kaiser insists on waiting there is a out-of-program clinic nearby which I'm considering paying for a PSA test out of pocket just for the peace of mind. In the mean while we've started looking into what SS-DI considers "progressive or recurrent despite initial hormonal therapy" and if they need biochemical (how much PSA rise) or radiologic proof.

    After +18 months of ADT and even longer PC some days/week are more difficult than others to put in 8/40hrs of work. I spoke with my boss about my condition shortly after being diagnosed and followed it up a year later with a "Statement of Disability" letter from my DR. Sadly he was not in the least bit supportive when I told him of my latest results and the trend it might indicate. (disturbingly they've been looking to reduce the head count)

    Initial research indicates that I'd have to have no income and unable to do any job before I'd qualify for disability.
    - George

    55yo at diagnosis 3/14, PSA=395, 1 week later PSA=322, 98cc prostate at biopsy: 16/16 positive, 15-G9 (4+5), 1-G6(unknown). Stage4: T3BN1M0, "Metastatic to pelvic Lymph node" (bone scan clear) 12/14 DEX=normal, 12/16 DEX=normal

    - Currently on ADT/TAB: Lupron 4mo+Cassodex
    - PSA 03/14=322
    - PSA 06/14=55.88
    - PSA 08/14=37.63
    - PSA 10/14=11.35
    - PSA 12/14=6.78
    - PSA 04/15=2.69
    - PSA 04/16=0.38
    - PSA 04/17=0.19
    - PSA 08/17=0.16 Start Lupron Vacation #1
    - PSA 09/17=0.14
    - PSA 04/18=0.17, T=100
    - 5/18 Restart Lupron
    - 6/18 Start 40 sessions RT (8 weeks)
    - 8/18 End RT.
    - 9/18 Get last scheduled Lupron shot
    - PSA 09/18=0.12 (First post radiation reading)
    - PSA 01/19=0.09
    - PSA 07/19=0.06

 

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