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Senior User
 Originally Posted by Kermica
Very nice, Chef, thanks. Eva does both of those songs but not as Iz does by joining them together.
I have recently become a fan of Pentatonix. Here they perform a well known song by one of my favorite songwriters - Leonard Cohen: https://www.youtube.com/watch?v=LRP8...RP8d7hhpoQ#t=0
Enjoy and good health,
kermica
They are incredible singers, thanks Kermica!!!
Dx NSHL StageIIIA
CT {groin 6.8 x 3.3 cm} abdomen nodes, enlarged spleen 2/07/16
Bone marrow, Colonoscopy, Gastroscopy biopsies {-}
Lung & Heart tests Good.
Pet scan Worrisome bone marrow 3/17/16
ABVD 6 cycles started 3/31/16
Interm Pet {+} 5/19/16
Stop ABVD 9/01/16
Pet {+} 10/04/16
Salvage GDP 10/27/16
Misdiagnosed from Hodgkins to {ALCL ALK-} stage 4B 12/01/16
Adcentris 12/05/16 ~ 3/07/17
Lumbar, Tri-fusion line, G-CSF, Collection 3/17/17 ~ 3/18/17
Auto stopped due to infections, sent home to wait 3/27/17
Developed 12 tumors on base of skull, patho = {ALK-} CD30 4/26/17
Restart Adcentris 5/18/17
High dose Chemo/MTX/Total Body Irradiation for three days-twice daily 8/17/17
Donor Allo Transplant 8/23/17
Pet scan NED 12/01/17
“In the middle of difficulty lies opportunity."
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Be interesting to hear Pentatonix do some Simon and Garfunkel. Was researching and did not find any. Did I miss any K?
Adding one of my favorites (so many to chose from)
https://www.youtube.com/watch?v=LVlDSzbrH5M
Last edited by jorola; 11-05-2016 at 05:46 PM.
Reason: added song
Wife to husband with squamous lung cancer stage 3 b
dx - April 20/14
tx started May 20/14 - radiation and chemo
June 23 - chemo finished
July 4 - radiation finished
July 8 - PET scan shows tumor almost gone, lymph nodes back to normal
Married July 19/14 
Sept 9/14 - repeat can shows tumor continues to shrink more, no new spots. New coughing and pain due to chest infection or side effect of radiation.
Sept 19/14 - not infection but pneumonitis, place on dex for 4 weeks
Oct 22/14 - now off of dex and facing even more symptoms of withdrawal
Dec 16/14 - pretty much nothing left but a scar
April 7/15 - ditto scan and screw you stats
Oct 6/15 - more scarring but still cancer still gone
Feb 2016 -scan the same
Aug 2016 - more of the same
Aug 2017 - and ditto
Aug 2018 - 4 yrs NED - no evidence of disease
Aug 2019 - 5 yrs NED and discharged from cancer clinic!!!!!
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Ahh, my daughter's favorite Billy Joel song. It is certainly one of the great ones though I am partial to a couple of others, as well.
I don't know of any Pentatonix covers of Simon and Garfunkel but it would be excellent if they were to do so...
Good health,
kermica
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Originally Posted by Chef
Great voice for sure. Thanks Kermica. Couldn't resist but my fiance and I are major Hawaii lovers, been there a tonne and want to open a cafe there eventually. Anyways, one of our favorite artists: Over The Rainbow & What A Wonderful World
RIP ~ Brother iz
I love this version too.
Age 55
Follicular Non-hodgkins lymphoma Stage 2 on 10-28-2011
Upgraded to Low grade follicular non-hodgkins lymphoma Stage IV on 11-11-11.
Cancer in lymph nodes found in neck, back of abdomen, between both lungs and cancer cells found in bone marrow test.
Prescribed Treanda and Rituxan, 4 months. To start 11-28-2011.
Remission 2-17-2012
Rituxan treatments start 4-25-2012, once every two months for two years
Learning as I go.
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Be interesting to hear Pentatonix do some Simon and Garfunkel.
i couldn't find any Simon and Garfunkle covers by Pentatonix but here is The Sound of Silence by an 11 year old wonder girl. If you haven't seen it already, enjoy. If you have...enjoy.
https://www.youtube.com/watch?v=8xysVNigCsU
Good health,
kermica
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Senior User
Yes....and I love the way she did "Fields of Gold". She died wayyyyyyy too soon. xx0x0x0
Oct. 27, 2015 diagnosed with angioimmunoblastic T cell lymphoma.
December 2016 began choep chemotherapy-6 treatments 21 days apart.
February 24 scan showed no evidence of disease!
Continue choep chemotherapy treatments.
APril 2016 returned to Stanford for high dose Cytoxan, removal of port, and insertion of Hicckman catheter.
Neupogen injections daily to increase white blood cell counts.
MAy 5, 2016 Apherisis.
MAy 21, 2016 HIgh dose chemotherapy VP 16.
MAy 24, 2016 High dose chemotherapy Cytoxan.
MAy 26, 2016 Autologous Stem cell transplant.
JUly 27, 2016 Scan shows no evidence of disease. Still In remission!
October 31, 2016 Scan shows no evidence of disease...NED again!
April 1, 2017 Still NED!
love strong....live long❤️💜💚💛💙
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Eva is good for the soul in good times and bad.
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Take a look at sounds of silence covered by Disturbed. Oh wowwwwwww
Aussie, age 61
1987 CIN 111. Cervix lasered, no further problems.
Years of pain, bleeding, women's plumbing problems. TV ultrasound, tests, eventual hysterectomy 2007, fibroids in lining of Uterus.
Dx Peripheral T Cell Lymphoma stage 2B bulky, aggressive Dec/09.
6 chop14 and Neulasta.
Clean PET April/10, 18 rads 36gy mop up. All done May 2010
Iffy scan Nov. 2011. Scan Feb 2012 .still in remission.Still NED Nov 2012.
Discharged Nov 2014.
May/2012. U/sound, thyroid scan, FNB. Benign adenoma.
Relapse Apr 2016. AITL. Some chemos then on to allo transplant. Onc says long remission was good. Still very fixable.
SCT Aug 2016
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You are so right, Didee!
https://www.youtube.com/watch?v=u9Dg-g7t2l4
Good health,
kermica
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The Winter of our content
OK, I was um, unique long before the steroids took over. My current fave is not really a soothing melody; not a nostalgic classic; not exactly introspective, but does clearly state the obvious. A sample of the lyrics:
Did you ever look to see who is left around?
Everyone I thought was cool is six feet under ground.
They tried to get me lots of times and now they're
Coming after you. I got out and I'm here to say
Baby you can get out too.
I'm still alive and well!
I'm still alive and well!
Every now and then
I know it's kinda hard to tell,
but I'm still alive and well!
- John Dawson "Johnny" Winter III
05/08-07/08 Tumor appears behind left ear. Followed by serial medical incompetence on the parts of PCP, veteran oncologist and pathologist (misdiagnosis via non-diagnosis). Providential guidance to proper care at an NCI designated comprehensive cancer center.
07/08 Age 56 DX 1) Peripheral T-Cell Lymphoma-Not Otherwise Specified. Stage IV-B, >50 ("innumerable") tumors, bone marrow involvement.
08/08-12/08 Four cycles CHOEP14 + four cycles GND (Cyclofosfamide, Doxorubicin, Vincristine, Etoposide, Prednisone & Gemcitabine, Navelbine, Doxil)
02/09 2) Relapse.
03/09-06/13 Clinical trial of Romidepsin > long-term study. NED for 64 twenty-eight day cycles, dose tapered.
07/13 3) Relapse, 4) Suspected Mutation.
08/13-02/14 Romidepsin increased, stopped for lack of response. Watch & Wait.
09/14 Relapse/Progression. Visible cervical nodes appear within 4 days of being checked clear.
10/06/14 One cycle Belinostat. Discontinued to enter second clinical trial.
10/25/14 Clinical trial of Alisertib/Failed - Progression.
01/12/15 Belinostat resumed/Failed - Progression. 02/23/15
02/24/15 Pralatrexate/Failed - Progression. 04/17/15
04/15 Genomic profiling reveals mutation into PTCL-NOS + AngioImmunoblastic T-Cell Lymphoma. Stage IV-B a second time. Two dozen tumors + small intestine (Ileum) involvement.
04/22/15 TEC (Bendamustine, Etoposide, Carboplatin). Full response in two cycles. PET/CT both clear. Third cycle followed.
06/15-07/15 Transplant preparation (X-rays, spinal taps, BMB, blood test, MUGA scan, lung function, CMV screening, C-Diff testing etc. etc. etc.) Intrathecal Methotrexate during spinal tap.
BMB reveals 5) 26% blast cells of 20q Deletion Myelodysplastic Syndrome MDS), a bone marrow cancer and precursor to Acute Myeloid Leukemia.
07/11-12/15 Cyclofosfamide + Fludarabine conditioning regimen.
07/16/15 Total Body Irradiation.
07/17/15 Moderate intensity Haploidentical Allogeneic Stem Cell Transplant receiving my son's peripheral blood stem cells.
07/21-22/15 Triple dose Cyclofosfamide + Mesna, followed by immunosuppressants Tacrolimus and Mycophenolate Mofetil.
07/23-08/03/15 Marrow producing zero blood cells. Fever. Hospitalized two weeks.
08/04/15 Engraftment occurs, and blood cells are measurable - released from hospital.
08/13/15 Day 26 - Marrow is 100% donor cells. Platelets climbing steadily, red cells follow.
09/21/15 Acute skin Graft versus Host Disease arrives.
DEXA scan reveals Osteoporosis.
09/26/-11/03/15 Prednisone to control skin GvHD.
11/2015 Acute GvHD re-classified to Chronic Graft versus Host Disease.
05/2016 Tacrolimus stopped. Prednisone from 30-90mg daily tried. Sirolimus begun. Narrow-band UV-B therapy started, but discontinued for lack of response. One treatment of P-UVAreceived, but halted due to medication reaction.
09/16/16 Three skin punch biopsies.
11/04/16 GvHD clinical trial of Ofatumumab (Arzerra) + Prednisone + Methylprednisolone begun.
12/16 Type II Diabetes, Hypertension - both treatment-related.
05/17 Extracorporeal Photopheresis (ECP) begun in attempt to control chronic Graft-versus-Host-Disease (cGvHD. 8 year old Power Port removed and replaced with Vortex (Smart) Port for ECP.
05/2017 Chronic anemia (low hematocrit). Chronic kidney disease. Cataracts from radiation and steroids.
06/17 Trying various antibiotics in a search for tolerable prophylaxis.
08/17 Bone marrow biopsy reveals the presence of 2% cells with 20q Deletion Myelodysplastic Syndrome, considered to be Minimum Residual Disease.
12/17 Bone marrow biopsy reveals no abnormalities in the marrow - MDS eradicated. The steroid taper continues.
01/18 Consented for Kadmon clinical trial.
03/18 Began 400mg daily of KD025, a rho-Associated Coiled-coil Kinase 2 Inhibitor (ROCK2).
09/18 Due to refractory GvHD, Extracorporeal Photopheresis halted after 15 months ue to lack of additional benefit.
10/18 I was withdrawn from the Kadmon KD025 clinical trial due to increasing fatigue/lack of benefit.
11/18 Began therapy with Ruxolitinib (Jakafi), a JAK 1&2 inhibitor class drug. Started at half-dose due to concerns with drug interactions.
11/19 MRI of brain reveals apparently benign frontal lobe tumor. Has the appearance of a cerebral cavernoma. Watch & wait on that.
To date: 1 cancer, relapse, second relapse/mutation into 2 cancers, then 3 cancers simultaneously, 20 chemotherapy/GVHD drugs in 11 regimens (4 of them at least twice), 5 salvage regimens, 4 clinical trials, 5 post-transplant immuno-suppressant/modulatory drugs, the equivalent of 1,000 years of background radiation from 40+ CT series scans and about 24 PET scans.
Both lymphoid and myeloid malignancies lend a certain symmetry to the hematological journey.
Believing in the redemptive value of suffering makes all the difference.
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